A Parent's Perspective CANCER ... The word stops you in your tracks, especially when it is a label your child must wear. It is not an easy path, but you're not alone. There have been many before you. It is their experiences and education that make up the resources found at the Family Resource Center. For me in the beginning, it was like the doctors and nurses were talking at me and I was not absorbing any of it. Then, after the shock wore off, I started reading. It offered great comfort to me to know all I could about my daughter's disease. Take advantage of the Family Resource Center. They can give you information and do online research for you. You can checkout their books and videos for yourself, or one of their special books for your child. It is a scary time and there will be many changes for you and your family. But, find strength in knowing there are survivors. By Brandee Green Mother of cancer survivor

Children, Cancer, and Clinical Trials As the parent of a child with cancer, you are an essential member of the team that will be responsible for his or her management and, we hope, ultimate recovery. You now belong to a special group that more often than not find within themselves previously unrecognized strengths and courage. It is important that the physicians and nurses to whom you entrust the care of your child be members of a multidisciplinary team experienced in the diagnosis and treatment of childhood cancer. Pediatric oncology is a rapidly evolving discipline, and it is only through programs dedicated to children with cancer that the latest advances can be realized. Most of the cancers occurring in children are more successfully treated than those in adults. In part this is due to differences in the biology of childhood and adult cancers and in part to the greater resilience of children that permits the use of more intensive treatment if needed. While most children with cancer are cured, some are not and others develop side effects of treatment that have long term consequences. Until all children with cancer are cured with minimally toxic therapies, pediatric oncologists will continue their efforts to further refine treatment. This is why pediatric oncology is practiced in the context of clinical trials. In clinical trials standard treatment is compared with treatment that has the potential to be superior. If the new treatment is shown to have advantages over the standard regimen, it becomes the standard against which further innovations are compared. It is important that you be aware of national clinical trials for which your child may be eligible and that you be given the information necessary to make informed decisions. The Family Resource Center will assist you in this respect, as will your child’s physicians and pediatric oncology nurses. By John Lukens, MD Vanderbilt University Medical Center

100 Questions & Answers About Bone Marrow and Stem Cell Transplantation By Ewa Carrier, Gracy Ledingham Sudbiru, MA: Jones and Bartlett Publishers, 2004. Library of Congress Number: RD123.5.C37 2004 Category: Specific Chronic Health Condition   This is the only book that offers the first-hand experiences of a patient and the perspective of a transplant doctor to provide you with authoritative, practical answers to your questions about treatment options, post-treatment quality of life, sources f support, and much more.

100 Questions & Answers About Cancer Symptoms and Cancer Treatment Side Effects By Joanne Frankel Kelvin, Leslie B. Tyson Sudbury, MA: Jones and Bartlett Publishers, 2005. Library of Congress Number: RC263.K44 2005 Category: Specific Chronic Health Condition   Written by experienced oncology nurses with commentary from cancer patients, this publication gives you authoritative, practical answers to your questions about what to expect from cancer and its treatment. This book is an invaluable resource for anyone coping with the physical and emotional turmoil of the effects of cancer.

After Cancer By Wendy Schlessel Harpham New York, NY: W.W. Norton & Company, 1994. Pages: 364 Library of Congress Number: RC263.H359 1995 Category: Specific Chronic Health Condition   This book will help patients through the emotional, financial, social and spiritual fallout that survivors of cancer experience. The author is a survivor of cancer herself and she addresses a wide range of topics in a warm, easy-to-assimilate question and answer format.

Against the Odds: The True Story of Michele, A Cancer Survivor By Patrick Nolan, Patricia Nolan, Michele K. Nolan Langley, WA: Alchemy Publishing, 1995. Pages: 251 Library of Congress Number: RC281.C4 N64 1995; C:2 Category: Specific Chronic Health Condition   "Against the Odds" is a warm and touching memoir by Michele and her family describing her treatments for cancer. The book is a thoroughly inspiring and heartwarming story of a child’s will to live and the impact of cancer on family, marriage and community.

Alex and the Amazing Lemonade Stand By Liz Scott, Jay Scott Wynnewood, PA: Paje Publishing Co., 2004. Library of Congress Number: RC280.N4S36 2004 Category: Coping   Using rhymes and bright whimsical pictures this book tells the inspirational true story of a little girl names Alexandra "Alex" Scott. Faced with her own illness and wishing to help find a cure for herself and others, Alex came up with a plan-to sell lemonade from a lemonade stand to raise money. This story shows how the small act of one person can impact many people; an important lesson for children of all ages.

Autobiography of a Face By Lucy Grealy Boston, MA: Houghton Miflin, 1994. Library of Congress Number: RD661.G74A3 2003 Category: Coping   At age nine, Lucy was diagnosed with a potentialy terminal cancer. This involved the removal of a third of her jaw. She has turned her misfortune into a book that is engaging and engrossing, a story of grace and challenges of her own wit and style and class.

Becky and the Worry Cup By Wendy S. Harpham New York, NY: HarperCollins, 1997. Library of Congress Number: PZ7.H2327BeC367 1997 Category: Coping   Becky was a reasonably happy little girl until her mother was diagnosed with cancer. Becky reacted as most little girls under the same circumstances would. She worried. Her mother gave her a worry cup. Everytime she worried about her mother or the changes in her life she put a button in the worry cup which was a way of coping with the things that bothered her.

Bone Marrow and Blood Stem Cell Transplants By Susan Stewart, Jan Sugar Highland Park, IL: Blood and Marrow Transplant Information Network, 2002. Pages: 190 Library of Congress Number: RD123.5 .S747 2002; C:3 Category: Specific Chronic Health Condition   1 Spanish and 2 English books in the library. This book was written by and for patients, with the help of many doctors, nurses, social workers, caregivers and transplant survivors. It will help you translate some of the medical information you'll receive during your treatment into plain English. The book includes quotations from transplant survivors who faced the same challenges that now lie before you. They explain their experiences with undergoing and surviving bone marrow and blood stem cell transplants.

Bone Marrow Transplants By Susan Stewart, Martin S. Tallman, Patrick J. Stiff Highland Park, IL: Blood & Marrow Transplant Newsletter, 1992. Pages: 158 Library of Congress Number: RD123.5.S74 1992; C:4 Category: Specific Chronic Health Condition   This book was written by patients for patients undergoing a bone marrow transplant. It is designed to explain medical procedures and terminalogy in plain English and help answer a patient's many questions. The book is based on the first twelve issues of the BMT Newsletter which is a free publication for BMT patients, survivors and their families. Helpful resource listings and health insurance tips are offered along with other practicul information.

Brain Tumor Patient Resource Handbook By Brain Tumor Foundation of Canada London, Ontario, Canada: Brain Tumor Foundation of Canada, 1994. Pages: 188 Library of Congress Number: RC280.B7 B73 1994; C:4 Category: Specific Chronic Health Condition   This handbook about pediatric brain tumors is as informative and detailed as a textbook, but easy to read and understand. Starting with an overview of the brain and moving through different types of tumors, treatments, experiences at the hospital, at home and in the community, the book covers many practical aspects of living with brain tumors. The book also includes information on nutrition, complications, different therapies and various appendices, tables and figures to make the explanations clearer.

Breast Cancer Survival Guide, The By John Link New York, NY: Henry Holt & Company, LLC, 2000. Pages: 212 Library of Congress Number: RC280.B8L53 2000 Category: Specific Chronic Health Condition   Especially written for newly-diagnosed patients with breast cancer this book will help bring clarity to what medical treatment options may be available as well as how to optimize benefits of a healthy diet, obtaining a second opinion, interpreting a pathology report and insights into many other issues a cancer patient will encounter.

Butterfly Kisses and Wishes on Wings By Ellen McVicker Hong Kong: Fran Waldmann, 2006. Library of Congress Number: RC264.M38 2007 Category: Coping   This is a very important book with a very powerful message. A beautiful work of art that educates children about medical and psychological issues relating to cancer, it is also a gift for the loved one with cancer.

Can I Still Kiss You? Answering Your Children's Questions About Cancer By Neil Russell Deerfield Beach, FL: Health Communications, Inc., 2001. Pages: 106 Library of Congress Number: RC262.R87 2001 Category: Specific Chronic Health Condition   This two-time cancer survivor parent offers the language and resources to communicate with one's own child about being diagnosed with cancer. Drawn from conversations with his sons and other cancer survivors, Russell gives answers to all kinds of questions that kids might have for their parents, from the technical to the metaphysical. Each chapter provides workbook space to jot down personal questions, feelings, thoughts, and answers for parents and their children.

Cancer By Elaine Landau New York, NY: Twenty-First Century Books, 1994. Category: Specific Chronic Health Condition

Cancer & Hope - Charting a Survival Course By Judith Garrett Garrison, Scott Sheperd Minneapolis, MN: CompCare Publishers, 1989. Library of Congress Number: RC262.G37 1989 Category: Coping   If You - or someone close to you - has cancer, here's a guide to emotional survival. It fills an obvious void. It provides the cancer patient and family with a resource when they feel most isolated.

Cancer in the Family: Helping Children Cope with a Parent's Illness By Sue P. Heiney, Joan F. Hermann, Katherine V. Bruss, Joy L. Fincannon Atlanta, GA: American Cancer Society, 2001. Pages: 218 Library of Congress Number: RC262.C29113 2001; C:2 Category: Coping   This book provides useful steps to help children understand what happens when a parent has been diagnosed with cancer. In addition to valuable steps, this guide book also offers a specially illustrated workbook to help children record and express their feelings during this time, suggestions for managing role changes and disruptions in routines, exercises to aid in commuicating, and advice on recognizing signs that a child is having difficulty coping.

Cancer Lifeline Cookbook, The By Kimberly Mathai, Ginny Smith Seattle, WA: Sasquatch Books, 2004. Library of Congress Number: RC271.D52M384 2004 Category: Nutrition/Weight Management   The Cancer Lifeline Cookbook is a superb compilation of information for fully understanding diet as it relates to health, food preparation and storage, alternative choices, what to do when you have no appetite, and so much more. Practical and tasty recipes, as well as helpful literature and website references are also offered.

Cancervive Parent's and Teacher's Guide for Kids with Cancer By Susan Nessim, Ernest R. Katz Los Angeles, CA: Cancervive, Inc., 2005. Library of Congress Number: RC264.K44 2005; C2 Category: Specific Chronic Health Condition   Sub-Category: Educational and Community Issues   Since there have been advances in the survival rate of children with cancer the successful classroom re-integration of children with cancer represents hope for the future. School provides the opportunity to master the social skills and educational competence necessary to actively contribute to society. This guidebook is a valuable tool for teachers and parents.

Cancervive Parent's Guide for Kids with Cancer By Susan Nessim Keeney, Ernest R. Katz Los Angeles, CA: Cancervive, Inc.The formation of partnership, NA. Category: Specific Chronic Health Condition   Sub-Category: Educational and Community Issues   The formation of partnerships between the school, the hospital and the family will assure that children who have faced cancer receive an education that will prepare them to be productive and well-adjusted adults. This publication highlights and guides parents and teachers though this process.

Cancervive Teacher's Guide for Kids with Cancer By Susan Nessim, Ernest R. Katz Los Angeles, CA: Cancervive, Inc.* Library of Congress Number: LC4561 .N47 2000 Category: Specific Chronic Health Condition   Sub-Category: Educational and Community Issues   Given the serious nature of their disease and the intensive medical treatments required to combat it, young people with cancer are at risk of encountering difficulties upon re-entering the school setting. This publication will help with the formation of partnerships between the school, the hospital and the family.

Chicken Soup for the Surviving Soul By Jack Canfield, Mark Victor Hansen, Patty Aubery, Nancy Mitchell, R.N. Deerfield Beach, FL: Health Communications, Inc., 1996. Pages: 359 Library of Congress Number: BV4910.33.C48 1996 Category: Coping   An inspirational collection of stories and experiences submitted by cancer survivors and their families.

Childhood Brain and Spinal Cord Tumors: A Guide for Families, Friends, and Caregivers By Tania Shiminski-Maher, Patsy Cullen, Maria Sansalone Sebastopol, CA: O'Reilly, 2002. Pages: 546 Library of Congress Number: RC280.B7 S48 2002; C:2 (copies 1 & 3 lost) Category: Specific Chronic Health Condition   Detailed, yet approachable, this book walks families and caregivers through every step from diagnosis to end of treatment or bereavement issues. With a step-by-step approach to all aspects of treatment and care, the authors offset the wealth of information with personal stories from families who have “been there.” Well organized with charts and tables to make the information more understandable, the book also offers practical advice on how to deal with every aspect of cancer care. There are excellent resources in the appendices, including a list of pediatric neuro-surgeons organized by state. As the accompanying recommendations state, “This book should be handed to every family at the moment of diagnosis.”

Childhood Cancer By Honna Janes-Hodder, Nancy Keene Sebastopol, CA: O'Reilly & Associates, 2002. Category: Specific Chronic Health Condition   Having a child diagnosed with cancer is an emotional time that often leaves a family feeling helpless and without control. Written by parents who have walked in the shadow of childhood cancer, this book provides detailed information, open-armed support, and the arsenal of tools needed to fight the battle that lies ahead.

Childhood Cancer Survivors By Nancy Keene et al Sebastapol, CA: O'Reilly & Associates, 2000. Library of Congress Number: RC281.C4.K44.. 2000: C:3, C4 Category: Specific Chronic Health Condition   This book provides caregivers, parents, and patients themselves with important information on the care and the day-to-day lives of survivors of childhood cancer. This helpful volume identifies potential problems that survivors may face in physical and mental development after surgery, radiation, and chemotherapy treatment and how they can cope and treat these possible complications. Information is included about medical late effects from treatment, emotional aspects of surviving cancer, schedules for follow-up care, challenges in the healthcare system, lifestyle choices to maximize health, and discrimination in employment or insurance. Numerous stories from parents and survivors are also presented throughout the book.

Childhood Cancer Survivorship Washington, DC: The National Academies Press, 2003. Library of Congress Number: RC281.C4N367 2003 Category: Specific Chronic Health Condition   Not widely recognized due to the cure rates, as measured in 5-year survival that has increased to 78 percent, there are unintended consequences of this success: the late effects which may impair some survivor's health and quality of life; and the complications, disabilities, or adverse outcome that are the result of the disease process, the treatment, or both. This publication deals with the consequences.

