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Autism SpectrumView Related Health Tip

Autism Spectrum – A Parent Perspective

Autism is a neurological brain disorder that is recognizable by a combination of behaviors. Most children are initially identified by delayed speech development. Many children with autism will have a period of normal development until 18 to 30 months, then exhibit delays or regression in language, play, or social interaction. Mounting evidence points to a genetic cause, though there may also be environmental triggers involved for those children with a genetic predisposition for autism. Since all children are able to communicate best with those whom they love, many parents and grandparents are understandably shocked to hear this diagnosis. Others who may have pleaded with doctors and specialists to do more than reassure them of the unusual development of their child are actually relieved to have their fears and concerns validated by a diagnosis. As important as it is to understand what autism IS, it is also important to know what autism is NOT.

• Autism is not a mental illness
• Autism is not the result of poor parenting
• Children with autism are not unruly or spoiled kids who just have a behavior problem
• The vast majority of persons with autism are not savants, like the character portrayed by Dustin Hoffman in the movie Rain Man
• Children with autism are not without feelings and emotions.
• No known psychological factors in the development of the child have been shown to cause autism.

After a diagnosis of autism, most families experience a period of grieving to mourn the loss of the "normal" child they have enjoyed. Once a family is able to accept the diagnosis and proceed with treatment, they will find that there is a very wide variety of information and resources available to help children with autism. The amount of information a family with a new diagnosis must begin to process in order to find their way into the right mix of therapies and interventions for their child can be quite overwhelming. A successful program for a young child with autism will likely be multi-faceted and may include some mix of speech and occupational therapy, applied behavior analysis, and educational interventions. Since there is such a wide range of abilities and needs within the spectrum of autism, there is an equally wide range of appropriate interventions available. Families should educate themselves and align themselves with a medical professional experienced in advocating for children with autism. Just as importantly, families should seek out the support and guidance offered by advocacy organizations such as the Autism Society of Middle Tennessee, and others listed on this Junior League Family Resource Center website. It is very likely that there are support groups available in your own community. Avail yourself of these. No one understands the joys and challenges of raising a child with autism better than another parent. Above all, love your child!! Your child with autism is still the same wonderful and unique person that he was before the diagnosis of autism came along. Learn to enjoy and appreciate the things that make him happy.

While autism is a lifetime condition, with special training, supervision, and support, many adults with autism live and work in the community. Emphasis in education needs to be on helping the child learn ways to communicate and on structuring the environment so that it is consistent with the child's learning style. Speech/language therapy, sensory integration/occupational therapy, and behavior management are important components in an early intervention program. A generation ago, 90% of people with autism in our communities were eventually placed in institutions. Today, even people with autism who exhibit the most severe learning or behavior problems may succeed with instruction and support in normal community settings.

By:
Robin Pearson, M.D., mother to John, age 4 with autism
John Shouse, father to Evan, age 7 with autism

What is Autism?

Autism is a developmental disorder that is present from birth. It occurs in as many as one in five hundred children and is about 3 times more common in boys than girls. There are no medical tests for autism; the diagnosis is based on the presence of a pattern of behavioral symptoms. Children with autism demonstrate difficulty in the areas of social interactions, language and communication skills and behavioral flexibility. Autism is a spectrum disorder, which means that there can be differences in the way it is expressed from child to child, in terms of clinical features as well as severity of symptoms. The specific cause of autism is not yet known, though there is consensus that its origin is neurobiological, rather than emotional. Early identification and intervention for autism have come to be recognized as key components for optimizing outcomes for these children.

By Wendy Stone, Ph.D.
Division of Child Development
Vanderbilt University

Please Note

Links to other relevant topics:
    Celiac Sprue

Team Reviewers and Monitors

Robin Pearson, MD
Community Pediatrician
Goodlettsville, Tennessee

John Shouse
Family Representative
Nashville, Tennessee

Wendy Stone, PhD
Center for Child Development and Research
Vanderbilt University Medical Center

What's New

July 2008: The Vanderbilt Autism Clinic has an Autism Info Line: 615-322-7565

Related Vanderbilt Links

TRIAD: The Treatment and Research Institute for Autism Spectrum Disorders
The Treatment and Research Institute for Autism Spectrum Disorders is dedicated to improving assessment and treatment services for children with autism spectrum disorders and their families while advancing knowledge and training.

Tennessee Family Pathfinder
This site is an internet community for families seeking disability resources.

Parent Support and Education Program - Autism
A new clinic that meets in Doctors Office Tower at Vanderbilt Children's Hospital

TRIAD Social Skills Summer Camp
The TRIAD Social Skills Summer Camp is an intensive social skills program for children and adolescents with autism spectrum disorders who are between the ages of 6 and 21 and who have language and reading skills. Dates: June 11-29, 2007 For more information, call the Vanderbilt Kennedy Center Camp and Art Coordinator at (615) 322-8147 follow the link to their website.


Resources for: Autism Spectrum

Adults
    General Information
    Interventions
    Perspectives of the Family and Autobiographical Material

Children and Teens
    Children and Teens

Other Language Resources
    Spanish - Adults


Resources for: General Information
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Books

1001 Great Ideas for Teaching and Raising Children with Autism Spectrum Disorders
By Ellen Notbohm, Veronica Zysk
Arlington, TX: Future Horizons, 2004.
Library of Congress Number: RJ506.A9N67 2004; C:2
Category: Specific Chronic Health Condition  

1001 Great Ideas is just that, a treasure trove of wonderful ideas and activities! This hope-filled book not only connects the reader to the world of Autism Spectrum Disorders but also provides a multitude of practical solutions to the broad range of challenges that parents and professional face each and every day.

ABA Program Companion, The
By J. Tyler Fovel
New York, NY: DRL Books, Inc., 2002.
Library of Congress Number: LC4717.F68 2002
Category: Specific Chronic Health Condition  

The ABA Program Companion is written to help the reader integrate important theory and concepts from Applied Behavior Analysis (ABA) into powerful, practical, and comprehensive educational programming, from assessment through program methodology and evaluation.

Asperger Syndrome & Your Child: A Parent's Guide
By Michael D. Powers, Psy.D., Janet Poland
New York, NY: HarperCollins, 2002.
Pages: 302
Library of Congress Number: RJ506.A9P69 2002
Category: Specific Chronic Health Condition  

Powers, a nationally recognized expert on AS, has compiled a comprehensive guide for parents, family members and friends of people with Asperger's Syndrome. The book includes case studies and quotes from children with AS.

An easy-to-read account offering advice on early signs of the disorder, diagnosis, and developing social skills in children.


Asperger Syndrome - What Teachers Need to Know
By Matt Winter
Philadelphia, PA: Jessica Kingsley, 2003.
Library of Congress Number: RC553.A88 W56 2003
Category: Specific Chronic Health Condition  

This publication is the ideal starting point for teachers wishing to learn about Asperger Syndrome and how best to work with, help and get the most from a child with AS. The author, a teacher himself, also imparts tips and practical ideas that he has found successful in a school environment.

Asperger Syndrome and Adolescence Practical Solutions for School Success
By Brenda Myles, Diane Adreon
Shawnee Mission, Kansas: Autism Asperger Publishing Co., 2001.
Pages: 227
Library of Congress Number: RC553.A88M94 2001; C:2
Category: Educational and Community Issues  

In this book the authors have presented an excellent overview of the challenges that many learners with AS face as they enter their teens. Most important, they offer an array of practical, proved interventions to help address these challenges.

Asperger Syndrome and Difficult Moments
By Brenda Smith Myles, Jack Southwick
Shawnee Mission, KS: Autism, Asperger Publishing Co., 1999.
Library of Congress Number: RC553.A88M973 2005; C:2
Category: Specific Chronic Health Condition  

This publication should help anyone living or working with an individual on the spectrum who engages in challenging behavior. It is concise, thoughtful, well-researched and practical.

Asperger Syndrome and Young Children
By Theresa Bolick
Glouster, MA: Fair Winds Press, 2004.
Pages: 235
Library of Congress Number: RJ506.A9B645 2004
Category: Specific Chronic Health Condition  

This book is designed for parents and caregivers of children aged three to seven years old with Asperger syndrome. Subjects such as helping a child out the front door without tears, and how to support play dates, friendships and manners are topics covered in this book.

Asperger Syndrome, the Universe and Everything
By Ken P. Kerr, Gill Rowley
London and Philadelphia: Jessica Kingsley Publishers, 2001.
Library of Congress Number: RC553.A88 H35 2001
Category: Specific Chronic Health Condition  

Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.

Asperger Syndrome: A Practical Guide for Teachers
By Val Cumine, Julia Leach, Gill Stevenson
London, IK: David Fulton Publishers, 1998.
Library of Congress Number: LC4719.G7 C85 1998
Category: Educational and Community Issues  
Sub-Category: Educational and Community Issues  

This book provides teachers with examples of the characteristics of Asperger's Syndrome, diagnosis, updated theories on education and socialization, and practical applications of the new research. The book includes several useful appendices and charts to help teachers reach children with Asperger's syndrome more effectively.

AUTISM
By Heather Miller *Miller-Kuhaneck
Bethesda, MD: he American Occupational Therapy Association, 2004.
Library of Congress Number: RJ506.A9 A888 2004
Category: Specific Chronic Health Condition  

This second edition is a comprehensive resource with updated information on basic research related to several levels of understanding of the complexities of autism. Of special note are several revised and updated chapters providing a timely update and is a necessary volume for any occupational therapist working with children with autism.




Autism & ADHD Diet, The
By Barrie Silberberg
Naperville, IL: SOURCEBOOKS, INC., 2009.
Library of Congress Number: RJ506.A9S545 2009
Category: Nutrition/Weight Management  

This publication is a complete guide to the Gluten-Free, Casein-Free Diet which according to the author showed extraordinary results in helping children eliminate many traits associated with autism spectrum disorders, ADHD, celiac disease, and other conditions.

Autism and Asperger Syndrome
By Uta Frith
New York, NY: Cambridge University Press, 1991.
Library of Congress Number: RC553.A88 A83 1991
Category: Specific Chronic Health Condition  

The book gives the reader a detailed look into Asperger syndrome from the translation of Asperger's paper to the syndrome in adults. A chapter looks at autism and Asperger syndrome noting the similarities and the differences between the two. The editor has brought together a variety of fascinating phemenological and narrative accounts, of the syndrome and its varied presentations, accounts which are by no means entirely negative, for they show how much adaption and learning and personal development is possible if there is a sensitive understanding of the precise problems involved. This book would be a good textbook for someone wanting to take a deeper look into Asperger syndrome.

Autism Sourcebook, The
By Karen Siff Exkorn
New York, New York: Harper Collins/Regan, 2005.
Library of Congress Number: RJ506.A9E97 2005
Category: Specific Chronic Health Condition  

An excellent book. Loaded with practical information, it answers the many, many questions that parents may have.

Comprehensive, balanced, and comassionate - a tremendous resource for parents of children with autism.


Autism Spectrum Disorders
By Chantal Sicile-Kira
New York, NY: Books Beyond Words, 2004.
Library of Congress Number: RC553.A88S566 2004
Category: Specific Chronic Health Condition  

A clearly written, well-organized, carefully documented compilation of important information and useful advice. It will provide invaluable help and guidance to parents and professionals alike, especially those who are new to the world of autism. This book is not merely highly recommended-it is indispensable.

Autism Spectrum Disorders from A to Z
By Barbara T. Doyle, Emily Doyle Iland
Arlington, TX: Future Horizons, 2004.
Library of Congress Number: RC553.A88D69 2004
Category: Specific Chronic Health Condition  

Well-organized, comprehensive and very pertinent to families of children with autism and the professionals who work with them.

Autistic Children
By Lorna Wing
New York, NY: Brunner/Mazel, 1985.
Category: Specific Chronic Health Condition  

Building Bridges Through Sensory Integration
By Ellen Yack, Paula Aquilla, Shirley Sutton
Las Vegas, NV: Sensory Resources, 1998.
Library of Congress Number: QP454.Y33 2002, Copy 2
Category: Specific Chronic Health Condition  

This is an excellent resource book that clearly explains sensory systems and sensory integration and how to identify problems in this area for individuals with autism. There are checklists to help identify concerns, and the book is full of practical suggestions for activities for specific difficulties, strategies for challenging behaviours, and adaptations in a variety of settings.

Children With Autism: A Parents' Guide
By Michael D. Powers
Bethesda, MD: Woodbine House, 2000.
Pages: 426
Library of Congress Number: RJ506.A9C45 2000 C:3
Category: Specific Chronic Health Condition  

This is a new edition of the classic resource for parents of autistic children. Whether dealing with a new diagnosis or as a guide for the experienced parent this book supports parents in their efforts to provide the brightest possible life for their child. The book is written by leading researchers, clinicians, educators, advocates and attorneys and parents and deals with the medical, social and family impact of autism.

Diagnosis Autism
By Lawrence P. Kaplan
Draper, UT: Etham Press, 2005.
Library of Congress Number: RJ506.A9K35 2005
Category: Specific Chronic Health Condition  

This publication is extremely helpful, concise and very practical not only for parents of children with autism, but for all health care practitioners, educators, and the treatment intervention team. The 10-step process can be applied to many disorders.

Early Start for Young Children with Autism/PDD
By Kathleen McConnell, Gail Ryser
Austin, TX: Pro-Ed, 2006.
Library of Congress Number: LC4717.M327 2006
Category: Specific Chronic Health Condition  

This book was written to provide teachers, parents, interventionists, therapists, and caregivers with intervention strategies for children aged 2 through 5 with autism or another pervasive development disorder. Intervention programs should begin as soon as the child is suspected of having an autism spectrum disorder. This publication recommends and lists services as necessary for successful intervention.

Freaks, Geeks & Asperger Syndrome
By Luke Jackson
London, NJ: Jessica Kingsley Publishers, 1988.
Library of Congress Number: RJ506.A9J326 2002
Category: Specific Chronic Health Condition  

This is a book for adolescents with Asperger Syndrome, written by a thirteen year-old who has a diagnosis of Asperger Syndrome. This book will enhance our understanding, change attitudes and replace break despair with insight and laughter.

Golden Bridge - A Guide to Assistance Dogs, The
By Patty Dobbs Gross
West Lafayette, Indiana: Purdue University Press, 2006.
Library of Congress Number: HV1780.G76 2006
Category: Specific Chronic Health Condition  

This is a heartening, practical, and sensitive guide to what an assistance dog can and can't do for the child with autism or other special needs.

Healing the New Childhood Epidemics
By Kenneth Bock, Cameron Stauth
New York: Random House Publishing, 2007.
Library of Congress Number: RJ506.A9B63 2008
Category: Specific Chronic Health Condition  

Parents who have children diagnosed with autism, ADHD, allergies or asthma and who wish to help their child with the best nutritional and environmental information available will find this book a valuable resource.

Los Trastornos Del Espectro De Autismo De la A a la Z
By Barbara T. Doyle, Emily Doyle Hand
Saugus, CA: Distribuido por Emily Hand, Inc., 2005.
Library of Congress Number: RJ506.A9D69 2005
Category: Educational and Community Issues  

An informative book on autism with the stamp of approval of the Society of Autism. This book is in Spanish. There is also an English book of the same title available in the FRC library.

Making a Difference: Behavioral Intervention for Autism
By Catherine Maurice, Gina Green
Austin, TX: Pro-ed, 2001.
Pages: 221
Library of Congress Number: RJ506.A9M35 2001
Category: Specific Chronic Health Condition  

This book has chapters by several different authors whose guiding principal is that the suggestions for treatments and suggestions offered must be backed by credible research and data. While highly technical, this book also offers down-to-earth anecdotes and dialogue that help illustrate the the professional verbage.

Making Sense of Art
By Sandra R. Davalos
Shawnee Mission, KS: Autism Asperger Publishing Co., 1999.
Library of Congress Number: LC3970.D38 1999
Category: Coping  

Art activities and experiences offer an important way for children to gain a sense of control and mastery of their environment and to grow in self-expression, self-awareness and self-esteem. This book focuses on helping children with autism and Asperger's create art. This book is organized by grouping the activities under each of the five senses, and has helpful tips related to children on the spectrum.


Making Sense of Sensory Integration
By Bob Wiz, Aubrey Lande, Lois Hickman
Boulder, CO: Belle Curve Records, Inc., 1998.
Length: 75 minutes
Library of Congress Number: RJ53.O25 K66
Category: Specific Chronic Health Condition  

This a booklet with a companion audio cassette that addresses the concerns parents might have regarding their child with sensory integration disfunction.

The booklet has many helpful checklists and charts to help parents keep track of the nuances of their child's condition. The checklists would also be of interest for discussion with the family's healthcare professionals. Includes a glossary, list of organizations, and references.


Meaningful Exchanges for People with Autism
By Joanne Cafiero
`Bethesda, MD: Woodbine House, 2005.
Library of Congress Number: RC553.A88C34 2005
Category: Specific Chronic Health Condition  

The author provides a practical guide to understanding and using Augmentative & Alternative Communication systems for people with ASDS for both parents and professionals. The book gives easy-to-use suggestions and examples to set up opportunities for people with ASDS to learn, share, and participate in school, family, and community life.

Nobody Nowhere: The Extraordinary Autobiography of an Autistic
By Donna Williams
New York, NY: Avon Books, 1992.
Library of Congress Number: RC533.A88 W55 1992; C:2
Category: Specific Chronic Health Condition  

This book is an autobiographical account of a lady living with autism. Written in a journal style, which begins and ends in an abrupt fashion. The book gives the reader a moment inside the mind and life of a person who relates differently to the outside world. The author shares the mental turmoil that she faced due to her disease and the situations she found herself in.

OASIS Guide to Asperger Syndrome: Advice, Support, Insight and Inspiration, The
By Patricia Romanowski Bashe, Barbara L. Kirby
New York, NY: Crown, 2001.
Pages: 468
Library of Congress Number: RC553.A88.B37 5 2001
Category: Specific Chronic Health Condition  

In the forward by Tony Attwood, Ph.D., he says, "If you have a child with Asperger Syndrome, this book is for you." Romanowski Bashe and Kirby, both parents of Asperger children, describe the joys and frustrations of raising children with AS.

This practical and sympathetic book explains what AS is, how parents can work through accepting the diagnosis, treatments for AS, and transitioning into adulthood.