Childhood Cancer: A Handbook from St. Jude Children's Research Hospital By Grant Steen, PhD, Joseph Mirro, MD Cambridge, MA: Perseus Publishing, 2000. Pages: 521 Library of Congress Number: RC281.C4 C45 2000 Category: Specific Chronic Health Condition   Written by the faculty and staff of the renowned St. Jude's Children's Research Hospital in Memphis, TN, this book is created to help families understand and cope with childhood cancer. This comprehensive volume is a reliable and understandable source for up-to-date information on the disease, recommendations, and clear answers to questions.

Childhood Cancer: A Parent's Guide to Solid Tumor Cancers By Honna Janes-Hodder, Nancy Keene Sebastopol, CA: O'Reilly, 2002. Library of Congress Number: RC281.C4 J36 2002; C:2 Category: Specific Chronic Health Condition   This updated second edition of this classic handbook was written with parents of cancer patients in mind, “Childhood Cancer” is readable, reliable and practical, giving basic information followed by stories of real children. Starting with the basics of medical terminology and diagnosis, the book moves through hospital visits, home care, family relationships, end of treatment, relapses, and bereavement. This book provides an in-depth look at different kinds of solid tumor cancers and offers excellent information for the cancer caretaker, appendices on blood counts, community and national resources, a glossary, book and website guide and detailed index.

Childhood Cancer: Information for the Patient and Family By Ronald D. Barr, Mary Crockett, Susan Dawson, Marilyn Eves, et al Hamilton, Ontario Canada: BC Decker, Inc., 2001. Pages: 148 Library of Congress Number: RC264.C55 2001; C:2 Category: Specific Chronic Health Condition   This straight-forward guide book breaks down several aspects of childhood cancer for families and patients. Many professionals have contributed to this book, covering information from FAQs and coping to nutrition and drugs and much, much more. Each chapter (18 total) is fairly short and includes a summary section and a place for taking notes.

Childhood Leukemia: A Guide for Friends, Families and Caregivers By Nancy Keene Sebastopol, CA: O'Reilly, 2002. Pages: 505 Library of Congress Number: RJ416.L4 K44 2002; C:3 Category: Specific Chronic Health Condition   This third-edition book is an updated comprehensive guide to living with childhood leukemia, from diagnosis through to the end of treatment. Keene writes detailed chapters on the nature of leukemia, procedures, clinical trials, and hospitalization. Readers will find advice and suggestions on everything from getting to know the medical team to coping with school, sources of support and how to keep medical and financial records. Interviews with families and survivors of childhood leukemia offer insight into psychological reactions, family crises, sibling relations, and dealing with death and bereavement. In addition, the book offers information on “Wish Fulfillment” organizations, how to get information from the Internet, and resource organizations.

Childhood Leukemia: The Facts By John S. Lilleyman London, UK: Oxford University, 2000. Pages: 148 Library of Congress Number: RJ416.L4 L549 2000 Category: Specific Chronic Health Condition   This book explains childhood leukemia in simple, straightforward terms, with compassion and honesty. Lilleyman describes different kinds of leukemia, treatments, and ways of coping with a leukemia diagnosis. The book contains graphs and charts, a detailed glossary, and an extensive index to make specific issues more accessible.

Coping With Childhood Cancer : Where Do We Go From Here By David W. Adams, Eleanor J. Deveau Ontario, Canada: Kinbridge Publications, 1993. Pages: 306 Library of Congress Number: RC281.C4 A3 1993 Category: Specific Chronic Health Condition   This book deals directly and honestly with the feelings and problems that may arise for families during a child's treatment of cancer. While many resources for parents consist of medical information of the illness, this book focuses on the emotional and social repercussions for the child and the family. Based on real-life experiences and examples of other parents, children, and families, "Coping with Childhood Cancer" addresses everyday concerns, events, and questions that a family may face. Information is provided on all ages, with special sections on adolescents and advice specifically for single parents.

Dictionary for Brain Tumor Patients By American Brain Tumor Association Des Plaines, IL: American Brain Tumor Association, 2002. Category: Reference   This book provides definitions for brain tumor patients, including medical terms, abbreviations, professionals, prefixes, roots, and suffixes. The dictionary also provides measurement tables for medications.

Eating Hints for Cancer Patients Before, During & After Treatment National Cancer Institute, 1997. Library of Congress Number: RC271.D52E37 1998 Category: Nutrition/Weight Management   This booklet was prepared to help cancer patients learn about diet needs during treatment and to help them cope with side effects that may affect eating. It is for cancer patients and their families and other caregivers.

Eating Well Through Cancer By Holly Berkowitz Clegg, Dr. Gerald Miletello Memphis, TN: Wimmer Cookbooks, 2001. Pages: 255 Library of Congress Number: RC271.D52C56 2001 Category: Nutrition/Weight Management   The authors each bring their unique areas of expertise to bring you specialized healthful, easy to create, delicious recipes for those experiencing cancer. Holly Berowitz Clegg is the author of the "Trim & Terrific" cookbook series and Dr. Gerald Miletello is an oncologist who helped focus the recipes on the unique needs of cancer patients. These tasty recipes are great for the whole family.

Eating Well, Staying Well During and After Cancer Atlanta, GA: American Cancer Society, 2004. Library of Congress Number: RC268.45.E285 2004; C:2 Category: Nutrition/Weight Management   This publication has first-hand suggestions from real people who've undergone treatment for cancer. Also has concrete strategies for coping with eating and digestion-related side effects. Has dozens of simple and appealing recipes for you - or friends and family who want to help.

Educating a Child with Cancer By Patricia Deasy-Spinetta, Elizabeth Irvin Bethesda, MD: Candlelighters Childhood Cancer Foundation, 1993. Category: Educational and Community Issues

Educating the Child with Cancer By Nancy Keene USA: Candellighter's Childhood Cancer Foundation, 2003. Pages: 331 Library of Congress Number: RC281.C4E32 2003 ; Copy 2 Category: Educational and Community Issues   The ultimate guide for parents and teachers who are educating a child with cancer. With resources from experts and documentation from families, this book deals with all the issues involved in educating a child who has cancer. Some of the topics covered are, missing school, fatigue and low immunity plus conveying the need for schools and teachers to explain cancer in the classroom.

Eric By Doris Lund New York, NY: HarperCollins Publishers, 1989. Library of Congress Number: RC643.L86 1989 Category: Coping   Eric was seventeen when he was first diagnosed with Cancer/Leukemia. Given the choice between life and death, Eric chose to live. This is a deeply moving and beautiful story.

Fighting Chance: Journeys Through Childhood Cancer By Harry Connolly Baltimore, MD: Woodholme House, 1998. Pages: 120 Library of Congress Number: RC281.C4C665 Category: Specific Chronic Health Condition   This book is a collection of expressive and beautiful black and white photographs illustrating the journey, battles, hopes and fears that living with cancer brings.

First, You Cry By Betty Rollins New York, NY: Harper Collins Publishers, 1976. Pages: 213 Library of Congress Number: RC280.B8664 Category: Coping   Author Betty Rollins, is a breast cancer survivor and NBC News correspondent who details her story. From learning she has a malignant tumor to describing her fears about having a mastectomy and the road to recovery, this classic book expresses every woman's concerns and fears regarding breast cancer with wit, candor and optimism.

Flying with Scissors By Bob Wallace College Station, TX: Virtualbookworm.com Publishing, Inc., 2005. Informative, helpful and remarkably entertaining! is not only a must read for anyone and everyone affected by cancer, it is therapy for all of us, and a manual on how to get the most out of life.

Guide to Good Nutrition During Cancer Treatment, A By Saundra N. Aker, Polly Lenssen Seattle, WA: Fred Hutchinson Cancer Research Center, 2000. Pages: 95 Library of Congress Number: RC268.45.A44 1988 Category: Nutrition/Weight Management   The Guide provides tools to overcome a variety of dietary side effects from cancer treatment. The discssion of each side effect has a list of helpful hints, and of foods that might help. The book includes a section on the special needs of children, nutrient needs, recipes, tips on diet and food safety, and an extensive list of resources.

Helping your Children Cope with your Cancer By Peter Van Dernoot New York, NY: Hatherleigh Press, 2002. Library of Congress Number: RC262.V36 2002 Category: Coping   This innovative book offers parents, teachers, mental health professionals and caregivers practical tools with which to help children find a sense of security in this unexpected life experience.

helping your preschool child By Abby Bloch, Barrie R. Cassileth Atlanta, GA: American Cancer Society, 2004. Library of Congress Number: RC268.45.E285 2004; C:2 Category: Nutrition/Weight Management   A friendly, practical handbook filled with sound nutritional advice for people with cancer. First-hand suggestions from people who've undergone treatment for cancer, concrete strategies for coping with eating and digestion-related side effects, dozens of simple and appealing recipes for you--or friends and family who want to help.

Hope For Families of Children with Cancer By Linda T. Young, Chap[lain Johnnathan Ward Snellville, GA: Kindred Press, 2008. Library of Congress Number: RC281.C4 Y678 2008 Category: Specific Chronic Health Condition   Sub-Category: Coping   This publication will help families cope with the difficult situations that arise when a child has cancer. It is filled with inspiring true stories, humor, helps, tips and scripture, families will be strengthened.

Human Side of Cancer, The By Jimmie C. Holland, MD, Sheldon Lewis New York, NY: Harper-Collins, 2000. Library of Congress Number: RC262.H654 2000 Category: Coping   A compassionate book that addresses the psychological issues cancer patients-and their families face during diagnosis, treatment, and its aftermath.

I Want to Grow Hair, I Want to Grow Up, I Want To Go To Boise By Erma Bombeck New York, NY: Harper Paperback, 1989. Pages: 174 Library of Congress Number: RC281.C4B66 1990 C:2 Category: Coping   An amazing, heart-touching book about surviving childhood cancer. Ms. Bombeck, in her classic style, speaks to, hears of and relays stories from patients and their families about childhood cancer. The book looks at the lives they lead, their worries and triumphs, and as can be expected, the humor to be found in any situation. Highly recommended and very inspirational, this is as much a book about living with cancer as it is about getting through, getting over and surviving cancer.

In Mommy's Garden By Neyal Ammary New York, NY: New York, 2004. Library of Congress Number: RC264.A47 2007 Category: Specific Chronic Health Condition   This publication is intended to help parents, family members, and healthcare professionals first talk about cancer with children and help alleviate misconceptions children often have.

It's Not About the Bike: My Journey Back to Life By Lance Armstrong, Sally Jenkins New York, NY: Berkley Publishing Group, 2001. Pages: 289 Library of Congress Number: GV1051.A76 A3 2001 Category: Coping   Lance Armstrong, world famous cyclist, has written an inspiring book on cancer and recovery. At the age of twenty-five, at the height of his career, Armstrong was diagnosed with cancer and given less than a fifty percent chance of survival. This book gives a candid, inspiring, and entertaining account of his battle with cancer, stories of life, and his will and determination to win the most important bicycle race in the world.

Know Before You Go: The Childhood Cancer Journey By Sheryl Lozowski-Sullivan, MPH Bethesda, MD: The Candlelighters Cancer Foundation, 1998. Pages: 200 Library of Congress Number: RC281.C4 L696 1998; C:5 Category: Specific Chronic Health Condition   “Know Before You Go” is a wonderful companion for anyone beginning the difficult journey through childhood cancer. Created by families who have been through a childhood cancer, the book covers beginnings and basics of cancer, dealing with treatment and unfamiliar medical experiences, financial matters and different organizations that offer support to cancer patients and their families. The book also includes a variety of other resources and organizations available to those struggling with cancer. Dialog boxes, lists and glossaries make the material understandable, and the book is filled with insights and comments from patients and their parents, siblings and caretakers.

Life After Cancer Treatment Bethesda, MD: National Cancer Institute, 1996. Library of Congress Number: RC262.L4525 2002 Category: Coping   This booklet will tell you what is learned from other survivors about life after cancer. Their reactions to recovery, practical tips for dealing with common problems faced after treatment are all included in this resource.

Lion in the House, A By Steven Bogner, Julia Reichert Wilmington, OH: Orange Frazer Press, Inc., 2006. Library of Congress Number: RC281.C4L54 2006 Category: Appearance and Personal Grooming   This book focuses on the true stories of five families dealing with cancer over the past six years. It is an incredible, full-tilt access to the families, doctors and nurses. It provokes tears, laughs, insights, faith, sympathy and great respect for the resilience of the patients and their parents and siblings.

Living With Childhood Cancer: A Practical Guide to Help Families Cope By Leigh A. Woznick, Carol D. Goodheart Washington, DC: American Psychological Association, 2002. Pages: 359 Library of Congress Number: RC281.C4 W69 2002 Category: Coping   This detailed guide offers families of children with cancer a wide range of advice and resources. Each section explains a different topic, from diagnosis and working with professionals, to alleviating trauma and side effects. The book contains charts and graphs to make the information more accessible, and stories from other patients, parents, siblings and professionals.

Making Cancer Less Painful: A Handbook for Parents By Patrick McGrath, Allen Finley, Catherine Turner Halifax, Canada: Issac Walton Killam Children's Hospital, 1992. Pages: 60 Library of Congress Number: RC281C4M33 1992 Category: Specific Chronic Health Condition   This booklet focuses on the control and treatment of pain in children with cancer. It contains explanations of diagnosing levels of pain, effective age-related tools and a list of resources available.

Mango Days By Patty Smith Pasadena, CA: Hope Publishing Huse, 1993. Library of Congress Number: RC265.6.S65A3 1993 Category: Coping   At age 17 Patty's received a diagnosis of non-Hodgkins lymphoma. How Patty responds could well stand as a model of how we would want to respond, or how we wuld hope our loved ones would respond. Patty's story is told not only through journal entries but in letters to a best friend and in poems, a mode of expression she had enjoyed since early childhood.

Marvin's Marvelous Medicine By Nancy Loranger, Rita Secola Orange, CA: Children's Hosp of Orange Co., 1993. Library of Congress Number: RC264M391 1993 Category: Specific Chronic Health Condition   This is a story to help children undergoing cancer treatment to see their treament through Marvin's eyes--as an adventure. This publication is intended as an educational entertainment tool only. It is not a substitute for professional medical guidance and should be used only in copperation with a personalized teaching program by a physicial or registered nurse experienced in the administration of G-CSF.