Out-of-Sync Child Has Fun, The
By Carol Stock Kranowitz
New York, NY: Penguin Group, 2003.
Category: Specific Chronic Health Condition  

This is a revised edition of this publication. It includes new activities, along with updated information on which activities are most appropriate for children with coexisting conditions including Asperger's, autism, and more

Overcoming Autism
By Lynn K. Koegel
New York, NY: Penguin Books, 2004.
Library of Congress Number: RJ506.A9K636 2004
Sub-Category: Specific Chronic Health Condition  

This is a truly remarkable book, representing the inspired collaboration of a parent and a researcher and shows what can be accomplished through early intervention. It provides helpful, practical interventions, and its organization around symptoms will be particularly helpful for parents.

Parent Survival Manual: A Guide to Crisis Resolution in Autism and Related Developmental Disorders
By Eric Schopler
New York, NY: Plenum Press, 1995.
Pages: 223
Library of Congress Number: RJ506.A9S394 1995
Category: Specific Chronic Health Condition  

This book starts with the chapter "Convergence of Parent and Professional Perspectives" which gives many anecdotal solutions parents have implemented to cope with behavioral issues along with a professional viewpoint explaining why the solution was successful. This format is continued throughout the book and creates a very practical resource to help parents find solutions to behavioral problems. Repetitive behavior, communicative, aggression, toileting and hygiene, eating and sleeping and behavior management are all discussed.

Parenting Your Asperger Child
By Alan Sohn, Cathy Grayson
New York, NY: Penguin Books, 2005.
Library of Congress Number: RJ506.A9S645 2005

This book offers practical solutions that enable parents to prepare their children for a fulfilling life of social interaction and success outside the confines of Asperger's syndrome.

Pervasive Developmental Disorders - Diagnosis, Options and Answers
By Mitzi Waltz
Arlington, TX: Future Horizons, 1999.
Library of Congress Number: RJ506.D47W34 1999eb
Category: Specific Chronic Health Condition  

Complete, easy-to-follow guide to all disabilities on the Autism Spectrum. The author's in-depth discussion will help parents and professionals develop a clear understanding of the issues.

Playing, Laughing and Learning with Children on the Autism Spectrum
By Julia Moor
London, UK: Jessica Kingsley Publishers, 2002.
Library of Congress Number: RJ506.A9M66 2002
Category: Specific Chronic Health Condition  

The book is well organized, simply written, and it avoids jargon and technical terminology. It is full of wonderful and practical ideas such as "structuring your day by creating a visual diary" or "picture prompts for playing with toys."

Preparing for Life
By Jed Baker
Arlington, TX: Future Horizons, Inc., 2005.
Library of Congress Number: LC4717.5.B35 2005
Category: Specific Chronic Health Condition  

This easy-to-follow resource provides a complete toolbox of social skills and the means to attain them so that students with Autism or Asperger's may approach their futures with excitement rather than anxiety. The author tackles a wide variety of issues faced by individuals across the spectrum, such as perspective-taking, nonverbal communication skills, conversational skills and stress management.

Reaching Out, Joining In: Teaching Social Skills to Young Children with Autism
By Mary Jane Weiss, Ph.D., BCBA, Sandra Harris, Ph.D
Bethesda, MD: Woodbine House, Inc, 2001.
Library of Congress Number: RJ506.A9 G53 2001
Category: Educational and Community Issues  

The authors of Reaching Out, Joining in combine sensitivity and pragmatism in this guide to helping children with autism develop social skills. Matter-of-fact and easy to read, this book provides lists of activities and programs to help children develop communication, play, and sequence skills necessary for school.

Reaching the Child with Autism through Art
By Toni Flowers
Arlington, TX: Future Horizons, 1992.
Library of Congress Number: LC4717.F56 1992
Category: Coping  

This book offers practical, fun activities to improve tactile/kinesthetic awareness, fine motor skills and concent development. It is as much about sensory development as it is about art. The exercises are easy to follow for teacher and student.

Realizing the College Dream with Autism or Asperger Syndrome
By Ann Palmer
Philadelphia, PA: Jessica Kingsley Publishers, 2006.
Library of Congress Number: RC553.A88.P356 2006
Category: Specific Chronic Health Condition  

There's plenty of practical information for parents of a child with atism or Asperger syndrome with college aims.

The author relates her story of helping her high-functioning autistic son through college. She thoroughly addresses questions of self-awareness, disclosure forms. Eric's capacities for self-help, orientation, time management and exploiting resources. This is a story that rings with love and support, and a drive to help Eric achieve his potential through meaningful, appropriate challenges.


Recipes for the Specific Carbohydrate Diet
By Raman Prasad
Beverly, MA: Quayside Publishing Press, 2008.
Library of Congress Number: RC862.I53 P73 2008; C:2
Category: Nutrition/Weight Management  

Recipes that are grain-free, lactose-free, and sugar-free. Nutritional help for IBD, celiac disease, autism, cystic fibrosis and other diets.

Right Address...Wrong Planet: Children with Asperger Syndrome Becoming Adults
By Gena P. Barnhill
Shawnee Mission, KS: Autism Asperger Publishing Company, 2002.
Pages: 226
Library of Congress Number: RC553.A88B37 2002
Category: Specific Chronic Health Condition  

In this publication, the author takes us along as her family negotiates the fine line between support vs. independence during her son's coming of age. It is a frank, at times moving account of one family's experience, and the reader will learn from their struggles and successes. This book is a long-awaited roadmap for parents of adolescents with Asperger Syndrome and the professionals who work with them.

S.O.S. Social Skills in Our Schools
By Michelle A. Dunn
Shawnee Mission, Kansas: Autism Asperger Publishing Co., 2006.
Library of Congress Number: LC4019.D86 2006
Category: Specific Chronic Health Condition  

This publication offers an easy-to-use, practical program for teaching social skills in children ith autism. It is a wonderful resource for parents and professionals.

Siblings of Children with Autism
By Sandra L. Harris
Bethesda, MD: Woodbine House, 1994.
Library of Congress Number: RJ506.A9 H27 1994
Category: Coping  

Personal stories begin each chapter of this book placing the reader in the environment and behaviors that will be discussed. Siblings understanding why their brother or sister with autism behaves the way he or she does is explained. One chapter deals with teaching the children not to be afraid of sharing their feelings and then as a family working through their feelings. Another chapter teaches parents how to get their children to play together.

Social Skills Solutions - A Hands-on Manual
New York, NY: DRL Books, Inc., 2002.
Library of Congress Number: RJ506.A9M35 2002
Category: Coping  
Sub-Category: Coping  

Social skills are the rules and expectations that allow us to connect and be who we are and share who we are. That is why it is so important that we teach these skills to children with autism.

Sometimes I Drive My mom Crazy, But I know She's Crazy About Me
By Lawrence Shapiro
King of Prussia, PA: The Center for Applied Psychology, Inc., 1993.
Library of Congress Number: RJ506.H9S53 1993
Category: Specific Chronic Health Condition  

Working together, kids, parents, teachers and other health care professionals can all can find solutions for kids with ADHD. Most importantly, this book should help children see that they are not " weird" or "bad", and that by learning to cope with their difficulties, they can enjoy success.

Son Rise The Miracle Continues
By Barry Neil Kaufman
Tiburon, California: H. J. Kramer, 1994.
Library of Congress Number: RJ506.A9K383 1944
Category: Specific Chronic Health Condition  

A three part book that follows Raun's development from a lifeless, non-communicative child on the autism spectrum into an active, loving, verbal little boy. Part Two tells of Raun's development after age four. Part Three delivers a moving account of five other families who became extraordinary when they are guided by the Kaufmans' Son-Rise Program to reach their own "unreachable" children.

Special Diets for Special Kids Two
By Lisa Lewis
Arlington, TX: Future Horizons, 2001.
Library of Congress Number: RJ506.A9L482 2001
Category: Nutrition/Weight Management  

New! More great tasting recipes & tips for implementing special diets to aid in the treatment of Autism and Related Developmental Disorders.

Super Skills
By Judith Coucouvanis
Shawnee Mission, KS: Autism Asperger Publishing Co., 2005.
Library of Congress Number: RJ506.A9C68 2005
Category: Coping  

Based on a thorough and comprehensive understanding of the unique characteristics of individuals with ASD, the author presents 30 lesson grouped under four types of skills necessary for social success: fundamental skills, social initiation skills, getting along with others, and social response skills.

Teaching Activities for Autistic Children
By Eric Schopler
Austin, TX: pro-ed, 1979.
Category: Educational and Community Issues  

Tailoring teaching activities for children with autism at home, in schools, and community environments can be a challenge for parents and caregivers. This book incorporates 296 sample activities that illustrate teaching activities in 10 function areas at various levels of preadolescent development.

Toilet Training for Individuals with Autism or other Developmental Issues
By Maria Wheeler, M.Ed.
Arlington, TX: Future Horizons, 2007.
Pages: 122
Library of Congress Number: RC553.A88 W42 2007; C:2
Category: Coping  

This is the second edition of this useful book that has helped many parents of children with autism face the challenge of toilet training. The author provides a detailed list of factors that can create problems, forms of habit training, and ways of overcoming many standard complications. The book includes case studies from other parents who have toilet trained their children with autism.

Understanding Applied Behavior Analysis
By Albert J. Kearney
London, UK: Jessica Kingsley, 2008.
Library of Congress Number: BF637.B4K44 2008
Category: Specific Chronic Health Condition  

This introductory guide to Applied Behavior Analysis (ABA) demystifies the basic terminology, and explains the underlying principles and commonly used procedures and programs to help those on the autism spectrum. Clear and reader-friendly, this book is an essential quick reference to ABA and its applications.