Navigating Through a Strange Land: A Book for Brain Tumor Patients and Their Families By Tricia A. Roloff San Francisco, CA: Indigo Press, 1995. Pages: 238 Library of Congress Number: RC280.B7 N38 1995 Category: Coping   A profound and touching book, “Navigating Through A Strange Land” presents the stories of brain tumor patients and gives resources for coping with tumors. The first part of the book gives an overview of brain tumors and what to expect from treatment. The second part, in the course of some six chapters, gives the stories of patients, families and caregivers. The final section provides lists of community resources including a glossary, foundations and organizations by region, legal and financial planners and books.

No More Bad-Hair Days: A Woman's Journey through Cancer, Chemotherapy and Coping By Susan Sturges Hyde Atlanta, GA: Longstreet Press, 1996. Pages: 106 Library of Congress Number: RC280.08 H94 1996 Category: Coping   One woman's journey through diagnosis, surgery, treatment, healing and, yes, hair loss. Hyde's snipits throughout her battle with cancer are encouraging, thought-provoking, funny and useful.

No Way It Can't Be! By Doug Ulman Ellicott City, Maryland: Ulman Cancer fund for Young Adults, 2004. Library of Congress Number: RC264.N36 2004 Category: Specific Chronic Health Condition   It is the goal of this publication to continue to help young adults affected by cancer deal constructively and successfully with the physical and emotional aftermath of cancer as it impacts every aspect of life.

Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment & Options By Lorraine Johnston Sebastopol, CA: O'Reilly & Associates, 1999. Pages: 556 Library of Congress Number: RC280.L9J64 1999 Category: Specific Chronic Health Condition   Non-Hodgkin's lymphoma is the third most-rapidly increasing cancer in the country. As this condition is really a group of varied lymphomas it is complex and can be difficult for the patient to understand and find the needed, targeted information. In a practical and straightforward manner, this book addresses: diagnosis and medical tests, finding a good oncologist and successful interaction, characteristics, treatments, including experimental treatments, side effects, emotional responses, stories from families living with NHL and getting support from friends and the community.

Oliver's Story By Michael Dodd Kensington, MD: Candlelighters Childhood Cancer Foundation, 2004. Library of Congress Number: RC264.D63 2004 Category: Specific Chronic Health Condition   This book is dedicated to the approximately twelve thousand children each year who will discover that their brother or sister has cancer.

Pain, Pain, Go Away: Helping Children With Pain By Patrick J. McGrath, Allen G. Finley Bethesda, MD: Assoc. for the Care of Children's Health, 1994. Pages: 15 Library of Congress Number: RJ365.M3815 1994; C:5 Category: Coping   This pamphlet provides parents with key information about helping their children cope with pain. The book talks about how to measure pain in a child and how to help a child express how much pain he is in. From simple information telling to distraction to play, the book gives suggestions to deal with pain of needles, medicines, postoperative pains, cancer and burn pains, and more. Suggestions for further reading is also included.

Perfect Vision: A Mother's Experience with Childhood Cancer By Sharon H. Brunner Fuquay-Varina, NC: Reasearch Triangle Publishing, Inc., 1996. Pages: 116 Library of Congress Number: RC263.B78 1996 Category: Bereavement/Grieving and Loss   "Perfect Vision" is the personal inspirational journey of a mother whose infant was diagnosed with retinoblastoma, a rare form of cancer.

Port for Me, A By Wendy Landier, Tamara Scott Salt Lake City, UT: Bard Access Systems Library of Congress Number: RC683.5P45 1999 Category: Specific Chronic Health Condition   This book is designed to assist your child in understanding the need for a venous port. It is dedicated to all of our little patients who bravely battle chronic illnesses. Parents are encouraged to read this book together with their child.

Resource Guide For Parents Of Children With Brain or Spinal Cord Tumors, A By Children's Brain Tumor Foundation Chappaqua, NY: The Children's Brain Tumor Foundation, 1995. Pages: 90 Library of Congress Number: RC281.C4R3 1995; C:2 Category: Specific Chronic Health Condition   The Resource Guide is full of information about brain and spinal cord tumors, and contains advice on treatment, how to communicate with the medical teams and outreach services, what to expect in hospitals and at home, hints on educating the child’s peers, and support available in the community, including hospice and palliative care.

Supportive Care of Children With Cancer: Current Therapy and Guidelines from the Children's Cancer Group By Arthur R. Ablin Baltimore, MD: The Johns Hopkins University Press, 1997. Pages: 327 Library of Congress Number: RC281.C4 S94 1997 Category: Specific Chronic Health Condition   Dr. Albin has produced a detailed and extensive handbook focusing on the many aspects of caring for children with cancer beyond treatments and cures. This book provides information on maintaining quality of life for those with cancer. Topics include immunizations and preventing simple illnesses, side effects of chemotherapy and radiation, pain management and emergencies, nutrition, social/home care and issues in terminal care. Very technical, with many charts and tables, the book is excellent for professionals and trained caregivers, and would be useful to patients’ families as a secondary resource.

Surviving Childhood Cancer: A Guide for Families By Margot J. Fromer Washington, DC; Oakland, CA: American Psychiatric Press; New Harbinger Publications, 1995, 1998. Pages: 215 Library of Congress Number: RC281.C4 F76 1995, 1998 Category: Specific Chronic Health Condition   A book for all members of a family with a child with cancer, “Surviving Childhood Cancer” offers practical advice on dealing with issues that involve the whole family, not just the patient. The book answers questions about stress, getting information, talking with friends, co-workers, etc. and approaches to dealing with the medical team. Stories of other families, appendices of camps and community resources, a glossary and a comprehensive index make this a useful and touching resource.

Taking Time: support for people with cancer and the people who care about them By National Cancer Institute Bethesda, MD: National Institutes if Health, 1993. Pages: 68 Library of Congress Number: RC264.T35 1993 Category: Coping   Derived from letters, conversations, books and articles from cancer patients and their supporters, and observations from professionals, this book focuses on how people who live with cancer cope with the disease. Each chapter begins with a summary and covers the following topics: sharing the diagnosis, sharing feelings, coping within the family, when you need assistance, selves and self-images, the world outside, living each day, and the years after. Support services and resources are listed in the back of the book. There is one other copy of this book housed in the file materials of the cancer section in the library.

There's No Place Like Hope By Vickie Girard Lynnwood, WA: Compendium, Inc, 2004. Library of Congress Number: RC263.G57 2001 Category: Specific Chronic Health Condition   Cancer patients will find help, hope, and inspiration within these pages written by someone who has been there, as well as knowledge to aid them in making decisions regarding health care and treatment.

Un "puerto" para mi By Wendy Landier, Tamara Scott Salt Lake City, UT: Bard Access Systems Sub-Category: Specific Chronic Health Condition   Un puerto para mi Dedicado a todos nuestros pequenos pacientes quienes valientemente batallan contra enfermedades cronicas.

Understanding Your New Life with Dialysis By Edith Oberley, Terry D. Oberley Springfield, IL: Charles C. Thomas, 1975. Category: Coping   For the patient about to embark on a course of maintenance dialysis, this book is a superb guide.

Walking Taylor Home: A Fatal Disease, a Father's Love and a Son's Courageous Journey By Brian Schrauger Nashville, TN: W. Pub. Group, 2001. Pages: 270 Library of Congress Number: RC281.C4 S377 2001; C:2 Category: Coping   "Walking Taylor Home" is the inspiring story of young Taylor’s struggle with cancer, and the journey he and his father undertook to enjoy the now. This spiritual struggle and inspirational story comes highly recommended by religious leaders, doctors and researchers.

When Life Becomes Precious: A Guide for Loved Ones and Friends of Cancer Patients By Elise N. Babcock New York, NY: Bantam, 1997. Pages: 275 Library of Congress Number: RC263.B24 1997 Category: Coping   Written from the perspective of her own experiences with a parent’s cancer and 23 years of counseling cancer patients, Babcock offers sound advice through personalized stories. Babcock offers advice on how to talk to the recently diagnosed, caring for the primary caregiver, talking to and helping children, and dealing with holidays. The book contains plenty of suggestions from experts and Babcock’s personal experience with families of cancer patients. An easy to read, touching and informative book.

Your Child Has Cancer: A Guide to Coping By Joan T. Rolsky Philadelphia, PA: Committee to Benefit the Children, 1992. Category: Specific Chronic Health Condition

Chemotherapy Cerenex Length: 11 minutes Library of Congress Number: RC271.C5 C4 Category: Specific Chronic Health Condition   This is a general introduction to what chemotherapy can do for cancer patients. Ways chemotherapy drugs are administered are discussed as well as the side effects that chemotherapy can produce. This video would be useful when making decisions about treatment.

Controlling Cancer Pain By National Cancer Institute Bethesda, MD: National Institutes of Health and Johns Hopkins Oncology, 2001. Length: 12 minutes Library of Congress Number: RC262.C66 2001; C:2 Category: Specific Chronic Health Condition   This video from the National Cancer Institute emphasizes the importance of managing cancer pain through different approaches, medication, and procedures. The video explains the different members of the pain management team and how they interact, and offers suggestions to patients about talking to their team, keeping a pain diary, and maintaining a medication schedule. The video explains some of the different types of pain medication, emphasizes the low risk of addiction, describes different side effects, and offers advice for coping with emotional pain.

Mr. Rogers Talks About Childhood Cancer American Cancer Society and Fred Rogers, 1989. Length: 29 minutes Category: Specific Chronic Health Condition   Mr. Rogers offers two cassettes and two programs for parents and children about cancer. Program one talks about how drawing and talking can help a patient work through their fears about cancer. Characters in Mr. Rogers’ neighborhood talk about different problems with cancer. Program two takes place in a hospital and talks about fears, treatments, doctors, hurting and getting better. A helpful information booklet and questions for additional viewing accompany the kit.

Mr. Rogers Talks with Parents About Childhood Cancer American Cancer Society and Fred Rogers, 1989. Length: 25 minutes Category: Specific Chronic Health Condition   Program one is for parents who have a child in treatment including discussions of feelings and emotions, dealing with hospitalizations, siblings, and the effects of cancer on the whole family. Program two is for parents of a child who did not survive. The video has segments concerning feelings before and after a child’s illness, reactions to death, dealing with memories, getting through the experience, and remembering a child who died. The kit includes an information booklet and suggestions for viewing.

New Normal: Life After Bone Marrow-Stem Cell Transplant, The By National Bone Marrow Transplant Link Southfield, MI: Sue Marx Films, Inc., 2001. Length: 46 minutes Library of Congress Number: WH380 VC NO.22 Category: Coping   "Through the varied experienced of six transplant survivors and their caregivers come words of encouragement, inspiration and hope. Ranging from two to ten years post-transplant, these former patients share their remarkable stories from diagnosis to transplant to their 'new normal' lives today." This film shows how others have successfully faced the transplant journey by reducing fears and providing support to both the patient and caregiver.

No Fears No Tears - 13 Years Later By Leora Kuttner Harriman, NY: Fanlight Productions, 1998. Length: 46 minutes Library of Congress Number: RC281.C4N64 1998 Category: Specific Chronic Health Condition   The film follows up on seven children who were filmed 13 years earlier as they underwent treatments for cancer. Leora Kuttner, a specialist in pain treatment and therapy, conducts interviews with survivors and their families to show how others have endured cancer treatments and how the treatments affected their lives. This video is helpful for showing teens and young adults what can be endured and overcome, and for showing parents what their child is going through and how it can affect them.

Patient to Patient: Clinical Trials and You The American College of Surgeons' Commission on Cancer and the National Cancer Institute Length: 16 minutes Category: Specific Chronic Health Condition   This video describes clinical trials and gives examples of how other patients have made their decisions about clinical trials of experimental treatments. The video talks about different ways of conducting clinical trials, questions to ask doctors, and the concerns, benefits and problems associated with clinical trials.

We Can Cope: When A Parent Has Cancer (Parent Tape) By Wendy Harpham Newton, MA: inflexxion, 2002. Length: 40 min. Library of Congress Number: RC262.W4P 2000 Category: Specific Chronic Health Condition   This video comes with an extensive booklet that highlights how to approach young children, preteens, and teens and what reactions might be expected. This video is a part of a 3 video series. One tape is for parents, another tape for teens and one for children. Parents from seven families talk about how their families coped after a parent was diagnosed with cancer and offer practical strategies on helping the entire family adjust.

You Can Manage Radiation Therapy Side Effects National Cancer Institute, 2007. Library of Congress Number: RC264Y67 2007 Category: Specific Chronic Health Condition   Doctors and patients discuss radiation therapy and how it works. This video will teach ways to manage side effects

You Don't Have To Die: Jason's Story By Geralyn Gaes, Craig Gaes, Philip Bashe New York, NY: Tiger Rose Productions, 1988. Length: 27 minutes Library of Congress Number: RC281.C4Y68 1989 Category: Specific Chronic Health Condition   This video is based on a book of the same title. It follows Jason, a six-year old cancer patient, and his family as they deal with cancer. Jason and his family discuss their feelings, fears, and experiences with cancer. The therapies are explained by Jason in terms of feelings. Jason survived cancer and wrote a book, illustrated by his brothers, that stresses that cancer does not mean death and that you can dream even if you have cancer. This is a very emotional film, but recommended for older children and teens.

Brain Tumor Patient Strategies for Healing By National Brain Tumor Foundation Oakland, CA: National Brain Tumor Foundation, 2002. Library of Congress Number: RC280.B7B72 2002 Category: Specific Chronic Health Condition   This CD-ROM from the National Brain Tumor Foundation provides information on different types of brain tumors, treatment options, and getting the best care. The CD also offers advice on finding support and resources.

Brothers & Sisters & Brain Tumors: A child's point of view for coping with cancer in the family Asheville, NC: Pediatric Brain Tumor Foundation, 2003. Library of Congress Number: RC281.C4B8745 2003 Category: Coping   A part of the Informed Parent Internet Series. This CD contains a lecture by Nancy Barbach, CSW, with personal annotations by a panel of individuals who are the siblings of children with cancer. The lecture hopes to help parents understand that although every child will react to a siblings cancer in his own unique way, there are certain commonalities: feelings of jealousy, anger, confusion, isolation, resentment, even hatred.

1. National Cancer Institute - Childhood Cancer's Home Page http://www.cancer.gov/cancerinfo/types/childhoodcancers Author: National Cancer Institute This website provides information about current and projected research in the field of childhood cancer, as well as links to statistics, literature about cancer, and information on support and resources. Many of the pages are available in English and Spanish. The site contains links to related NIH sites, clinical trials, and educational opportunities. The National Cancer Institute also operates a hotline (1-800-4-CANCER). The nationwide telephone service provides answers to questions, and sends out cancer related informational materials.

2. Oncolink http://www.oncolink.com Author: Oncolink (Abramson Cancer Center of University of Pennsylvania) Designed and managed by a group of cancer specialists, Oncolink provides a wide variety of resources including information on types of cancer, cancer news updated daily and treatment options. The site also contains links to the OncoLibrary and clinical trials. The information is available in both Spanish and English.

3. Pediatric Oncology Resource Center http://www.acor.org/types.html Author: Association of Cancer Online Resources (ACOR) This website is written, organized and edited by parents of children with cancer, and contains information on different cancers including brain tumors, leukemia, lymphoma, Wilm's Tumor, and others. The information provided includes links about treatment, support, frequently asked questions and activism.

American Cancer Society http://www.cancer.org Author: American Cancer Society Available in both English and Spanish, the information on this website is comprehensive and helpful, including support groups for cancer patients and survivors, research, and information about different cancers, drugs and treatment options, clinical trials, and coping. The site has links to publications, statistics, information on early detection, medical updates, fundraising activities, advocacy, and lobbying.

Brain Tumor Resource Guide http://neurosurgery.mgh.harvard.edu/bt-resrc.htm Author: Stephen B. Tatter, MD, Ph.D. This website provides a list over 25 resources relating to brain tumors. The resources listed come from all over the United States and Canada, and include contact information and lists of services provided.

Brain Tumour Foundation of Canada http://www.braintumor.org Author: Brain Tumor Foundation of Canada Available in both English and French, this website contains information from the Brain Tumour Foundation of Canada, including online access to their handbooks and information, support opportunities, web-chats (including scheduled chats moderated by physicians), and message boards for patients and families to share experiences.

CancerBACUP http://www.cancerbacup.org.uk/info/index.htm Author: CancerBACUP, a London-based group providing information and support to cancer patients CancerBACUP offers fact sheets on many different childhood cancers, as well as information on coping with cancer, new drugs available, and an online booklet, A Parent’s Guide to Childhood Cancer.

Childhood Cancer Center http://www.patientcenters.com/childcancer/ Author: Patient Centered Guides of O'Reilly and Associates This website contains information on childhood cancers, including books, links, web articles, organizational listings, and resources such as glossaries and printable charts for parents to use. The Patient Center's Homepage also contains a link to the Childhood Leukemia Center.

Childhood Cancers http://www.cancer.mgh.harvard.edu/resources/cancer_crr_typeIFCHILDHOOD.htm Author: Cancer Resource Room at Massachusetts General Hospital, Boston This website listing of resources contains books, videos, websites, discussion groups, and listservs for patients and families of those with childhood cancer.

Children's Cancer Web http://www.cancerindex.org/ccw/ Author: Simon Cotterill and the Children's Cancer Web Children’s Cancer Web provides information on many types of childhood cancer. The site provides links to descriptions of each kind of cancer, organizations, resources for parents and professionals and homepages for children and teens. In addition, the CCW offers links to many other support and information links for parents, patients and professionals. Links to research sites, home pages, treatment centers and professional journals make this a very helpful website.

CureSearch http://www.curesearch.org Author: National Childhood Cancer Foundation/Children's Oncology Group This website provides information about specific childhood cancers and offers links, articles, and opportunities for support and contribution. The site also has a section of stories from children with cancer.

Dana-Farber Cancer Institute http://www.dfci.harvard.edu/ Author: The Dana-Farber Cancer Institute This website provides information on cancers for children and adults, including diagnosis, treatment, clinical trials, internet resources, and a dictionary of medical terms.

Home Care Guide http://www.hmc.psu.edu/pedsonco/Homeguide.html Author: Peter S. Houts, Ph.D This website provides information on caring for children and teens with cancer at home and the specific difficulties and problems that arise from at home care. The information is detailed and extensive and was written by Ph.D.’s and M.D.’s from Penn State University. Topics include fever and infections, skin problems, mouth problems, coping, and others. The guide addresses concerns with palliative care, hospice, and coping with dying as well.

National Children's Cancer Society, The http://www.children-cancer.com/home/index.html Author: The National Children's Cancer Society (NCCS) This organization provides many services to children with cancer and their families. The website has information about the NCCS's support and advocacy programs, updates on fundraising events and activities, and the "Care to Share Cancer Connection" - a discussion group website for patients and families to connect with others on important topics. The website also has a kid's section, and links to other kid's sites, camps, and games.

National Library of Medicine http://www.nlm.nih.gov/hinfo.html Author: National Library of Medicine This website is an opening link to a wide variety of information regarding medicine, cancer, treatment, research and clinical trials. Includes links to Medline Plus, a website with dictionaries, directories, drug information and health topics.

Never Ending Squirrel Tale, The http://www.squirreltales.com Author: Debby Caron, a Montana woman who started the website for a friend whose daughter had cancer. This up-beat and encouraging site has a wide variety of information for parents of children with cancer, as well as resources and communities. The website contains fact sheets, personal stories, spiritual inspiration sections, bulletin boards, scrapbooks, newsletters, articles, practical tips and links to other resources.

Leukemia and Lymphoma Society (formerly the Leukemia Society of America) 404 BNA Drive, Suite 102 Nashville, TN 37217 Phone: 615.331.2980 Toll-Free: 800.332.2980 Fax: 615.331.2941 E-mail: mary.winslow@lls.org Website: http://www.leukemia-lymphoma.org The Leukemia and Lymphoma Society works towards curing leukemia and related cancers, and provides information, resources, advocacy, referrals and support to individuals with cancer. Special services include the Patient Aid Program to help with costs for drugs, travel, radiation, and blood transfusions. In addition, there is a Family Support Group for myloma patients in Nashville.

Gilda's Club of Nashville 1707 Division Street Nashville, TN 37212 Phone: 615.329.1124 Fax: 615.329.1167 E-mail: felice@gildasclubnashville.org Website: http://www.gildasclubnashville.org Gilda's Club provides a meeting place where men, women, and children touched by cancer and their families and friends can find emotional and social support completely free of charge. Gilda's Club also offers support groups for adults and children who have a family member or friend with cancer, or who have lost a loved one. Services include advocacy, health education, support groups, nutrition information and youth services.

Make-A-Wish Foundation of Middle Tennessee (formerly Dream Makers, Inc.) 209 10th Ave South, Suite 257 Nashville, TN 37203 Phone: 615.259.2324 Toll-Free: 888.492.9474 Fax: 615.244.6430 E-mail: linda@midtnwishes.org Website: http://www.midtnwishes.org Formerly operated by Dream Makers, Inc. the Nashville Chapter of the Make-A-Wish Foundation works to grant wishes for children, ages 2 ½ to 18, who have life-threatening medical conditions. They grant from 80 to 100 wishes per year and serve 33 counties in Middle Tennessee.

Memorial Foundation Hope Lodge Toll-Free: 1-800-227-2345 Website: http://www.cancer.org/docroot/SHR/content/SHR_2.1_x_Hope_Lodge.asp?sitearea=SHR&viewmode=print& The American Cancer Society offers free, temporary housing facilities for cancer patients who are undergoing treatment through their 22 Hope Lodges. But Hope Lodges are more than just a place to stay – they provide a home-like nurturing environment, so patients can get support from others going through the same experience.

Camp Horizon 2000 Charlotte Avenue Nashville, TN 37203 Phone: 615.341.7319 Toll-Free: 800.227.2345 Fax: 615.341.7335 Website: http://www.cancer.org The American Cancer Society provides patient resources including information, referrals, counseling, wigs and prostheses, college scholarships, financial assistance and support groups. The chapter organizes local American Cancer Society events, fund-raising, and support activities such as Relay for Life, Camp Horizon, and a teen program called "Look Good Feel Better for Teens" with cancer.

0-0 years

Lion in the House, A By Steven Bogner, Julia Reichert Wilmington, OH: Orange Frazer Press, Inc., 2006. Library of Congress Number: RC281.C4L54 2006 Category: Appearance and Personal Grooming   This book focuses on the true stories of five families dealing with cancer over the past six years. It is an incredible, full-tilt access to the families, doctors and nurses. It provokes tears, laughs, insights, faith, sympathy and great respect for the resilience of the patients and their parents and siblings.

All Ages

Alex and the Amazing Lemonade Stand By Liz Scott, Jay Scott Wynnewood, PA: Paje Publishing Co., 2004. Library of Congress Number: RC280.N4S36 2004 Category: Coping   Using rhymes and bright whimsical pictures this book tells the inspirational true story of a little girl names Alexandra "Alex" Scott. Faced with her own illness and wishing to help find a cure for herself and others, Alex came up with a plan-to sell lemonade from a lemonade stand to raise money. This story shows how the small act of one person can impact many people; an important lesson for children of all ages.

0-0 years

Autobiography of a Face By Lucy Grealy Boston, MA: Houghton Miflin, 1994. Library of Congress Number: RD661.G74A3 2003 Category: Coping   At age nine, Lucy was diagnosed with a potentialy terminal cancer. This involved the removal of a third of her jaw. She has turned her misfortune into a book that is engaging and engrossing, a story of grace and challenges of her own wit and style and class.

0-0 years

Cancer & Hope - Charting a Survival Course By Judith Garrett Garrison, Scott Sheperd Minneapolis, MN: CompCare Publishers, 1989. Library of Congress Number: RC262.G37 1989 Category: Coping   If You - or someone close to you - has cancer, here's a guide to emotional survival. It fills an obvious void. It provides the cancer patient and family with a resource when they feel most isolated.

All Ages

Chicken Soup for the Surviving Soul By Jack Canfield, Mark Victor Hansen, Patty Aubery, Nancy Mitchell, R.N. Deerfield Beach, FL: Health Communications, Inc., 1996. Pages: 359 Library of Congress Number: BV4910.33.C48 1996 Category: Coping   An inspirational collection of stories and experiences submitted by cancer survivors and their families.

0-0 years

Cole's Cancer By Sarah Rosenthal Nationwide Learning, Inc., 2007. Category: Coping   This project was a collaborative effort by the author, her classmates and her teacher.

0-0 years

Flying with Scissors By Bob Wallace College Station, TX: Virtualbookworm.com Publishing, Inc., 2005. Informative, helpful and remarkably entertaining! is not only a must read for anyone and everyone affected by cancer, it is therapy for all of us, and a manual on how to get the most out of life.

0-0 years

Hope For Families of Children with Cancer By Linda T. Young, Chap[lain Johnnathan Ward Snellville, GA: Kindred Press, 2008. Library of Congress Number: RC281.C4 Y678 2008 Category: Specific Chronic Health Condition   Sub-Category: Coping   This publication will help families cope with the difficult situations that arise when a child has cancer. It is filled with inspiring true stories, humor, helps, tips and scripture, families will be strengthened.

All Ages

My Stupid Illness By Katy Tartakoff Denver, CO: The Children's Legacy, 1994. Pages: 40 Library of Congress Number: RJ380.M9 1994 Category: Coping   “My Stupid Illness” is a wonderful combination of workbook and scrapbook for kids suffering from serious illnesses. Activities are aimed at reminding kids that life was cancer-free before and can be again, focusing their thoughts on how they feel, and opening them up for discussion. Other useful books in this series include “Let Me Show You My World,” “The Book of Me,” and “Life Isn’t Always a Day at the Beach.”

0-0 years

No Time to Cry By Lurlene McDaniel Plain City, OH: Darby Creek Publishing, 1993. Library of Congress Number: RJ416.L4M34 1993 Category: Coping   Sub-Category: Coping   This is the fourth book covering the struggle of Dawn Rochelle and her battle against Cancer. This time she faced bone marrow rejection. Being sixteen means all kinds of freedom: driving on your own, going to the mall with friends, dating. But Dawn Rochelle can't feel free because of the fear that her cancer will return. Maybe her greatest freedom can only come when she has the courage to live-when she has no time to cry.

All Ages

Sadako and the Thousand Paper Cranes By Eleanor Coerr New York, NY: Puffin Books, 1977. Pages: 79 Library of Congress Number: RJ416.L4 C63 1999 Category: Specific Chronic Health Condition   This amazing true story of Sadako is touching, heart-breaking and uplifting. Sadako is a little girl in Japan who is diagnosed with leukemia because she was a baby when the atom bomb destroyed Hiroshima. Sadako fights her leukemia by trying to make one thousand paper cranes. According to legend, if someone who is sick makes one thousand paper cranes, the gods will make them healthy again. This is Sadako's story of hope.

All Ages

Chemo Kid, The By Robert Lipsyte New York, NY: Harper-Collins, 1992. Category: Coping   This uplifting story about Fred, the class wimp who gets cancer, shows that even when getting chemotherapy, people can do more than they thought possible. Fred's chemo seems to give him super-human powers, which he uses to help his community.

0-0 years

There's No Place Like Hope By Vickie Girard Lynnwood, WA: Compendium, Inc, 2004. Library of Congress Number: RC263.G57 2001 Category: Specific Chronic Health Condition   Cancer patients will find help, hope, and inspiration within these pages written by someone who has been there, as well as knowledge to aid them in making decisions regarding health care and treatment.

0-0 years

Un "puerto" para mi By Wendy Landier, Tamara Scott Salt Lake City, UT: Bard Access Systems Sub-Category: Specific Chronic Health Condition   Un puerto para mi Dedicado a todos nuestros pequenos pacientes quienes valientemente batallan contra enfermedades cronicas.

All Ages

You and Your Cancer: A Child's Guide Hamilton, Ontario Canada: BC Decker, Inc., 2001. Pages: 56 Library of Congress Number: RC281.C4Y67 2001 Category: Specific Chronic Health Condition   Besides being a good resource for anwering the many questions a child might have about cancer, this book has interactive excercises and activity pages which allow children to express their own feelings and keep personal notes. The book covers topics such as cancer types, common tests, life at school, what to expect at the hospital and where to get help that is kid-friendly.

Children

Annie Loses Her Leg But Finds Her Way By Sandra Philipson Chagrin Falls, OH: Chagrin River Publishing, 1999. Pages: 37 Library of Congress Number: RD553.P55 1999 Category: Coping   This is the story of Annie, a dog who has to have her leg amputated due to cancer. Annie is sad until she meets Sam, another dog who had her leg amputated and who helps Annie realize that there are still lots of things that she can do.