Unwritten Rules of Social Relationship
Arlington, TX: Future Horizons, 2005.
Library of Congress Number: HM686.G73 2005
Category: Specific Chronic Health Condition  

The authors use their colorful life stories to explain unwritten rules and patterns of social relationships as seen throught the eyes of people with autism. They create guidelines for living and working with others and illustrate their infinite applications, in even the most complex situations.

Verbal Behavior Approach, The
By Mary Lynch Barbera
London, UK: Jessica Kingsley, 2007.
Library of Congress Number: RJ506.A9 B27 2007
Category: Specific Chronic Health Condition  

The Verbal Behavior approach is motivation driven, creating the desire to learn. This step-by-step guide provides an abundance of information about how to help children with autism develop better language and speaking skills.

Way to A, The
By Hunter Manasco
Shawnee Mission, KS: Autism Asperger Publishing Co., 2006.
Library of Congress Number: RJ506.A9M36 2006
Category: Specific Chronic Health Condition  

This publication is a wonderfully easy to use program for empowering students to make better choices. It is the kind of resource parents and professionals will find themselves going to again and again.

What did you say? What do you mean?
By Jane Welton
London, NJ: Jessica Kingsley, 2004.
Library of Congress Number: RJ506.A9 W443 2004
Category: Specific Chronic Health Condition  

Welcome to the world of metaphor... Any parent or teacher working with Asperger's or autism will find that this book helps to open the doors of imagination for the child in ways that they might not have thought possible. A fun and practical book, which children and grownups can enjoy - and giggle over - together.


Videos

Alphabet: Video Learning Program for Visual Learners, The
By Jeffrey Sprecher
Muskego, WI: The Special Kids Company, Inc., 1994.
Length: 40 minutes
Library of Congress Number: LC4704.73.A27 1999
Category: Educational and Community Issues  

This video will help teach the alphabet and words to children ages 2-10 with autism, Down syndrome, cerebral palsy, dyslexia, apraxia, and other learning challenges, through a simple, slow and repetitive presentation.

Asperger's Syndrome and High Functioning Autism: Same or Different?
By Fred R. Volkmar
Vanderbilt University: The John F. Kennedy Center Productions, 1996.
Length: 50 Minutes
Category: Specific Chronic Health Condition  

Dr. Volkmar, a Yale psychiatry professor and one of the nation's leading autism researchers, talks about the differences and similarities between Asperger's syndrome and high-functioning autism. He offers no final answers as to whether or not they are truly the same or different diagnoses, but he does give a history of the diagnoses, description and clinical features of each. He describes the research up to the mid 1990s on both, and he tells about the Social Learning Disability Project, a research project he began at Yale.

Autism and the New Law
By Grace M. Hanlon
Fair Haven, NJ: Edvantage, 2001.
Length: 30 minutes
Library of Congress Number: RJ506.A9 A88
Category: Specific Chronic Health Condition  

Anthony Edwards of the television show "ER," hosts this program which explains autism, pervasive developmental disorder (PDD) and asperger's syndrome. The effects of legislation (The Advancement of Pediatric Autism Research Act of 2000)are also discussed.

Day By Day: Raising The Child With Autism/PDD
By Joan F. Goodman, Susan Hoban
New York, NY: Guilford Publications Inc., 1992.
Length: 51 minutes
Library of Congress Number: RJ506.A9 D3 1992; C:2
Category: Specific Chronic Health Condition  

This video features two families- one affected by autism and the other affected by PDD. For each family, the disability and its symptoms, strategies for coping and strategies for accepting the situation are discussed.

Don't Give Up
By Jan Nowina-Zarzycki
Boston, MA: Fanlight Productions, 1999.
Library of Congress Number: RJ506.A9D66 1999
Category: Specific Chronic Health Condition  

This video focuses on a year in the life of Adrian, a four-year old who has Autism, and his experiences in a special therapy program. This film is realistic about the financial and emotional costs experienced by his parents and siblings; yet, by the end, Adrian has made a great deal of progress.







OT For Children with Autism, Special Needs & Typical
By Britt Collins
TRP Yoga, 2007.

This DVD introduces parents to Occupational Therapy and what it can do for a child who has difficulties with organization of behavior and/or Sensory Dysfunction. Parents and caregivers are guide through this program in both clinical and easy to fellow terms.

Say It! Teaching Children with Autism to Talk
By Sally Bligh
Shawnee Mission, KS: Autism Asperger Publishing Company, 2003.
Length: 45 minutes
Library of Congress Number: RJ506.A9S29 2003
Category: Specific Chronic Health Condition  

This program takes the speech-language pathologist through the process of teaching children first words, to using phrases and sentences and on to being able to converse. Bligh clearly explains the strategies involved in teaching children with autism to talk, as well as demonstrating how to incorporate parents and caregivers in sessions. Along with actual footage of therapy sessions, the video includes segments in which parents explain how Bligh's techniques have been successful in teaching their children to talk.

Scientific American with Alan Alda: Autism
Chedd-Angier, 2001.
Length: 13 minutes
Library of Congress Number: RJ506.A9A86
Category: Specific Chronic Health Condition  

This video features children who have been diagnosed as autistic early in childhood. These children are shown in comparison with normal children to demonstrate the differences between teh two.

Understanding Brothers and Sisters on the Autism Spectrum
Coultervideo.com
Length: 1 hour 30 mins.
Library of Congress Number: RJ506.A9U53 2007
Category: Specific Chronic Health Condition  

This DVD has four programs for siblings of children on the autism spectrum, geared for different ages. The program for the youngest children features puppets--there's something for all ages, inlcuding parents.


Websites

Autism Research Institute, San Diego
http://www.autismresearchinstitute.com
Author: The Autism Research Institute (ARI), a nonprofit organization established in 1967

This site has information about causes, diagnosis, and treatment of autism.

Autism Resources
http://www.autism-resources.com
Author: Jim Wobus

This site has been maintained since 1995 by a parent of a child with autism. Included is advice for parents who are told their child has autism, Autism FAQ, book reviews , and research links. In the "Links" Section, the book & publications listings for autism may be of special interest.

Autism Society of America
http://www.autism-society.org
Author: Autism Society of America

Downloadable information packages cover diagnosis, treatment options, education, state-by-state resources. The ASA newsletter, the Advocate is also available.

Autism Spectrum Disorders
http://www.cdc.gov/ncbddd/dd/ddautism.htm
Author: National Center for Birth Defects and Developmental Disabilities

This site includes fact sheets and information on vaccines and on autism spectrum disorders.

Center for the Study of Autism, Portland Oregon
http://www.autism.org
Author: The Center for the Study of Autism

Information about autism for parents and professional and information on research related to therapeutic interventions is offered in this site. In addition there is information about autism available in languages other than english. Information on sibling issues, and information on related disorders.

National Institute of Child Health and Human Development
http://www.nichd.nih.gov/autism
Author: National Institute of Child Health and Human Development

The autism section has a variety of publications available to download including several in Spanish. There are links to news releases, research and related conference information.

National Institute of Mental Health
http://www.nimh.nih.gov/healthinformation/depressionmenu.cfm
Author: National Institute of Mental Health

This website offers information and resources on mental illnesses and provides news and event updates, information on clinical trials, and funding opportunities. The site contains publications, educational materials, fact sheets, and statistics on mental health issues from autism and depression to social phobias, including a section on child and adolescent mental health. The material is available in English and Spanish.


Community Services

Autism Society of America, Inc.
7910 Woodmont Ave Suite 300
Bethesda, MD 20814-3067
Phone: 301.657.0881
Toll-Free: 800.328.8476
Fax: 301.657.0869
Website: http://www.autism-society.org/

Services of the Autism Society of America include the following:

1) The Autism Society of America offers information and referrals for parents, relatives, teachers, and medical professionals. They respond to over 6,000 requests annually for information about education, research, laws, and programs related to autism.

2) Approximately 200 chapters of the society operate nationwide through volunteer efforts of parents. Services of individual chapters include providing information, referral, and support to families; sharing mutual problems; and working together to advocate for improved services. Many chapters also publish a newsletter and host conferences.

3) The Autism Society of America publishes a national newsletter, Advocate, six times each year. The Advocate reports the latest developments in research and laws, prints interviews with medical and legislative leaders, reviews books, and provides an information exchange. Subscription to the Advocate is available through membership only.

4) The Society has two mail order bookstores, in Michigan and North Carolina, that offer about 100 titles on almost all known aspects of autism.

5) Through the press and public relations the Society relates new developments about autism. They also use National Autism Week (second week in January) to educate the public about the specialized needs of persons with autism.

6) The Society hosts an annual conference early in July for experts and parents to meet and learn more about autism syndrome. The four-day conference includes over 65 workshops and presentations. An average of 1,000 people attend the conference. Day care is provided.

7) The Society has a Government Affairs Committee that works with volunteers to educate lawmakers concerning the needs of those with autism syndrome.


PAC Network
955 Woodland Street
Nashville, TN 37206
Phone: 615.385.2077
E-mail: barneybarker@hotmail.com

The PAC (Parents of Austic Children) Network meets the 3rd Wednesday of every month from 10:00 A.M. to 12:00 noon at the Autism Society of Middle Tennessee offices, 955 Woodland Street, Nashville, TN 37206. Autism support groups also exist in Clarksville, Lincoln County, Mt. Pulaski, Putnam County, Summer County, and Winchester, TN, as well as in Ft. Campbell, KY. Contact the Society by phone or look on their website.


Sensory Integration Dysfuction Support Group
Nashville, TN
Phone: 615.662.0587

This support group for parents meets quarterly at the Susan Gray School on Peabody Campus of Vanderbilt University in Nashville, 7-8:30 pm. Please call Susan Johns for details. Free childcare may be available if you call 615-322-8200 for reservations at least one week in advance.


Unlocking Autism
9463 Florida Blvd., Suite D
Walker, LA 70785
Phone: 225.665.7270
Fax: 225.665.7547
Website: http://www.unlockingautism.org

Unlocking Autism is a program that provides assistance to people with autism, outside the surrounding area, that need medical care. The organization has partnered with several airlines to offer parents of children with autism help in getting their children to medical appointments in other states. More information and an application are available on the website.


Support Groups

Mothers & Fathers of Autism Spectrum Kids (M.A.S.K)
Humphreys County Contact
Tennessee
Phone: 931-582-6147
E-mail: gts6147@bellsouth.net

This is support group of parents supporting parents who have children with Autism Spectrum.


Other Resources

Autism Education Center
500 Wilson Pike Circle, Suite 320
Brentwood, TN 37027
Phone: 615-376-0034
E-mail: skblake01@comcast.net
Website: http://autismeducationcenter.com

The Autism Education Center (AEC) is a therapy center for children with Autism. It provides programming that is based on the principles of applied behavior analysis (ABA) utilizing B.F. Skinner's research in verbal behavior.


Regional Services

Autism Society of America, Middle Tennessee Chapter
955 Woodland Street
Nashville, TN 37206
Phone: 615.385.2077
Fax: 615.383.1176
E-mail: asmt@tnautism.org
Website: http://autismmidtenn.org/

The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum and their families, to be fully included, participating members of their communities through advocacy, public awareness, education, and research related to autism. The Autism Information and Resource Center was created by the Autism Society of Middle Tennessee in 1997 to improve access to autism information and community resources, parent- professional collaboration, and social support for families of persons with autism. Parents, family members, educators, physicians, psychologists, thereapists, and all other interested community members are encouraged to use the Center. Services include: autism orientation (held bi-monthly on the third Thursday of the month; autism education workshops; support groups; newsletter; and community library.


Tennessee Voices for Children
1315 8th Avenue South
Nashville, TN 37203
Phone: 615.269.7751
Toll-Free: 800.670.9882
Fax: 615.269.8914
E-mail: TVC@tnvoices.org
Website: http://www.tnvoices.org

Tennessee Voices for Children is a statewide organization committed to improving and expanding services related to the emotional and behavioral well-being of children. Families, professionals, and business and government leaders participate in the organization. Tennessee Voices for Children offers parents and caregivers support, education, and information through family support groups, quarterly newsletter, telephone network, statewide conferences on issues dealing with the emotional and behavioral well-being of children for the education and public awareness of families, professionals, and the public. In addition, TVC provides training and technical assistance opportunities, and case-by-case advocacy. The organization has support groups statewide. If interested in participating, contact the office at 615.269.7751 or 1.800.670.9882 for information and referral.

In Nashville, the support groups are held every 2nd Thursday of the month 7:00-8:30 at the Belmont United Methodist Church on Acklen and 21st Ave. In Franklin the support groups are held every 2nd Thursday of the month 6:30-8:00 at Franklin High School at 810 Hillsboro Road.


Resources for: Interventions
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Books

Activities for Developing Pre-Skill Concepts in Children with Autism
By Toni Flowers
Austin, TX: Pro-Ed, 1987.
Library of Congress Number: LC4717.5.F5 1987
Category: Coping  

This is a teacher's handbook for working with children with autism. Step-by-step instructions for each and every activity are provided, along with worksheet activities for the teacher to copy, for their student's use. The book is divided into sections based upon the topic they are trying to teach the child with autism, (e.g. "Auditory development", "concept development", "social development", "speech and language development", and "visual-motor integration").

Activity Schedules for Children with Autism: Teaching Independent Behavior
By Lynn E. McClanahan, Patricia J. Krantz
Bethesda, MD: Woodbine House, 1999.
Library of Congress Number: RJ506.A9M 426 1999
Category: Educational and Community Issues  

This book should be wonderful for both parents and teachers of a child with autism; allowing them to help a child keep focused on what he or she is doing. The first chapter takes a person through the thoughts behind the use of an activity schedule, leading to the second chapter, which helps the reader decided if their child is ready to use one. This book has many pictures, examples, and personal stories. In an easy to read writing style this book should be useful to anyone who has a child with autism.

Adolescents on the Autism Spectrum
New York, NY: Penguin Group, 2006.
Library of Congress Number: RC553.A88S566 2006
Category: Specific Chronic Health Condition  

This practical guide offers parents strategies for helping their children, whatever their ability level, through the physical and emotional changes of the teenage years and preparing them for adulthood. This book is highly recommended.

Asperger Syndrome and Difficult Moments
By Brenda Smith Myles, Jack Southwick
Shawnee Mission, KS: Autism, Asperger Publishing Co., 1999.
Library of Congress Number: RC553.A88M973 2005; C:2
Category: Specific Chronic Health Condition  

This publication should help anyone living or working with an individual on the spectrum who engages in challenging behavior. It is concise, thoughtful, well-researched and practical.

Asperger Syndrome, the Universe and Everything
By Ken P. Kerr, Gill Rowley
London and Philadelphia: Jessica Kingsley Publishers, 2001.
Library of Congress Number: RC553.A88 H35 2001
Category: Specific Chronic Health Condition  

Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.

AUTISM
By Heather Miller *Miller-Kuhaneck
Bethesda, MD: he American Occupational Therapy Association, 2004.
Library of Congress Number: RJ506.A9 A888 2004
Category: Specific Chronic Health Condition  

This second edition is a comprehensive resource with updated information on basic research related to several levels of understanding of the complexities of autism. Of special note are several revised and updated chapters providing a timely update and is a necessary volume for any occupational therapist working with children with autism.




Autism Spectrum Disorders from A to Z
By Barbara T. Doyle, Emily Doyle Iland
Arlington, TX: Future Horizons, 2004.
Library of Congress Number: RC553.A88D69 2004
Category: Specific Chronic Health Condition  

Well-organized, comprehensive and very pertinent to families of children with autism and the professionals who work with them.

Autism Through The Lifespan: The Eden Model
By David L. Holmes
Bethesda, MD: Woodbine House, 1998.
Library of Congress Number: RC533.A88 H64 1997
Category: Specific Chronic Health Condition  

This book gives the reader insight into the Eden program, which has both a school and residence for persons with autism. The results of what the program has found to be successful is compiled in this book, for example Eden's, "zero reject" policy for everybody is shared. In easy to read format with visual diagrams, the outlines of programs, and shared personal stories, this book should be of service to anyone looking for a program to follow.

Autism Treatment Guide
By Elizabeth K. Gerlach
Eugene, OR: Four Leaf Press, 1996.
Library of Congress Number: RJ506.A9 G484 1996
Category: Specific Chronic Health Condition  

A mother who has a child with autism wanted to list all of the possible treatments for a child with autism in one book. Each chapter has both a resource guide and suggested reading at the end. The book is arranged according to topics such as dietary interventions, vitamin therapy, anti yeast therapy sensory intergration therapy and the Doman / Decato method, making it easy for parents to look up a topic that they have an interest in.

Behavioral Intervention for Young Children With Autism
By Catherine Maurice
Austin, TX: PRO-ED, 1996.
Library of Congress Number: RJ506.A9 B3427 1996
Category: Specific Chronic Health Condition  

Different types of treatment methods and claims are explored at the beginning of this book. Then giving the reader questions to use to evaluate the treatments the authors hope that they will find the one that will be the most beneficial to the child's behaviors. There are chapters related to teaching such as "What to teach", "how to teach" and "who should teach." This book has forms that will assist the teacher when working with a child's behavior. This book will help anyone who wants to begin the ABA (Applied Behavior Analysis) model with a child who has autism.

Does My Child Have Autism?
By Wendy L. Stone, Ph.D., Theresa DiGeronimo, M.Ed.
San Francisco, CA: Jossey-Bass, 2006.
Library of Congress Number: RJ 506.A9.S767 2006
Category: Specific Chronic Health Condition  

This early detection and intervention book by one of the foremost experts, and clinicians in the field, provides a guide for parents about what to look for at home at 24 months or even earlier, what to do, and how to get the right kind of help.

Quirky Kids: Understanding and Helping Your Child Who Doesn't Fit In
By Perri Klass, MD, Eileen Costello, MD
New York, NY: Balletine Press, 2003.
Pages: 361
Library of Congress Number: HQ773.K554 2003
Category: Specific Chronic Health Condition  

Parents and pediatricians can both benefit from this clearly written, practical no-nonsense book about kids that don't fit the norm. The author shares insights on how to help your child feel secure and grow to their full potential.