Children

James Bounces Back Back to School By Debra Giugliano Trezza New York: Stony Brook*, 2002. Library of Congress Number: RC264.T74 2002 Category: Coping   The discovery of cancer caused James to face the biggest challenge of his life. What would the healing process entail, how long would it take, what would be the changes in my life, would I ever be able to go back to school. The end result was fortunately positive but the coping process was very stressful.

Children

Problem with Hair, The By Sue Foss Omaha, NE: A Centering Corporation Resource, 1996. Pages: 15 Category: Specific Chronic Health Condition   A Book for children who are learning about cancer.

Children

Year My Mother Was Bald, The By Ann Speltz Washington, DC: Magination Press, 2003. Pages: 49 Library of Congress Number: RC264.S66 2002 Category: Coping   This is a journal of a girl who's mother contracted cancer. She writes down her feelings of how she deals with her mom's illness and of all the emotions she undergoes.

2-6 years

Fuzzy and Frankie By Susan M. Murray Potomac, MD: S.M. Murray, 1991. Pages: 26 Library of Congress Number: RC264.M87 1991 Category: Coping   Frankie goes to the hospital, and Fuzzy, his teddy bear, is there to comfort Frankie. Fuzzy talks about Frankie's hospital stay, the various events and tests that happen, and Frankie's joyous moment when he leaves the hospital.

3-up

Oliver's Story By Michael Dodd Kensington, MD: Candlelighters Childhood Cancer Foundation, 2004. Library of Congress Number: RC264.D63 2004 Category: Specific Chronic Health Condition   This book is dedicated to the approximately twelve thousand children each year who will discover that their brother or sister has cancer.

3-up

When Mommy Had a Mastectomy By Nancy Reuben Greenfield Silver Spring, MD: Bartleby Press, 2005. Library of Congress Number: RD667.5.G745 2005 Category: Specific Chronic Health Condition   This book reaches out to women and their families during an emotional and uncertain time in their lives. It will help encourage discussion between mothers and their children, and thus alleviate some of the fear associated with breast surgery.

3-6 years

Collin's Trip to Upside Down Town By Ross Thomson Vox Media, 2010. Category: Coping   At age three Colin was diagnosed with a conitition that turned his whole family upside down. This book was written to make Collin smile. The story whisks him, his parents, and his brother to a place of wonder and amusement where joy can be found in a world of turmoil.

3-6 years

Amazing Hannah, The By Amy Klett Washington, D.C.: Candlelighters Childhood Cancer Foundation, 2002. Library of Congress Number: RC281.C4K64 2002; C:4 Category: Coping   Hannah is a little girl who shows us what her routine is like having cancer and a "central line." She talks about her checkups, tests, taking her medicines, keeping the germs away and teaching her baby sister that her tubies are not a toy. We meet her family and some of the doctors and nurses that care for Hannah. Hannah is a brave little girl and helps us to learn about childhood cancer by telling us her story in this read aloud book. Two books in English and two books in Spanish are available.

3-10 years

My ABC Book of Cancer By Shannin Chamberlain San Fransico, CA: Synergistic Press, 1991. Category: Specific Chronic Health Condition   This touching book was put together by 10 year old cancer patient Shannin Camberlain. Shannin covers many mjor issues and concerns for children with cancer and does so in a simple style with her own illustrations. The book also includes the story of her fight with cancer, resources and glossaries.

3-10 years

Sarah: A Six-Year-Old Who is Unafraid of Cancer By Sarah Marston Arcadia, CA: National Childhood Cancer Foundation, 2000. Category: Specific Chronic Health Condition   This is Sarah's story, written after she had been diagnosed with a brain tumor. The book explains, in simple terms, things that happen during cancer treatment that might be unfamiliar at first.

3-15 years

Problem With Hair: A Story for Children who are Learning About Cancer, The By Karen Sue Foss Omaha, NE: Centering Corporation Resource, 1996. Pages: 14 Library of Congress Number: RC263.F67 1996; C:2 Category: Appearance and Personal Grooming   A wonderful poem/story about a neighborhood of kids who all dislike their hair, including Louella who lost hers from cancer. Touching and sure to comfort any child with concerns about being different because he or she is bald from cancer treatments.

4-6 years

Butterfly Kisses and Wishes on Wings By Ellen McVicker Hong Kong: Fran Waldmann, 2006. Library of Congress Number: RC264.M38 2007 Category: Coping   This is a very important book with a very powerful message. A beautiful work of art that educates children about medical and psychological issues relating to cancer, it is also a gift for the loved one with cancer.

4-7 years

Let's Talk About Cancer: When Kids Have Cancer New York, NY: PowerKids Press, 1999. Pages: 24 Library of Congress Number: RC264.G67 1998 Category: Specific Chronic Health Condition   This large-print book has pictures of kids in daily activity and is a good introductory book to read aloud to a child to help explain about cancer for the first time. It is an overview of what a child's life who has cancer is like and answers some basic questions a child might have about cancer.

4-7 years

My Brain Tumor Adventures By Sharon Dempsey Philadelphia, PA: Jessica Kingsley Publishers, 2003. Pages: 12 Library of Congress Number: RC280.B7D465 2003 Category: Specific Chronic Health Condition   This is Owen's story of his experience of getting treatment for a brain tumor. He uses his imagination to help him cope with the strange machines and the treatment procedures.

4-7 years

Parker's Brain Storm By Scott Peterson, Melissa Peterson New York, NY: Children's Brain Tumor Foundation, 2003. Library of Congress Number: PZ.M7333Par 2008 Category: Specific Chronic Health Condition   Parker is usually the happiest bear in the world but lately he has been feeling very sick. His mother took him to the doctor and the diagnosis was cancer (a tumor). He, of course was very scared but between his mother and the encouragement of his doctor the tumor was removed and he learned that nothing is as bad as it seems.

4-8 years

Day With Dr. Waddle: An Introduction to Cancer Written for Children, A By Center for Basic Cancer Research Manhattan, KS: Center for Basic Cancer Research, Kansas State University, 1988. Pages: 40 Library of Congress Number: RC264.D39 1988 Category: Specific Chronic Health Condition   This book is presented in an interactive workbook fashion for coloring, activities, and answering questions. It provides parents, teachers with a tool discuss cancer with children. Dr. Waddle is a friendly duck and research scientist who explains what cancer is, what it does to cells, how scientists do research to find out clues about cancer. The book ends with giving good health tips for children to follow.

4-8 years

Chemo Crusader and the Cancer Fighting Crew By Melodie Homer, RN, MSN Marlton, NJ: PEPCO, 1999. Pages: 18 Library of Congress Number: RC264.H66 1999, C2 Category: Specific Chronic Health Condition   Chemo Crusader is a super hero who has a team of cancer fighters that have powers to fight cancer. Chemo Crusader explains to kids about normal cells and cancer cells and then describes the treatment process, including chemotherapy, x-rays, negative side effects, and medicines which are taken to combat the side effects from cancer treatment. This short book features brightly colored illustrations.

4-8 years

George's Button By Teresa Braziel Columbia, SC: Children's Hospital of Richland Memorial Library of Congress Number: RC264.B73 Category: Specific Chronic Health Condition   This book clearly explains to kids who are receiving chemotherapy how they can receive their chemotherapy through a method called a subcutaneous port, which reduces the frequency of needles. A puppet named George shows how the port works and calls it his "button." He talks about the procedure, what to expect, how not to be scared, and how they take it out.

4-8 years

H is for Hair Fairy By Kim Martin Victoria BC CANADA: Trafford Publishing, 2005. Library of Congress Number: RC264.M37 2005; C:2 Category: Specific Chronic Health Condition   This fun book is cleverly illustrated and features an alphabet of encouragement and insight for kids (and kids at Heart) with cancer.

4-8 years

Hannah's Story By Hannah Huth Nashville, TN: Bernadine Huth, 2004. Library of Congress Number: RC264.H88 2004 Category: Coping   This is the story of Hannah's journey with childhood cancer as told by the 6-year-old Hannah. Young children experiencing a similar journey will relate to this book and Hannah's story.

4-8 years

Just Will By Amy M. Cooper Cincinnati, OH: Children's Hospital Medical Center, Division of Heatology/Oncology, 1993. Pages: 24 Library of Congress Number: RC264.C68 1993; C:6 Category: Specific Chronic Health Condition   This is the story of Will, who finds out he has cancer. The book is an excellent tool for parents trying to help their children understand what cancer is and what it means for them.

4-8 years

My Book About Cancer By Rebecca C. Schmidt Pittsburgh, PA: Oncology Nursing Society, 2003. Library of Congress Number: RC264.M92 2003 Category: Coping   A workbook to help children deal with the diagnosis and treatment of a father with cancer.

4-8 years

My Mommy Has Cancer By Carolyn S. Parkinson Folsom, CA: Solace Publishing, 1991. Pages: 17 Library of Congress Number: RC264.P24 1991: C:2 Category: Coping   This is a short story to help families adjust to when a parent is diagnosed with cancer. Written from a five-year-old's point of view, the book touches upon cancer, its emotional impact and its treatment.

4-8 years

Paper Chain, The By Claire Blake, Eliza Balnchard, kathy Parkinson Santa Fe, NM: Health Press, 1998. Pages: 30 Library of Congress Number: RC263.B55 1998 Category: Coping   This beautifully illustrated book helps to describe and show how families can cope with a parent battling cancer. This story recounts the journey that one family took with a mother who had cancer and the changes and adjustments in life that occurred through the treatment period. This book offers a possible method of starting a dialogue for such a difficult topic with children.

4-9 years

Some Things Change and Some Things Stay the Same By Fred Rogers Pittsburgh, PA: Family Communications, 1989. Pages: 28 Library of Congress Number: RC263.S66 1989; C:2 Category: Specific Chronic Health Condition   Very basic, simple book talking about changes when someone has cancer. Mr. Rogers explains that cancer is just a different kind of change that happens to some people.

4-10 years

Kathy's Hats: A Story of Hope By Trudy Krisher Morton Grove, IL: Albert Whitman, 1992. Pages: 26 Library of Congress Number: RCC264.K75 1992; C:4 Category: Coping   “Kathy’s Hats” is a story about how it feels to lose hair from chemotherapy and how one little girl made the best of it. Kathy’s Hats is perfect for giving a message of hope and happiness to children with cancer.

4-10 years

Mommy's in the Hospital Again By Carolyn S. Parkinson Folsom, CA: Solace Publishing, 1994. Pages: 34 Library of Congress Number: RC262.P23 1994 Category: Coping   Discussing a parent's cancer with young children, Parkinson adroitly covers all the bases of fear, sense of difference, loneliness and disruption that children may feel. The story of Eric's Special Day, with its beautiful pictures, shows children that not all things have to change with a parent's illness and that love and family do not go away no matter how long the parent is in the hospital.

4-10 years

Someone Likes You Beary Much By Children's World Learning Centers Leukemia Society of America Golden, CO: Children's World Learning Centers, 1995. Pages: 20 Library of Congress Number: RJ416.L4S66 Category: Coping   This activitiy book helps young children, whose sibling has cancer, deal with their feelings and concerns. The cheerful tone and illustrations help children talk about some of the issues that they face.

4-10 years

Gift: For Children Who are Bone Marrow Donors, The By Sue P. Heiney, Sheldon Lamphier Columbia, SC: Richland Memorial Hospital, 1996. Pages: 26 Library of Congress Number: RD123.5.G54 1996; C:7 Category: Specific Chronic Health Condition   A charming fairy tale for children, “The Gift” emphasizes the importance of donating bone marrow and walks children through the experience. Sections for parents and questions and activities for children make this a touching and effective tool for helping children address the fears and concerns regarding donating bone marrow.

4-12 years

My Name is Buddy By Dave Bauer San Francisco, CA: National Brain Tumor Foundation, 2005. Library of Congress Number: WL358. B344 2002 Category: Coping   In this story, a golden retriever named Buddy shows kids what it was like to have a brain tumor. Buddy goes to the hospital and has tests done, sleeps through his surgery, has a shaved head, and meets all kinds of wonderful kids in the hospital. Buddy realizes these kids, who also have brain tumors or other cancers, are heroes and very brave. Buddy's story is inspiring, funny, and moving.

4-12 years

My Name is Buddy: A Story for Children About Brain Tumors By Dave Bauer Oakland, CA: National Brain Tumor Foundation, 2002. Pages: 24 Library of Congress Number: WL358.B344 2002 Category: Coping   In this story, a golden retriever named Buddy shows kids what it was like to have a brain tumor. Buddy goes to the hospital and has tests done, sleeps through his surgery, has a shaved head, and meets all kinds of wonderful kids in the hospital. Buddy realizes these kids, who also have brain tumors or other cancers, are heroes and very brave. Buddy's story is inspiring, funny, and moving.

5-up

Dear Bruno By Alice Trillin New York, NY: The New Press, 1988. Pages: 31 Library of Congress Number: RC264.T75 1988 Category: Coping   This charming book has been a classic for years, helping many children understand their different emotions after being diagnosed with cancer. Written by a cancer survivor to her friend's son, Bruno, who was diagnosed with cancer "Dear Bruno" teaches children of all ages that courage, a sense of humor and a matter-of-fact attitude can help us face even the scariest things.

5-up

In Mommy's Garden By Neyal Ammary New York, NY: New York, 2004. Library of Congress Number: RC264.A47 2007 Category: Specific Chronic Health Condition   This publication is intended to help parents, family members, and healthcare professionals first talk about cancer with children and help alleviate misconceptions children often have.

5-up

Lauren's Story By Lauren Frank, Jennifer Frank Sarasota, FL: Peppertree Press, 2007. Library of Congress Number: RC264.F73 2007 Category: Specific Chronic Health Condition   Lauren was diagnosed with cancer when she was 5 years old. She is a cancer survivor and she and her mother decided to put together a book that would tell Lauren's story in the hopes that it will help other little girls with the same diagnosis.

5-up

Let Me Show You My World By Katy Tarakoff Denver, CO: The Children's Legacy, 1994. Pages: 40 Library of Congress Number: RJ380.T37 1994 Category: Coping   Katy Tarakoff has created a magical workbook for children and young adults to help them confront their emotions and share their world with others. This book has been used in hospitals and therapy groups and provides many opportunities for people to identify, express and communicate their feelings and their worlds to others.

5-up

Marvin's Marvelous Medicine By Nancy Loranger, Rita Secola Orange, CA: Children's Hosp of Orange Co., 1993. Library of Congress Number: RC264M391 1993 Category: Specific Chronic Health Condition   This is a story to help children undergoing cancer treatment to see their treament through Marvin's eyes--as an adventure. This publication is intended as an educational entertainment tool only. It is not a substitute for professional medical guidance and should be used only in copperation with a personalized teaching program by a physicial or registered nurse experienced in the administration of G-CSF.