Reaching Out, Joining In: Teaching Social Skills to Young Children with Autism
By Mary Jane Weiss, Ph.D., BCBA, Sandra Harris, Ph.D
Bethesda, MD: Woodbine House, Inc, 2001.
Library of Congress Number: RJ506.A9 G53 2001
Category: Educational and Community Issues  

The authors of Reaching Out, Joining in combine sensitivity and pragmatism in this guide to helping children with autism develop social skills. Matter-of-fact and easy to read, this book provides lists of activities and programs to help children develop communication, play, and sequence skills necessary for school.

Right from the Start: Behavioral Intervention for Young Children with Autism: A Guide for Parents and Professionals
By Sandra L. Harris, Mary Jane Weiss
Bethesda, MD: Woodbine House, 1998.
Library of Congress Number: RJ506.A9 H269 1998; C:2
Category: Specific Chronic Health Condition  

The book has an easy to read style and is given a personal touch by the introduction of a family whose experiences are shared at the beginning of each chapter. This book discusses early behavioral intervention when working with a child who has autism. Educational systems are discussed through several chapters from how to identify a quality program and curriculums for autistic children, to implementing a home based program.

S.O.S. Social Skills in Our Schools
By Michelle A. Dunn
Shawnee Mission, Kansas: Autism Asperger Publishing Co., 2006.
Library of Congress Number: LC4019.D86 2006
Category: Specific Chronic Health Condition  

This publication offers an easy-to-use, practical program for teaching social skills in children ith autism. It is a wonderful resource for parents and professionals.

Son Rise The Miracle Continues
By Barry Neil Kaufman
Tiburon, California: H. J. Kramer, 1994.
Library of Congress Number: RJ506.A9K383 1944
Category: Specific Chronic Health Condition  

A three part book that follows Raun's development from a lifeless, non-communicative child on the autism spectrum into an active, loving, verbal little boy. Part Two tells of Raun's development after age four. Part Three delivers a moving account of five other families who became extraordinary when they are guided by the Kaufmans' Son-Rise Program to reach their own "unreachable" children.

Special Diets for Special Kids: Understanding and Implementing Special Diets to Aid in the Treatment of Autism and Related Developmenatal Disorders
By Lisa Lewis
Arlington, TX: Future Horizons Inc., 1998.
Library of Congress Number: RJ53.D53 L48 1998
Category: Nutrition/Weight Management  

This book begins with an introduction to autism and the author's personal experience of living with her son who developed autism around age two. Several special diets are mentioned but the book focuses on a gluten/casein free diet aimed at helping autistic children. There are over 150 recipes listed with detailed instruction. There is also a chapter of Q/A and a listing of web sites that are related to the topics discussed.

Teaching Children with Autism: Strategies for Initiating Positive Interactive and Improving Learning Opportunities
By Robert L. Koegel, Lynn K. Koegel
Baltimore, MD: P. H. Book, 1995.
Library of Congress Number: LC4717.5.T42 1995
Category: Educational and Community Issues  

This book is for the professionals who will be teaching children by using behavior interventions for children with autism. With each chapter written by a professional, engaged in autism research, the book is a valuable resource for encouraging social and language communications in children with autism. Topics such as school placement, child friendship developing child autonomy and support for families create a wide breadth of helpful information.

Teaching Children with Autism: Strategies to Enhance Communication and Socialization
By Kathleen Ann Quill
New York, NY: Delmar Publishers, 1995.
Library of Congress Number: LC4718.T43 1995
Category: Educational and Community Issues  

An easy to read writing style coupled with a summary section in each chapter and appendix which makes this book perfect for the parents of a newly diagnosed child with autism. The overall book is divided into three sections beginning with "Perspectives on Autism," "Communication Enhancement and "Promoting Socialization."

Teaching Spontaneous Communication to Autistic and Developmentally Handicapped Children
By Linda R. Watson, Catherine Lord, Bruce Schaffer, Eric Schopler
Austin, TX: Pro-ed, 1991.
Library of Congress Number: LC4717.T43 1991
Category: Educational and Community Issues  

Written for the teachers of autistic children and for parents who want to increase their child's verbal communication; this book will be a useful aid. Beginning with an overview of the model that is used to teach children with autism or some other similar disorder the book then describes the issues related to their conditions. The authors give assessment tools to use with children who might have autism. Then the book helps the teacher/parent identify goals and educates them on strategies to accomplish the goals that were chosen. The book has a series of specific goals that teachers and parents may want to work on also providing pointers for achieving them.

Treasure Chest of Behavioral Strategies for Individuals with Autism, A
By Beth Fouse, Maria Wheeler
Arlington, TX: Future Horizons, 1997.
Library of Congress Number: RC553.A88 F68 1997
Category: Specific Chronic Health Condition  

This book is easy to read. The chapters have separate topics allowing the reader to go to their desired subject matter. The book gives four different icons to notice when reading the book, which notes (e.g. single important concepts, major concepts with lists, cautions to look out for, and case examples). This is a wonderful resource teaching parents the fundamentals on raising their child with autism.

Understanding and Teaching Children with Autism
By Rita Jordan, Stuart Powell
New York, NY: John Wiley, 1995.
Library of Congress Number: RJ506.A9 J67 1995
Category: Educational and Community Issues  

This book will be a useful tool for educators and those working with a child who has autism. Focusing the mental and social development of the child the authors give great detail for anyone wishing to learn how to effectively teach their special needs students. The behavioral issues that a child with autism present, are addressed in several chapters.

Verbal Behavior Approach, The
By Mary Lynch Barbera
London, UK: Jessica Kingsley, 2007.
Library of Congress Number: RJ506.A9 B27 2007
Category: Specific Chronic Health Condition  

The Verbal Behavior approach is motivation driven, creating the desire to learn. This step-by-step guide provides an abundance of information about how to help children with autism develop better language and speaking skills.

World of the Autistic Child: Understanding and Treating Autistic Spectrum Disorders, The
By Bryna Siegel
New York, NY: Oxford University Press, 1996.
Pages: 351
Library of Congress Number: RJ506.A9 S53 1996; C:2
Category: Specific Chronic Health Condition  

The book is divided into two sections beginning with "What it means to have autism" and "Treatment resources". The first section defines autism, relates the development of social and language skills in a typical child with autism, and looks at how the family copes with the diagnosis. The second section shows the reader how to find resources and shares the importance of early intervention. There are multiple chapters related to the education of a child with autism from choosing the right classroom to suggested teaching methods for the child.

You're Going to Love This Kid
By Paula Kluth
Baltimore, MD: Paul H. Brookes Publishing, 2003.
Pages: 263
Library of Congress Number: LC4718.K58 2003
Category: Educational and Community Issues  

This book is a meaningful and dynamic must read for anyone blessed to know a learner with autism. It brings to life a learner-centered, multi-dimensional, perspective for effectively educating kids with autism, their peers and their teams. The key factors of motivation, flexibility, patience and the manner in which behavior and learning are conceptualized are just as important and neccesary for parents as they are for teachers.


Videos

Don't Give Up
By Jan Nowina-Zarzycki
Boston, MA: Fanlight Productions, 1999.
Library of Congress Number: RJ506.A9D66 1999
Category: Specific Chronic Health Condition  

This video focuses on a year in the life of Adrian, a four-year old who has Autism, and his experiences in a special therapy program. This film is realistic about the financial and emotional costs experienced by his parents and siblings; yet, by the end, Adrian has made a great deal of progress.







Say It! Teaching Children with Autism to Talk
By Sally Bligh
Shawnee Mission, KS: Autism Asperger Publishing Company, 2003.
Length: 45 minutes
Library of Congress Number: RJ506.A9S29 2003
Category: Specific Chronic Health Condition  

This program takes the speech-language pathologist through the process of teaching children first words, to using phrases and sentences and on to being able to converse. Bligh clearly explains the strategies involved in teaching children with autism to talk, as well as demonstrating how to incorporate parents and caregivers in sessions. Along with actual footage of therapy sessions, the video includes segments in which parents explain how Bligh's techniques have been successful in teaching their children to talk.

School Inclusion of a High Functioning Students with Autism
By Indiana Resource Center for Autism
Bloomington, IN: Indiana University, 1993.
Library of Congress Number: LC4718.5.I6 S36 1993
Category: Educational and Community Issues  

This video discusses a case study of a child with autism and their progression from 4 years of age through the 6th grade. The video defines what it is like to live with autism and the reactions of everyone when the child integrates into their social environments. Difficulties encountered in making friends and handling social situations appropriately are shared in the video along with the advancements the child makes from 1st grade through 6th grade, including the adaptations made to the school environment to help the autistic child. A teacher expresses how she integrates the autistic child in the class both socially and academically. A principle discusses how the child is integrated in the school environment and in after school tutoring.


Websites

American Academy of Pediatrics Home Page
http://www.aap.org
Author: American Academy of Pediatrics

This Website provides information on all areas of pediatrics, including medical news updates. The site can be searched for specific topics and provides a number of articles on vaccines and vaccination safety.

Autism Research Institute, San Diego
http://www.autismresearchinstitute.com
Author: The Autism Research Institute (ARI), a nonprofit organization established in 1967

This site has information about causes, diagnosis, and treatment of autism.

Autism Society of America
http://www.autism-society.org
Author: Autism Society of America

Downloadable information packages cover diagnosis, treatment options, education, state-by-state resources. The ASA newsletter, the Advocate is also available.