5-8 years

Cancervive Teacher's Guide for Kids with Cancer By Susan Nessim, Ernest R. Katz Los Angeles, CA: Cancervive, Inc.* Library of Congress Number: LC4561 .N47 2000 Category: Specific Chronic Health Condition   Sub-Category: Educational and Community Issues   Given the serious nature of their disease and the intensive medical treatments required to combat it, young people with cancer are at risk of encountering difficulties upon re-entering the school setting. This publication will help with the formation of partnerships between the school, the hospital and the family.

5-8 years

My Central Line Book By Wendy Landier, Tamara Scott Salt Lake City, Utah: Bard Access Systems Library of Congress Number: PC4629.W5417 1993 Category: Specific Chronic Health Condition   A simple yet informative book about having a central line to help patients and caregivers. Dedicated to those who bravely battle cancer and blood disorders. The Spanish translation is also in the same publication.

5-8 years

Sammy's Mommy Has Cancer By Sherry Kohlenberg New York, NY: Magination Press, 1993. Library of Congress Number: RC263.K64 1993; C:2 Category: Specific Chronic Health Condition   Quoted from the back cover: "Sammy's Mommy Has Cancer is a warm, sensitive, straightforward story that will help young children understand and accept the changes in their lives when a parent is diagnosed with a life-threatening illness. Parents will welcome this valuable aid in explaining the illness to their children. Both the story and the introduction offer useful suggestions for involving children in the joys and sorrows of good and bad days."

5-9 years

Andrew's Story By Chris Bridge Minneapolis, MN: Learner Publishing, 2002. Pages: 32 Library of Congress Number: RC280.K5 B753 2002; C:3, C:4, C:5 Category: Coping   Andrew tells the story of his fight with Wilm’s Tumor at the age of three, with his father’s help. “Andrew’s Story” is great for showing younger children that kids like them get sick too, and that they get better. Pictures of Andrew in various stages of his treatment and recovery make the story more real and less frightening.

5-9 years

Hope Tree, The By Laura Numeroff, Wendy S. Harpham New York, NY: Simon & Schuster, 1999. Library of Congress Number: RC280.B8.N86 1999 Category: Specific Chronic Health Condition   Sub-Category: Coping   This is a book developed to help children better understand and cope with breast cancer and how it affects not only their mother, but the entire family as well. The voices of children are often unheard, or silenced, when a mother develops cancer. Open communication can help families not only survive the cancer, but thrive.

5-10 years

Barclay and Eve: What IS Cancer, Anyway? By Karen L. Carney Wethersfield, CT: Dragonfly Publishing Company, 2001. Pages: 32 Library of Congress Number: RC264.C37 2001; C:4,C:5,C:6 Category: Specific Chronic Health Condition   Two instructive dogs named Barklay and Eve explain basic information about cancer to children. The book illustrates what cancer cells look like, what they do, where they grow in the body, and how they might affect people. The two dogs also talk about common misconceptions of cancer, hospital visitation, and chemotherapy.

5-10 years

Promises By Betsy Winthrop New York, NY: Clarion Books, 2000. Library of Congress Number: PZ7.W768PR 2000 Category: Specific Chronic Health Condition   Sarah remembers when her mom wasn't sick. In those days Mom ran races in the park and she had lots of dark curly hair. But now she's tired and lost all of her hair. Sarah misses these things and one day she figures out a way to make her mom look like every one else. This book brings to life this moving, hope-filled story about a young child contending with the cancer illness of a parent.

5-10 years

Roses are Red, Violets are Blue I Beat Cancer...So Can You! By Kristin Nicole Lewis Tucker, GA: Phi Mu Foundation Category: Specific Chronic Health Condition   This is the (initially) heartbreaking story of a young girl who was diagnosed with non-hodgkins lymphona. In this book she has documented her step-by-step procedures. They were very fearful but after 11 months of chemotherapy she was Cancer free. She was selected as the 1998 Miracle Child.

5-10 years

Tickles Tabitha's Cancer-Tankerous Mommy By Amelia Frahm Hutchinson, MN: Nutcracker Publishing, 2001. Library of Congress Number: RC264.F73 2001 Category: Specific Chronic Health Condition   Sub-Category: Coping   This book is a poignant, humorous story about a family who loves one another. It is told through Tabitha's eyes, it uses candor and comic reality to dispel stereotypes and acknowledge the moody truths faced by families living with cancer. It reads like it could be your family; not the family you think you ought to be.

5-10 years

Why, Charlie Brown, Why? By Charles M. Schulz New York, NY: Topper Books, 1990. Pages: 31 Library of Congress Number: RJ416.L4 S58 1990; C:10 Category: Coping   In "Why, Charlie Brown, Why?", the Peanuts gang encounters leukemia. Linus' friend Janice becomes ill and is diagnosed with leukemia. Linus has to deal with having a chronically ill friend while Janice is treated for leukemia. Janice loses her hair, faces teasing, misses school, and then grows her hair back. Janice gets to go back to school and can lead a normal life again, and the Peanuts gang learns about life and friendship.

5-12 years

Because Someone I love Has Cancer American Cancel Society Library of Congress Number: RC263.A62 2003 Category: Specific Chronic Health Condition   This activity book is for children who have a loved one with cancer.

5-12 years

Life Isn't Always A Day at the Beach By Pam Ganz Lincoln, NB: High Five Publishing, 1996. Pages: 28 Library of Congress Number: RC281.C4 G26 1996 Category: Coping   "Life Isn't Always a Day at the Beach" is a workbook for children who have cancer, or who have a family member who has cancer. The book helps children express their emotions and realize that others can help them with their confusion, anger, pain and other emotions. The workbook contains many activities for children and can be completed alone or with a parent or caretaker.

6-up

Angels and Monsters: A Child's Eye View of Cancer By Lisa Murray, Billy Howard Atlanta, GA: American Cancer Society, 2002. Pages: 67 Library of Congress Number: RC281.C4M875 2002; C:2 Category: Coping   Angels and Monsters: A Child's Eye View of Cancer features portraits of children with cancer along with a picture each child has created to express his/her feelings about cancer. For those who survived their illness, the author re-interviewed the children eight years later. This is a touching book that leaves the reader with mixed feelings of sorrow and hope.

6-up

Cancervive Parent's and Teacher's Guide for Kids with Cancer By Susan Nessim, Ernest R. Katz Los Angeles, CA: Cancervive, Inc., 2005. Library of Congress Number: RC264.K44 2005; C2 Category: Specific Chronic Health Condition   Sub-Category: Educational and Community Issues   Since there have been advances in the survival rate of children with cancer the successful classroom re-integration of children with cancer represents hope for the future. School provides the opportunity to master the social skills and educational competence necessary to actively contribute to society. This guidebook is a valuable tool for teachers and parents.

6-up

Me and My Marrow By Karen Crowe Deerfield, IL: Fujisawa Healthcare, Inc, 1999. Pages: 48 Category: Coping   Well illustrated and written in a style kids can appreciate and understand, “Me and My Marrow” describes what they can expect from bone marrow transplants and how to deal with the fear, pain and feeling ill. This wonderful resource for kids and teens also tell them how to take care of themselves, how to answer questions and the book gives advice about fitting in again after the transplant.

6-up

My PICC Line By Wendy Landier Salt Lake City, UT: Bard Access Systems, N/A. Category: Specific Chronic Health Condition   Children naturally look to their parents for guidance and support during stressful times. This book is designed to assist your child in understanding the need for venous access with a PICC line. Spanish also in this version.

6-up

Radiation Therapy, The By Kevin Cassidy New Orleans, LA: Ochsner Medical Foundation, 1999. Category: Specific Chronic Health Condition   An activity book for children that will show what it means to have radiation therapy. Included is a calendar to show how many treatments are expected and he will also be introduced to the people who will guide him and take care of him/her through the procedure which will ultimately result in a record for his keeping.

6-10 years

I Can Too! Brittany 's Books, 2006. Category: Specific Chronic Health Condition   A breath of fresh air for children with cancer. These books help to encourage self-esteem and imagination.

6-12 years

Port for Me, A By Wendy Landier, Tamara Scott Salt Lake City, UT: Bard Access Systems Library of Congress Number: RC683.5P45 1999 Category: Specific Chronic Health Condition   This book is designed to assist your child in understanding the need for a venous port. It is dedicated to all of our little patients who bravely battle chronic illnesses. Parents are encouraged to read this book together with their child.

6-12 years

I Had a Tumor, It Wasn't a Rumor By Ross Romenesko Madison, WI: Ross Romenesko Team, Ltd., 2003. Pages: 40 Library of Congress Number: RC281.C4R66 A boy's story of his journey through cancer and all of the wonderful opportunities he got to experience even though he was very sick.

6-12 years

My Daddy's Cancer: An Interactive Book for Children By Cindy K. Cohen, John T. Heiney Bloomfield Hills, MI: Promise Publications, 1999. Pages: 20 Library of Congress Number: RC262.C64 1999; C:2 Category: Specific Chronic Health Condition   Sub-Category: Coping   My Daddy's Cancer is a story and activity book for children with loved ones facing cancer. This story answers many questions that children may have and addresses various emotions that they may feel. The book includes several activities for children and pointers for parents and caregivers.

6-12 years

Book of Me, The By Triune Communications St. Louis, MO: The National Children's Cancer Society Pages: 48 Library of Congress Number: RC264.B66; C:4 Category: Coping   An activity book that will engage children with cancer in a number of interesting activities including pictures, lists to make, descriptions of friends and family, and ideas about the future.

7-0 years

Childhood Cancer Survivorship Washington, DC: The National Academies Press, 2003. Library of Congress Number: RC281.C4N367 2003 Category: Specific Chronic Health Condition   Not widely recognized due to the cure rates, as measured in 5-year survival that has increased to 78 percent, there are unintended consequences of this success: the late effects which may impair some survivor's health and quality of life; and the complications, disabilities, or adverse outcome that are the result of the disease process, the treatment, or both. This publication deals with the consequences.

7-11 years

Our Family Has Cancer, Too! By Christine Clifford Duluth, MN: Pfeifer-Hamilton Publishers, 1998. Library of Congress Number: RC264.C56 1998 Category: Coping   This book provides answers to questions that most kids have about cancer and what might happen if someone in the family has cancer. It also offers an opportunity for kids to share feelings with their parents. This is a great book for parents to read to their children. A glossary of terms is included in the back.

7-11 years

Zink By Cherie Bennet New York, NY: Dell Yearling (Random House), 1999. Pages: 243 Library of Congress Number: RC281.C4 B4 1999 Category: Coping   This touching novel follow's Becky into two new worlds: the first is the scary world of cancer treatments and chemotherapy, the second, through the spiritual bond of a Serengeti zebra herd, the plains of Africa. Through a spiritual bond, the zebras communicate with Becky and tell her tales of Zink, a brave, loving polka-dotted zebra. The zebras help Becky through her pain and fears facing Leukemia. The book was written in memory of, and based on a short story by Kelly Weil, a victim of Leukemia.

7-12 years

Victoria's Smile By Rita Geller New York, NY: Scholastic, 1998. Pages: 31 Library of Congress Number: RC264.G45 1998 Category: Coping   Written, in poem form, one of Victoria's classmates explains how they made fun of her when she first moved to town because her face looked different. They found out Victoria used to have a brain tumor, and the surgeries damaged her facial nerves. The class learns about her brave fight, and they realize they cannot judge a person by how they look.

7-13 years

Taking Cancer to School By Cynthia S. Henry, Kim Gosselin Valley Park, MO: JayJo Books, L.L.C., 2001. Pages: 17 Library of Congress Number: RC264.H46 2001 Category: Specific Chronic Health Condition   Informative kid-friendly book teaching school-age kids how to cope with cancer and how to relate to their friends who are experiencing cancer.

8-10 years

Rainbow Feelings of Cancer, The By Carrie and Chia Martin Prescott, Arizona: Hohm Press, 1990. Library of Congress Number: RC264.M374 2001 Category: Coping   Carrie and her mother, who has cancer, created this book to inspire children who have a parent with cancer to understand and cope with their emotions.

8-12 years

Leukemia By Sue Vander Hook North Mankato, MN: Smart Apple Media, 2001. Pages: 32 Library of Congress Number: RC643.V36 2001 Category: Specific Chronic Health Condition   This book clearly explains the basics of leukemia: how it occurs and is treated, the future of research, and life after leukemia. Descriptive photographs and a glossary of terms accompany the easy-to-read text.

8-12 years

On the Wings Of A Butterfly: A Story About Life and Death By Marilyn Maple Seattle, WA: Parenting Press, 1992. Pages: 25 Library of Congress Number: RC264.M32 1992; C:3 Category: Bereavement/Grieving and Loss   This is a gentle story of a girl named Lisa who is dying of cancer. Lisa befriends a caterpillar who is soon to turn into a butterfly, and she finds comfort and support with this caterpillar. This touching and honest tale provides a starting point for adults to discuss with their children about death and dying.

8-12 years

Sibshops: Workshops for Siblings of Children with Special Needs By Donald J. Meyer, Patricia F. Vadasy Baltimore, MD: Paul H. Brookes Publishing Company, 1994. Pages: 237 Library of Congress Number: HV888.M495 1994 Category: Coping   Often times, siblings of children with special needs are overlooked and need a forum to express their feelings, find support, and learn to cope. Sibshops provide this needed support where children aged 8-12 can have fun while they learn. This book is a user-friendly guide to organizing a Sibshop from scratch. Numerous resources, details, and activities are included in this book, and the format of the workshops are adaptable to address specific conditions (e.g. cancer, HIV, epilepsy, emotional disabilities, etc.).

9-12 years

Living with Leukemia By Patsy Westcott Austin, TX: Raintree Steck-Vaughn Publishers, 2000. Pages: 32 Library of Congress Number: RC643.W48 2000 Category: Specific Chronic Health Condition   Through the narrators Susie, Jack, and Rosie, this book explains how leukemia develops and how people are affected physically and in their daily lives. This book describes the treatment procedures for leukemia and provides a glossary, a list of organizations to contact for support, and recommendations for further reading and information.