Center for the Study of Autism, Portland Oregon
http://www.autism.org
Author: The Center for the Study of Autism

Information about autism for parents and professional and information on research related to therapeutic interventions is offered in this site. In addition there is information about autism available in languages other than english. Information on sibling issues, and information on related disorders.

National Network for Immunization Information
http://www.immunizationinfo.org
Author: National Network for Immunization Information

Extensive information and srticles related to autism and immunization can be found on this site.

T.E.A.C.H.H. Treatment and Education of Autistic and related Communication handicapped Children
http://www.teacch.com/
Author: University of North Carolina

This site offers information on autism, communication approaches, educational approaches, a demonstration pre-school model and downloadable publications. There is also a section on research and training opportunities.

Vaccine Education Center at The Children's Hospital of Philadelphia
http://www.vaccine.chop.edu
Author: The Children's Hospital of Philadelphia

The Vaccine Education Center has many dowloadable articles regarding autism and vaccines.


Community Services

Autism Society of America, Inc.
7910 Woodmont Ave Suite 300
Bethesda, MD 20814-3067
Phone: 301.657.0881
Toll-Free: 800.328.8476
Fax: 301.657.0869
Website: http://www.autism-society.org/

Services of the Autism Society of America include the following:

1) The Autism Society of America offers information and referrals for parents, relatives, teachers, and medical professionals. They respond to over 6,000 requests annually for information about education, research, laws, and programs related to autism.

2) Approximately 200 chapters of the society operate nationwide through volunteer efforts of parents. Services of individual chapters include providing information, referral, and support to families; sharing mutual problems; and working together to advocate for improved services. Many chapters also publish a newsletter and host conferences.

3) The Autism Society of America publishes a national newsletter, Advocate, six times each year. The Advocate reports the latest developments in research and laws, prints interviews with medical and legislative leaders, reviews books, and provides an information exchange. Subscription to the Advocate is available through membership only.

4) The Society has two mail order bookstores, in Michigan and North Carolina, that offer about 100 titles on almost all known aspects of autism.

5) Through the press and public relations the Society relates new developments about autism. They also use National Autism Week (second week in January) to educate the public about the specialized needs of persons with autism.

6) The Society hosts an annual conference early in July for experts and parents to meet and learn more about autism syndrome. The four-day conference includes over 65 workshops and presentations. An average of 1,000 people attend the conference. Day care is provided.

7) The Society has a Government Affairs Committee that works with volunteers to educate lawmakers concerning the needs of those with autism syndrome.


High Hopes, Inc.
1647 Mallory Lane, Suite 103
Brentwood, TN 37027
Phone: 615.661.KIDS (5437)
Fax: 615.309.8342
E-mail: gpowell@highhopesnash.org
Website: http://www.highhopesinc.org

High Hopes is a therapeutic pre-school and resource center for families who have young children with special needs. The agency offers:
1) Infant stimulation that consists of individual therapeutic sessions focusing on teaching parents and other care givers to encourage the baby's growth in all areas of development. High Hopes works with family members by providing the support and information they need to adjust to the special needs of their baby.
2) Pre-school classes that focus on learning through play and discovery.
3) Therapeutic services to children including
*Occupational Therapy
*Physical Therapy
*Speech and Language Pathology
*therapeutic listening
*feeding therapies
4) Extended care services open to the community
5)Offers a strength training gym where adolescents with special needs have access to weight training equipment


Outlook Nashville
3004 Tuggle Ave.
Nashville, TN 37211
Phone: 615.834.7570
Fax: 615.331.2248

Outlook Nashville provides early intervention services for children up to the age of three with disabilities. Services include:
1) Home-based, center-based, and day care support.
2) Full-day preschool services. It also includes early intervention, childcare, Parent support for infants, assessment, and case management.
3) Family programs and speakers
4) Consultant therapy services.



Regional Services

Vanderbilt Bill Wilkerson Hearing and Speech Center
1215 21st Avenue South, Medical Center East - South Tower
Nashville, TN 37232
Phone: 615.936.5070
Fax: 615.936.5088 (hearing)
Website: http://www.mc.vanderbilt.edu/VanderbiltBillWilkersonCenter/index.html

Through three major clinics, the Bill Wilkerson Center provides diagnostic and therapeutic services to persons of all ages who have speech, language, hearing, or neurological disorders such as stuttering, apraxia, autism or sensory integration dysfunction. The Wilkerson Center offers the only communication based intervention program for preschoolers in the Middle Tennessee area. The program works in collaboration with children, families, their primary doctors, and the local school systems. Therapists conduct evaluations, provide speech therapy and help children gain communication and behavioral skills.


Resources for: Perspectives of the Family and Autobiographical Material
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Books

All About My Brother
By Sarah Peralta
Shawnee Mission, KS: APC, 2002.
Library of Congress Number: RJ506.A9P47 2002
Category: Specific Chronic Health Condition  

This book comes from the heart of a little girl who has been involved in helping her younger brother with autism to learn. The book is a testament to the parental support that has fostered a strong positive relationship between Sarah and her brother. Even at a very young age, Sarah has become a strong advocate for her brother and for other children with autism.

Asperger Syndrome, the Universe and Everything
By Ken P. Kerr, Gill Rowley
London and Philadelphia: Jessica Kingsley Publishers, 2001.
Library of Congress Number: RC553.A88 H35 2001
Category: Specific Chronic Health Condition  

Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.

Autism & ADHD Diet, The
By Barrie Silberberg
Naperville, IL: SOURCEBOOKS, INC., 2009.
Library of Congress Number: RJ506.A9S545 2009
Category: Nutrition/Weight Management  

This publication is a complete guide to the Gluten-Free, Casein-Free Diet which according to the author showed extraordinary results in helping children eliminate many traits associated with autism spectrum disorders, ADHD, celiac disease, and other conditions.

Autism and the God Connection
By William Stillman
Naperville, Illinois: Sourcebooks, Inc., 2006.
Library of Congress Number: RJ506.A9S75 2006
Category: Specific Chronic Health Condition  

A fascinating and timely exploration of the special sensitivities and spiritual connections of people with autism.

Autism Life Skills
By Chantal Sicile-Kira
New York, NY: Penguin Group, 2008.
Library of Congress Number: RJ506.A9S536 2008
Category: Specific Chronic Health Condition  

The author explains important life skills topics in a clear and concise manner. The book provides insight into many of the challenges faced by teenagers and adults on the autism spectrum.

Autism Sourcebook, The
By Karen Siff Exkorn
New York, New York: Harper Collins/Regan, 2005.
Library of Congress Number: RJ506.A9E97 2005
Category: Specific Chronic Health Condition  

An excellent book. Loaded with practical information, it answers the many, many questions that parents may have.

Comprehensive, balanced, and comassionate - a tremendous resource for parents of children with autism.


Autism Spectrum Disorders from A to Z
By Barbara T. Doyle, Emily Doyle Iland
Arlington, TX: Future Horizons, 2004.
Library of Congress Number: RC553.A88D69 2004
Category: Specific Chronic Health Condition  

Well-organized, comprehensive and very pertinent to families of children with autism and the professionals who work with them.

Boy Who Loved Windows: Opening the Heart and Mind of a Child Threatened with Autism, The
By Patricia Stacey
Cambridge, MA: Da Capo Press, 2003.
Pages: 299
Library of Congress Number: RJ506.A9S72 2003
Category: Coping  

This is an autobiographical account of one family's five year journey to find treatment for their autistic son, Walker. Told at six months that Walker may never walk or talk, the author and her husband are unwilling to accept this grim prognosis and instead seek out different opinions and treatment options. This book documents one families journey to provide their autistic son with an emotionally full life, and the obstacles and challenges they encounter along the way.

Dancing in the Rain: Stories of Exceptional Progress by Parents of Children with Special Needs
By Annabel Stehli
Westport, CT: Georgianna Organization, Inc, 1995.
Pages: 293
Library of Congress Number: RJ507.D48D36 1995
Category: Coping  

Dancing in the Rain is a collection of stories written by the parents of children with various learning disabilities, developmental delays, and autism. Each parent shares their child's story and the strategies they used to cope with their child's individual disability.

Developing Talents
By Temple Grandin, Kate Duffy
Shawnee Mission, KS: Autism Asperger Publishing Co., 2004.
Library of Congress Number: HV3005.G73 2004
Category: Specific Chronic Health Condition  

This book is written with a conversational directness to aid the young person with Autism and Asperger's develop their life goals and skills. The author's illustrations from her own youthful exeriences are convincing and will inspire hoope and impart practical guidance.

El sindrome de Asperger
By Tony Attwood
London, England: Jessica Kingsley, 1998.
Category: Specific Chronic Health Condition  

a sensibilidad, los conocimientos y el sentido comun de Tony Attwood a la hora de describir a los individuos que sufren el sindrome de Asperger constituyen la base de este magnifico libro. Attwood habla con absoluta claridad de los problemas que tienen los ninos, sus familias, sus profesores y todos los profesionales relacionados con ellos.

Let Me Hear Your Voice
By Catherine Maurice
Fawcett Book/Random House, 1993.
Library of Congress Number: RJ506.A9M39 1994
Category: Coping  

Let Me Hear Your Voice: A Family's Triumph Over Autism is a book that can help inspire other families to effectively cope and maximize the potential of their autistic child within their family, school and community.