9-13 years

Understanding Cancer By Susan N. Terkle, Marlene Lupiloff-Brazz New York, NY: F. Watts, 1993. Pages: 54 Library of Congress Number: RC264.T47 1993 Category: Specific Chronic Health Condition   This books touches upon all the questions that young people might have about cancer, the treatment process, and the side effects of treatment. This book also identifies certain feelings that one might experience and provides a glossary of terms and suggestions for further reading.

10-up

Chemo Girl By Christina Tara Richmond Sudbury, MA: Jones & Bartlett, 1996. Library of Congress Number: PZ7.R39875Ch 1997 Category: Coping   Christina wrote Chemo Girl to help herself and other children fighting cancer to maintain hope and to never give up on their dreams. Her dream became a reality with the publication of this inspirational story.

10-up

When Your Parent Has Cancer National Cancer Institute, 2005. Library of Congress Number: RC263W545 2005x Category: Coping   If your mom, dad, or an adult close to you has cancer, this booklet is for you. It can help prepare you for some of the things you might face. It can also help you to learn to handle living with a parent or relative who has cancer.

10-16 years

Chemo, Craziness & Comfort: My Book About Childhood Cancer By Nancy Keene Kensington, MD: Candlelighters Foundation, 2002. Pages: 185 Library of Congress Number: RC281.C4K26 2002; C:3 Category: Specific Chronic Health Condition   Sub-Category: Specific Chronic Health Condition   This is a fun-to-read book that talks about the important issues of being a child or teen with childhood cancer. Realistic yet inspiring with engaging illustrations, this book also offers a resource section at the back for further information.

12-up

Staring Down the Dragon By Dorothea N. Buckingham Leland, North Carolina: Sydney Press, 2003. Library of Congress Number: PS3552.U3372S73 2007; C::2 Category: Coping   A refreshingly honest story about being a teen, living with cancer, and the impact it has on oneself, friends and family.

Teens

I Want To Live By Lurlene McDaniel Plain City, OH: Darby Creek Publishing, 1987. Pages: 126 Library of Congress Number: RJ416.L4M34 1987 A fictional novel about a fourteen-year-old girl who is in remission from leukemia. She becomes sick again and wonders whether her cancer is back and what lies ahead in her future.

Teens

It's Not About the Bike: My Journey Back to Life By Lance Armstrong, Sally Jenkins New York, NY: Berkley Publishing Group, 2001. Pages: 289 Library of Congress Number: GV1051.A76 A3 2001 Category: Coping   Lance Armstrong, world famous cyclist, has written an inspiring book on cancer and recovery. At the age of twenty-five, at the height of his career, Armstrong was diagnosed with cancer and given less than a fifty percent chance of survival. This book gives a candid, inspiring, and entertaining account of his battle with cancer, stories of life, and his will and determination to win the most important bicycle race in the world.

Teens

Little Pieces of Nonsense By Ananda Lega Fuller Nunnelly, TN: IFS Associates, 1995. Pages: 36 Library of Congress Number: RC263.F85 1995 Category: Specific Chronic Health Condition   During her stay at The Vanderbilt University Medical Center for treatment of a brain tumor, Fuller kept herself up and focused by writing poetry. Fuller collected and published these poems to help other children with Cancer.

Teens

Teenage Cancer Journey By Kathleen A. Gill Pittsburg, PA: Oncology Nursing Press, 1999. Pages: 124 Library of Congress Number: RC265.6.G55A3 1999X Category: Specific Chronic Health Condition   This book is written by a teenage cancer survivor who is able to speak from experience. She provides insights in her struggles with this illness in a humorous and poignant way.

Teens

C-word: Teenagers and Families Living with Cancer, The By Elena Dorfman Portland, OR: NewSage Press, 1994. Pages: 127 Library of Congress Number: RC281.C4 D67 1994 Category: Specific Chronic Health Condition   At sixteen, Elena Dorfman was diagnosed with a rare muscle cancer the same day her mother was diagnosed with breast cancer. After her long struggle, she wanted to create a book for other teenagers who had cancer that might address the issues particular to that age group. Containing interviews, photographs and conversations with families and friends, “the C-Word” is a profound and beautiful book. It shows teens that they are not alone in their struggle, and offers hope to those who are just diagnosed.

Teens

They Never Want To Tell You By David Bearison Cambridge, MA: Harvard University Press, 1991. Pages: 189 Library of Congress Number: RC281.C4B43 1991 Category: Coping   Teens tell their story of what they experience when they find out they have cancer. School, relationships, siblings, family and their own emotions are all discussed.

Teens

Through and Beyond: 13 Teenagers Share Their Battles with Cancer By Molly Field Wiscassett, ME: Through and Beyond, 1998. Library of Congress Number: RC281.C4.T47 1998 Category: Specific Chronic Health Condition   An amazing and touching book compiled by Molly Fields for teens diagnosed with cancer. The book contains the thoughts of thirteen teens diagnosed with different cancer and their answers to questions about living with cancer. Chapters and discussions include diagnosis, catheters, hair loss, support systems, finishing treatment, self-esteem and things that helped the authors. Honest, funny and real, this book should help teens struggling with their life with cancer.

Teens

What About Me? A Booklet for Teenage Children of Cancer Patients By Linda L. Strauss Cincinnati, Ohio: Cancer Family Care, 1986. Pages: 24 Library of Congress Number: RC264.S73 1986 Category: Specific Chronic Health Condition   This booklet is for teenagers whose parent has cancer. The book addresses concerns teens often have about what kind of cancer their parent has, what treatment will be like, and how the cancer will change their lives as well as that of their parent. The booklet also explains how to deal with grief, finding somoeone to talk to outside the family, and moving through grief and anger. The author helps teens articulate their emotions and reactions about their parent's cancer.

16-up

Mango Days By Patty Smith Pasadena, CA: Hope Publishing Huse, 1993. Library of Congress Number: RC265.6.S65A3 1993 Category: Coping   At age 17 Patty's received a diagnosis of non-Hodgkins lymphoma. How Patty responds could well stand as a model of how we would want to respond, or how we wuld hope our loved ones would respond. Patty's story is told not only through journal entries but in letters to a best friend and in poems, a mode of expression she had enjoyed since early childhood.

17-up

No Way It Can't Be! By Doug Ulman Ellicott City, Maryland: Ulman Cancer fund for Young Adults, 2004. Library of Congress Number: RC264.N36 2004 Category: Specific Chronic Health Condition   It is the goal of this publication to continue to help young adults affected by cancer deal constructively and successfully with the physical and emotional aftermath of cancer as it impacts every aspect of life.

Adults

Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment, and Recovery By Harmon Eyre, M.D., Dianne Partie Lange, Lois B. Morris Atlanta, GA: American Cancer Society, 2002. Pages: 768 Library of Congress Number: RC262.I4985 2002 Category: Specific Chronic Health Condition   This book has been praised as one of the most informative recent books about cancer. The authors discuss cancer basics, diagnosis, treatment, metastasis, and end of life care. detailing issues like fatigue and chemotherapy. The last section details different cancers and provides an extensive list of resources.

Adults

When A Parent Has Cancer: A Guide To Caring For Your Children By Wendy S. Harpham New York, NY: Harper Collins, 1997. Pages: 164 Library of Congress Number: RC262.H295 1997 Category: Coping   Stemming from her own experiences both as a physician and as a mother who was diagnosed with non-Hodgkin’s Lymphoma, Dr. Harpham takes the reader through a journey of coping, growing, struggling and living as a parent who has cancer. Chapters on how to discuss diagnosis, treatment, and the possibility of death with children are supplemented by appendices on major stages in childhood, glossaries, resources and bibliographies for parents. The book also includes “Becky and the Worry Cup,” a book for children to read with a parent or alone, that touches on the issues children encounter when a parent has cancer.

All Ages

Making the Grade: Back to School After Cancer for Teens Leukemia Society of America, 1999. Length: 18 minutes Category: Coping   This excellent video is for kids going back to school after cancer treatments. The video follows Scott, Carolyn and Grant as they all go back to their “normal” lives and includes one-on-one conversations with the three patients, their friends and their peers at school. The questions the kids ask and answer are honest, simple and hopeful.

All Ages

Mr. Rogers Talks About Childhood Cancer American Cancer Society and Fred Rogers, 1989. Length: 29 minutes Category: Specific Chronic Health Condition   Mr. Rogers offers two cassettes and two programs for parents and children about cancer. Program one talks about how drawing and talking can help a patient work through their fears about cancer. Characters in Mr. Rogers’ neighborhood talk about different problems with cancer. Program two takes place in a hospital and talks about fears, treatments, doctors, hurting and getting better. A helpful information booklet and questions for additional viewing accompany the kit.

All Ages

My Hug-A-Bear Friend By Leukemia Society of America Leukemia Society of America, 1992. Length: 17 minutes Library of Congress Number: RJ416.L4 M995 1992 Category: Specific Chronic Health Condition   Hug-A-Bear introduces and hosts this video on leukemia. He explains what leukemia is and shows what it is like to be treated for leukemia by following the children through the hospital. Hug-A-Bear finds out about chemotherapy, bonemarrow transplants, going home, and going back to school after leukemia.

All Ages

My Mom Has Breast Cancer Kidscope, Inc., 1996. Length: 33 minutes Library of Congress Number: RC280.B8 M806 1996 Category: Parenting/Child and Adolescent Development   Dr. Betty King, breast cancer survivor and mother, introduces this video on families and breast cancer. Seven breast cancer survivors and their children introduce and discuss 6 topics about breast cancer: the diagnosis, impact of treatment, changes in family life, how kids cope, helping children cope, and after treatment.

All Ages

No Fears No Tears - 13 Years Later By Leora Kuttner Harriman, NY: Fanlight Productions, 1998. Length: 46 minutes Library of Congress Number: RC281.C4N64 1998 Category: Specific Chronic Health Condition   The film follows up on seven children who were filmed 13 years earlier as they underwent treatments for cancer. Leora Kuttner, a specialist in pain treatment and therapy, conducts interviews with survivors and their families to show how others have endured cancer treatments and how the treatments affected their lives. This video is helpful for showing teens and young adults what can be endured and overcome, and for showing parents what their child is going through and how it can affect them.

2-8 years

I'm Still Me! By The Leukemia Society of America Family Communications, Inc., 1988. Length: 18 minutes Library of Congress Number: RJ416.L4 L56 1988; C:5 Category: Coping   Starring Susan Linn and her puppets, this film talks about going back to school after cancer, treatments, how kids “get” cancer, fears about dying and worries about their friends and their looks. Uplifting, silly and fun, yet full of good information for young children, this film is an excellent starting point for discussions at home or at school.

4-10 years

My Hair's Falling Out ... Am I Still Pretty? By New Generation Pictures New Generation Pictures, 1992. Length: 22 minutes Library of Congress Number: RC281.C4M9 1992 Category: Coping   This is a video for children in which a doctor tells her story of cancer as a young child. It gives an explanation of the testing, coping and life in the hospital.

4-10 years

Why, Charlie Brown, Why? New York, NY: Charles M. Schultz and Paramount Pictures, 1990. Length: 30 minutes Library of Congress Number: RJ416.L4S48 1990; C:10 Category: Specific Chronic Health Condition   In "Why, Charlie Brown, Why?", the video companion to the book, the Peanuts gang encounters leukemia. Linus' friend Janice becomes ill and is diagnosed with leukemia. Linus has to deal with having a chronically ill friend while Janice is treated for leukemia. Janice loses her hair, faces teasing, misses school, and then grows her hair back. Janice gets to go back to school and can lead a normal life again, and the Peanuts gang learns about life and friendship.

5-11 years

We Can Cope: When a Parent Has Cancer (Child Tape) By Wendy Harpham Newton, MA: Inflexxion, 2000. Length: 20 minutes Library of Congress Number: RC262.W4c 2000 Category: Specific Chronic Health Condition   This video is a part of a 3 video series. One tape is for parents, another tape for teens and one for children. Children discuss their feelings and reactions about having a parent with cancer.

8-15 years

With a Little Help From My Friends: Living With Leukemia and Lymphoma Leukemia Society of America, 1999. Length: 21 minutes Library of Congress Number: RJ416.L4W822 C:3 Category: Coping   This video is about leukemia and lymphoma and its effects on everyday life. It features three adolescents (Monique, Samantha, and Jason) and their specific illnesses. Monique has acute leukemia and is in her third year of treatment. Samantha has Chronic Myelogenous Leukemia and is awaiting a bone marrow transplant. Jason has lymphoma and is going through intense chemotherapy. Their friends are supportive and have learned about leukemia. In this video, all three talk about their active lifestyles and how they have kept active in spite of their leukemia.

Teens

Cancer By Schlessinger Teen Health Video Series 1994. Length: 30 minutes Library of Congress Number: RC264.C36 1994; C:2 Category: Specific Chronic Health Condition   This video focuses on the cancer experiences of several teens -- when they were diagnosed, the treatments they received, and the physical and mental effects. They talk about the importance of support from family, friends, and hospital staff in their recovery process as well as the desire to be treated "like everybody else."

Teens

Chemotherapy Cerenex Length: 11 minutes Library of Congress Number: RC271.C5 C4 Category: Specific Chronic Health Condition   This is a general introduction to what chemotherapy can do for cancer patients. Ways chemotherapy drugs are administered are discussed as well as the side effects that chemotherapy can produce. This video would be useful when making decisions about treatment.

Teens

Please Stand By The American Cancer Society Length: 15 minutes Library of Congress Number: RC281.C4P64 Category: Coping   This video discusses the different kinds of cancers teenagers often get, the concerns teens have about "catching" cancer, options for treatment, the fears of pain, hair loss, weight gain or loss, acne, and worries over peers. The film provides the information through mock television shows that are very funny and light-hearted.

Teens

Long, Long Race, The By Johns Hopkins Oncology Center 1989. Length: 14 minutes Category: Coping   The video contains interviews, with patients from their mid-teens to young adult ages, discussing their reactions when they were diagnosed with cancer, how they have coped with it and their own inspirations and sources of strength. Lots of stories about family relations and peer interactions, as well as other challenges of living with and surviving cancer are included. Advice and shared stories make this video both practical and uplifting.

Teens

We Can Cope: When a Parent Has Cancer (Teen Tape) By Wendy Harpham Newton, MA: Inflexxion, 2000. Length: 30 minutes Library of Congress Number: RC262.W4t 2000 Category: Specific Chronic Health Condition   This video is a part of a 3 video series. One tape is for parents, another tape for teens and one for children. In this video a group of teens discuss how they coped with learning that a parent was diagnosed with cancer and share the difficulties, challenges and growth their parent's cancer presented.

Teens

What is it I Have, Don't Want, Didn't Ask for, Can't Give Back, and How I Feel About It By Leukemia Society of America Leukemia Society of America, 1985. Length: 23 minutes Category: Coping   This partially animated video features adolescents with leukemia. They discuss their feelings and topics specific to leukemia such as hair loss, side effects of treatments, fears, restrictions, food, school, and their dreams and goals. Although this video was made 18 years ago, its message is still relevant to teens coping with cancer.

All Ages

Blood Counts Information for Kids with Cancer http://www.nursing.uiowa.edu/sites/pedspain/bcounts/ Author: Mary Peterson, Jo Eland at the College of Nursing, University of Iowa This website gives kids an idea of what blood counts are and how important they are to successful treatment. The site was created by nurses and Ph.D.’s and distills medical jargon into understandable language for kids. The site includes great illustrations and a wide “cast of characters” representing aspects of blood counts.

All Ages

Cancer Source Kids http://cancersourcekids.com Author: Association of Pediatric Oncology Nurses Cancer Source Kids provides information about cancer to kids, teens and parents. The website is divided into sections for different age groups and includes activities, games and art to help children learn about cancer and cancer treatment.

All Ages

CancerKids http://www.cancerkids.com Author: Dr. Yuri Quintana & Associates This website was developed by a health informatics engineer and two librarians to help kids learn about cancer. The page is enticingly designed, with pictures, games and quizzes, links to books and videos and a glossary. Also contains a “Parents’ Page.”

All Ages

Captain Chemo and the Chemo Command http://www.royalmarsden.org.uk/captchemo/index.asp Author: The Royal Marsden, inspired by Ben de Garis Based on the comic strip created by Ben de Garis, a boy with cancer, the Royal Marsden created an interactive website based on the adventures of Captain Chemo and the Chemo Command as they fight the evil cancer cells. Games, quizzes and the Quiz Master Honour Roll all provide fun ways for kids and teens to learn about cancer and cancer treatment.

All Ages

Children's Cancer Web - Educational Material for Children http://spade39.ncl.ac.uk/ccw/guide2k.htm Author: Simon Cotterill and the Children’s Cancer Web Children’s Cancer Web provides information on many types of childhood cancer. The site provides links to descriptions of each kind of cancer, organizations, resources for parents and professionals and homepages for children and teens. In addition, the CCW offers links to many other support links and information links for parents, patients and professionals. Links to research sites, home pages, treatment centers and professional journals make this a very helpful website. Also available in file materials

All Ages

For Kids Only - Memorial Sloan-Kettering Cancer Center http://www.mskcc.org/mskcc/html/2952.cfm Author: Memorials Sloan-Kettering Cancer Center This kids website has a Question and Answer list for children of all ages, a list of other links on the Internet and a pdf format book called "Adam Goes to the Operating Room." The book uses photographs and simple sentences to explain what happens in an operating room. The book is available for order in both harcover and softcover. The website includes a section on resources for teachers, nad a section "For Teens Only."

All Ages

Me and My Marrow http://www.meandmymarrow.com Author: Fujisawa Healthcare, Inc. This is the online version of the print book, and it can also be downloaded into PDF format. The book provides information about transplants, including things kids can do to prepare, what the procedure entails, possible complications and how to avoid them, and changes the body undergoes. The final section discusses life after leaving the hospital, including family, school, food, future medical treatments and more.

Teens

2bME http://2bme.org/2bMe.html Author: Look Good...Feel Better Organization This website was put together by nutritionists, cosmetologists, social workers and oncologists to offer insight and advice to kids living with cancer. The website has sections about eating healthy, appearance and worrying about self-esteem. Sections include things to do with cosmetics to feel better, ways to deal with hair thinning or loss and advice on how to handle friends and peers who may not understand cancer and treatment. The website is cool, interactive (great demonstrations for makeup and hair), and informative. 2bMe has links, FAQs and a question and answer page for teens who want more information about cancer and living with cancer.

Teens

For Teens Only - Memorial Sloan-Kettering Cancer Center http://www.mskcc.org/mskcc/html/3335.cfm Author: Memorial Sloan Kettering Cancer Center This website for teens offers a Question and Answer Section and a souding board for teens to post their poems, drawings, and ideas. The website also includes links to other Internet sites for teens and an advice section.

Teens

Planet Cancer http://www.planetcancer.org Author: Robin Blue, Paul Cox and Heidi Schultz Adams - former young adult cancer patients. This website was developed for 15-15 year olds with cancer and offers them resources, information, an online, community, and forums where they can discuss cancer and coping. The site contains jokes and comics, news articles and scientific updates, lists of camps and support groups, and links to additional resources.

Teens

Teens Living with Cancer http://www.teenslivingwithcancer.org/home.asp Author: Melissa's Living Legacy Foundation This upbeat, informative website offers resources for patients, families, friends and others who know and love a teen with cancer. Information for the patients - including insights about body issues, sexuality, self-image, etc. is complemented by information for the parents and friends who also have to deal with cancer. The website contains articles and advice, resources, website links and chat rooms for all of those who have cancer in their lives: their own or someone else's. Great illustrations complement the dictionaries, fact sheets and articles.

All Ages

Songs of Love Songs of Love Foundation, P.O.Box 750809 Forest Hills, NY 11375 Toll-Free: 800.960.SONG (7664) Fax: 718.441.7372 E-mail: Info@SongsOfLove.org Website: http://www.songsoflove.org Songs of Love is a non-profit organization that creates one-of-a-kind songs for children with chronic or terminal conditions or illnesses. Songs of Love collaborates with over 350 talented artists nationwide and 300 hospitals, private health-care institutions, and with various individual families, to produce intimate musical portraits(which are never duplicated) for thousands of children and teens.

2-18 years

Camp Smile-a-Mile 1510 5th Ave., South Birmingham, AL 35255 Phone: 205.323.8427 Toll-Free: 888.500.7920 Fax: 205.323.6220 E-mail: jennifer.queen@campsam.org, info@campsam.org Website: http://www.campsam.org Since its beginning, Camp SAM’s programs have grown to include the following activities below: Family Camp Weekends- two weekends for on therapy patients, up to age 18 and their families Two week-long camp sessions- one week for patients, ages 6-12 and one week for patients, ages 13-16 Sibling Camp Weekend- for brothers and sisters only, ages 6-18 Jr/Sr Weekend- this weekend program is for upcoming high school junior and seniors (typically ages 17 & 18) who are on or off therapy Off Therapy Family Camp Weekend- for patients, up to age 18 who are off therapy and their families Remember Their Smiles Day- a day of remembrance for families previously involved with Camp SAM that have now lost a child to cancer. The next remembrance day will be in 2014 Young Adult Retreat-is for childhood cancer survivors that are now ages 19-30’s Monthly activities and trips for ages 6-18 Teen Trips- white water rafting, snow skiing, beach trip, a cruise, North Carolina Ranch and to cities such as New York, Chicago and Aspen, Colorado

6-18 years

Indian Summer Camp 125 Beechmont Dr. Nicholasville, KY 40356 Phone: 502/794-7103 E-mail: amy@kcp.uky.edu Website: http://www.iscamp.org July 11-17, 2010 Indian Summer Camp is a camp for children ages 6 -18 years who have or have had cancer. The camp will be held at Camp Cedarmore in Shelby County, Kentucky. Activities at the camp include: swimming, crafts, archery, fishing, sports, hiking, scuba diving, dances, and campfires. The University of Kentucky Pediatric Oncology Department provides the needed care you child will receive during the week.

7-15 years

Hole In The Wall Gang Camp, The 565 Ashford Center Road Ashford, CT 06278 Phone: 860.429.3444 Fax: 860.429.7295 E-mail: ashford@holeinthewallgang.org Website: http://www.holeinthewallgang.org The Hole in the Wall Gang Camp, founded by Paul Newman, is a non-profit summer residential camp in Ashford, Connecticut that provides a myriad of activities and support for children with cancer or other blood diseases. Two doctors, five nurses, and a fully equipped infirmary are available 24 hours a day. The counselor/staff ratio to camper is 2 to 1, or sometime 1 to 1. Each camper enjoys a full range of activities that include fishing, swimming, camping, performing arts, arts and crafts, creative writing, boating, horseback riding, computer education, all forms of athletic activities plus plenty of singing and dancing. Camper applications can be printed from this web site. You can also request applications from the Camp office in Ashford, Connecticut by calling 860.429.3444, by sending your request to The Hole in the Wall Gang Camp, 565 Ashford Center Road, Ashford, CT 06278 or by e-mailing ashford@holeinthewallgang.org. Camper Selection Criteria The following criteria have been established for attendance at sessions 1 - 8. To come to Camp your child must: 1. Have a diagnosis of cancer, HIV/AIDS or serious blood disease. In certain cases we can accept children with unique medical needs. Please contact us with questions. 2. Be age 7 to 15 3. Live in New England, New York and New Jersey. (We include children or groups from other areas when possible.) 4. Be medically unable to attend any other camp. * Camper recruitment for these sessions is done separately. Brothers and sisters of children accepted who live in CT, MA or RI will receive an application to apply for our Brother & Sister session. Children applying for this session must be between the ages of 7 and 15 and must not have a diagnosis that would make him/her eligible for our other sessions. Brothers and Sisters attend this session separately from their ill sibling. Brother and Sister applications will be sent out in June. Children living outside of these areas may request an application by contacting the Camp office. If your child is applying for Camp as part of a group, please return your application to your group coordinator. He/She will be responsible to forward your application to the Camp. We would like to be able to accept every child that applies to Camp, but it is impossible to do so. All applications are subject to a medical review. Decisions are made based on the child's inability to attend a typical camp, the severity of the child's medical problems, whether the child has been to Camp before, and other factors (gender, age, etc.). Camp also reserves the right to make selections/decisions based on other factors as deemed appropriate. Please limit your attendance to one of our Association camps. 2010 Summer Sessions Session 1 General June 9 - June 15 Session 2 General June 18 - June 24 Session 3 Sickle Cell June 27 - July 3 Session 4 Immunology July 7 - July 13 Session 5 General July 16 - July 22 Session 6 Sickle Cell July 25 - July 31 Session 7 General August 4 - August 10 Session 8 General August 13 - August 19 Session 9 Brother/Sister August 22 - August 28 PLEASE NOTE: Camp has added a new General Diagnosis Session 8 - August 13th through August 19th! All Diagnosis Groups are eligible to apply to this session.

7-18 years

Camp Sunshine 1850 Clairmont Rd. Atlanta, GA 30033 Phone: 404.325.7979 ext. 11 Toll-Free: 866.786.2267 Fax: 404.325.7929 E-mail: sally@mycampsunshine.com, tenise@mycampsunshine.com Website: http://www.mycampsunshine.com Camp Sunshine is a residential camp and year-round program for children and adolescents with cancer. Camp Sunshine is located at Camp Twin Lakes near Rutledge, Georgia, an hour outside of Atlanta, and is designed for children with special needs. Physicians and nurses who specialize in oncology are available 24 hours a day. The camp provides traditional summer camp activities like polar bear swims, fly flishing, arts and crafts, horseback riding, calligraphy, needlework, dancing, media presentations, and more. In addition to summer programs, Camp Sunshine offers activities and events throughout the year. In addition to summer camp, programs are offered throughout the year, including: Family Camp Weekend: It is held each spring and fall for the families of children of all ages being treated for cancer. A winter snow ski program through the National Handicapped Sports Association, available for children with a physical handicap resulting from their cancer, such as amputation or loss of vision. See website for dates. Sibling Camp Weekend (siblings ages 7-16 years):

La Fondation canadienne des tumeurs cérébrales http://www.braintumour.ca/btfcmain.nsf/fsfmain?OpenFrameSet Author: La Fondation canadienne des tumeurs cérébrales Available in both English and French, this website contains information for the Brain Tumour Foundation of Canada, including access to their handbooks and information, support opportunities, web-chats (including scheduled chats moderated by physicians), and message boards for patients and families to share experiences.

Guia de Recursos para Padres de Ninos con Tumores Cerebrales o de Medula Espinal By Children's Brain Tumor Foundation New York, NY: Children's Brain Tumor Foundation, 1999. Library of Congress Number: RC280.B7 G8 1999; C:2 Category: Specific Chronic Health Condition   This guide contains basic information on brain and spinal tumors in children, what to expect at the hospital and at home, educational rights and issues, and community support and resources. The guide also includes appendices with a glossary, charts, and records to fill out during the course of the illness.

Port for Me, A By Wendy Landier, Tamara Scott Salt Lake City, UT: Bard Access Systems Library of Congress Number: RC683.5P45 1999 Category: Specific Chronic Health Condition   This book is designed to assist your child in understanding the need for a venous port. It is dedicated to all of our little patients who bravely battle chronic illnesses. Parents are encouraged to read this book together with their child.

Un "puerto" para mi By Wendy Landier, Tamara Scott Salt Lake City, UT: Bard Access Systems Sub-Category: Specific Chronic Health Condition   Un puerto para mi Dedicado a todos nuestros pequenos pacientes quienes valientemente batallan contra enfermedades cronicas.

Un Dia Con El Dr. Waddle: Una introduccion al cancer escrita para los ninos Manhattan, Kansas: Center for Basic cancer Research, 2000. Pages: 40 Library of Congress Number: RC264.D39 1988; C:2 Category: Specific Chronic Health Condition   Una intorduccion al cancer escrita para los ninos.

NCI/PDQ® Pacientes: Tumores Cerebrales Infantiles http://www.oncolink.com/resources/pdq_article.cfm?source=Cancer_Types&ss=344&id=9347 Author: Oncolink from the University of Pennsylvania This website provides information on childhood brain tumors, updated by the National Cancer Institute. The website describes different types of brain tumors and explains the usual treatment for children with each particular type of tumor. The website also contains information on finding additional resources and is available in Spanish and in English.

Sociedad Americana del Cáncer http://www.cancer.org/docroot/ESP/ESP_0.asp Author: American Cancer Society Available in both English and Spanish, the information on this website is comprehensive and helpful, including support groups for cancer patients and survivors, research, and information about different cancers, drugs and treatment options, clinical trials, and coping. The site has links to publications, statistics, information on early detection, medical updates, fundraising activities, advocacy, and lobbying.

All information on this website is for educational purposes only. Specific medical advice, diagnoses, and treatments can only be given by your personal health care professionals