Living with Autism: The Parents' Stories
By Kathleen M. Dillon
Boone, NC: Parkway Publishers, 1995.
Library of Congress Number: RJ506.A9 D55 1995
Category: Specific Chronic Health Condition  

The first chapter gives an overall look at autism centering on how it affects the parents and the family. The next 6 chapters are each a story told from the parents' perspective about their child who has autism. The stories give the reader a glimpse into what having a child with autism is like, sharing the laughter and pain. At the end of the book a questionnaire is provided for the parents regarding their child. There are also 10 suggestions for the parents from the author.

Making Peace With Autism
By Susan Senator
Boston, MA: Trumpeter Books, 2005.
Library of Congress Number: RJ506.A9S457 2005
Category: Coping  

This is one family's story of their journey, struggles, and unexpected joys and strengths garnered in helping their autistic child maximize his potential.

News from the Border
By Jane Taylor McDonnell
New York, NY: Ticknor & Fields, 1993.
Library of Congress Number: RJ506.A9M43 1993
Category: Specific Chronic Health Condition  

This author has made a valuable addition to the growing literature about (and by) high-functioning people with autism. She offers an intimate portrait of autism that is refreshingly honest and surprisingly hopeful. "People with autism can learn to - cope - and their families can learn to accept."

Playing, Laughing and Learning with Children on the Autism Spectrum
By Julia Moor
London, UK: Jessica Kingsley Publishers, 2002.
Library of Congress Number: RJ506.A9M66 2002
Category: Specific Chronic Health Condition  

The book is well organized, simply written, and it avoids jargon and technical terminology. It is full of wonderful and practical ideas such as "structuring your day by creating a visual diary" or "picture prompts for playing with toys."

Somebody Somewhere
By Donna Williams
New York, NY: Times Books, 1994.
Library of Congress Number: RC553.A88W555 1994
Category: Specific Chronic Health Condition  

This is the story of learning to build a somewhere out of a nowhere and a somebody out of a nobody. It is an astonishing effort by a person with autism to document what life is like from the inside looking out and the transition from a severely withdrawn child to college educated writer.

Son Rise The Miracle Continues
By Barry Neil Kaufman
Tiburon, California: H. J. Kramer, 1994.
Library of Congress Number: RJ506.A9K383 1944
Category: Specific Chronic Health Condition  

A three part book that follows Raun's development from a lifeless, non-communicative child on the autism spectrum into an active, loving, verbal little boy. Part Two tells of Raun's development after age four. Part Three delivers a moving account of five other families who became extraordinary when they are guided by the Kaufmans' Son-Rise Program to reach their own "unreachable" children.

Ten Things Every Child With Autism Wishes You Knew
By Ellen Notbohm
Arlington, TX: Future Horizons, 2005.
Library of Congress Number: RC553.A88N68 2005
Category: Specific Chronic Health Condition  

The recommendation here is that every parent, teacher, social worker, therapist, and physician should have this succint and informative book in their back pocket. This book is written with both humor and compassion by a mother who has had personal experiences raising an autistic child.

There's a Boy in Here
By Judy Barron, Sean Barron
New York, NY: Simon & Schuster, 1992.
Library of Congress Number: RC553.A88.B37 1992
Category: Coping  

Mother and son share the story of living with and eventually recovering from autism. Sean who was diagnosed early in life with autism shares what he was feeling and how he looked at the world. His mother Judy gives an open account of a situation and then Sean will give his account of what he was thinking during the same experience. Sean and his family moved from Ohio to California and this move allowed Sean an opportunity to attend a new school, which ultimately aided his emergence from autism.

Thinking in Pictures: And Other Reports from My Life with Autism
By Temple Grandin
New York, NY: Doubleday, 1995.
Library of Congress Number: RC553.A88.G74 1995; C:2
Category: Coping  

Temple Grandin is an assistant professor of animal sciences at Colorado State University, and the designer of livestock handling facilities in both the United States and abroad. This is an autobiographic account of her life growing up with autism for more than 50 years. Ms. Grandin shares what her life was like as a teen and what prompted the development of the "squeeze machine". Sharing the steps she takes to appear as normal as possible, she allows the reader to look into her mind and see the pictures in her head.

Toilet Training for Individuals with Autism or other Developmental Issues
By Maria Wheeler, M.Ed.
Arlington, TX: Future Horizons, 2007.
Pages: 122
Library of Congress Number: RC553.A88 W42 2007; C:2
Category: Coping  

This is the second edition of this useful book that has helped many parents of children with autism face the challenge of toilet training. The author provides a detailed list of factors that can create problems, forms of habit training, and ways of overcoming many standard complications. The book includes case studies from other parents who have toilet trained their children with autism.

Verbal Behavior Approach, The
By Mary Lynch Barbera
London, UK: Jessica Kingsley, 2007.
Library of Congress Number: RJ506.A9 B27 2007
Category: Specific Chronic Health Condition  

The Verbal Behavior approach is motivation driven, creating the desire to learn. This step-by-step guide provides an abundance of information about how to help children with autism develop better language and speaking skills.

Your Life is Not a Label
By Jerry Newport, Ron Bass
Arlington, TX: Future Horizons, Inc., 2001.
Library of Congress Number: RJ506.A9 N49
Category: Coping  

This insightful and inspiring book offers teens and adults with Asperger’s Syndrome common tips and recommendations for leading normal and happy lives in spite of difficulties associated with living with Asperger’s or High-Functioning Autism. The humorous and encouraging outlook makes the book an enjoyable read, and the poignant understanding and advice makes it an immensely useful tool for life.


Videos

Don't Give Up
By Jan Nowina-Zarzycki
Boston, MA: Fanlight Productions, 1999.
Library of Congress Number: RJ506.A9D66 1999
Category: Specific Chronic Health Condition  

This video focuses on a year in the life of Adrian, a four-year old who has Autism, and his experiences in a special therapy program. This film is realistic about the financial and emotional costs experienced by his parents and siblings; yet, by the end, Adrian has made a great deal of progress.







Thinking in Pictures and Other Reports from a life in Autism
By Temple Grandin
Vanderbilt University: The John F. Kennedy Center Productions, 1996.

Temple Grandin, A high functioning adult with autism, gives a talk about her autism and her experiences growing up with it. She emphasizes the importance of family support and interacting with others to help promote development. She uses a series of slides to show how children with autism process sound and sight differently.


Resources for: Children and Teens
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Books

0-0 years
All cats have asperger syndrome
By Kathy Hoopmann
London,, UK: Jessica Kingsley, 2006.
Library of Congress Number: RJ506.A9H65 2006
Category: Specific Chronic Health Condition  

Through the harmony of words and photos, Hoopman's clever sense of humour opens up the world of Asperger to reveal the potential and the individuality that is so often misunderstood.

0-0 years
Asperger Syndrome - What Teachers Need to Know
By Matt Winter
Philadelphia, PA: Jessica Kingsley, 2003.
Library of Congress Number: RC553.A88 W56 2003
Category: Specific Chronic Health Condition  

This publication is the ideal starting point for teachers wishing to learn about Asperger Syndrome and how best to work with, help and get the most from a child with AS. The author, a teacher himself, also imparts tips and practical ideas that he has found successful in a school environment.

0-0 years
Meaningful Exchanges for People with Autism
By Joanne Cafiero
`Bethesda, MD: Woodbine House, 2005.
Library of Congress Number: RC553.A88C34 2005
Category: Specific Chronic Health Condition  

The author provides a practical guide to understanding and using Augmentative & Alternative Communication systems for people with ASDS for both parents and professionals. The book gives easy-to-use suggestions and examples to set up opportunities for people with ASDS to learn, share, and participate in school, family, and community life.

0-0 years
Preparing for Life
By Jed Baker
Arlington, TX: Future Horizons, Inc., 2005.
Library of Congress Number: LC4717.5.B35 2005
Category: Specific Chronic Health Condition  

This easy-to-follow resource provides a complete toolbox of social skills and the means to attain them so that students with Autism or Asperger's may approach their futures with excitement rather than anxiety. The author tackles a wide variety of issues faced by individuals across the spectrum, such as perspective-taking, nonverbal communication skills, conversational skills and stress management.

0-0 years
Realizing the College Dream with Autism or Asperger Syndrome
By Ann Palmer
Philadelphia, PA: Jessica Kingsley Publishers, 2006.
Library of Congress Number: RC553.A88.P356 2006
Category: Specific Chronic Health Condition  

There's plenty of practical information for parents of a child with atism or Asperger syndrome with college aims.

The author relates her story of helping her high-functioning autistic son through college. She thoroughly addresses questions of self-awareness, disclosure forms. Eric's capacities for self-help, orientation, time management and exploiting resources. This is a story that rings with love and support, and a drive to help Eric achieve his potential through meaningful, appropriate challenges.


0-0 years
ABA Program Companion, The
By J. Tyler Fovel
New York, NY: DRL Books, Inc., 2002.
Library of Congress Number: LC4717.F68 2002
Category: Specific Chronic Health Condition  

The ABA Program Companion is written to help the reader integrate important theory and concepts from Applied Behavior Analysis (ABA) into powerful, practical, and comprehensive educational programming, from assessment through program methodology and evaluation.

0-0 years
Social Skills Picture Book, The
By Jed Baker
Arlington, TX: Future Horizons, 2001.
Library of Congress Number: LC4717.5.B34 2001
Category: Specific Chronic Health Condition  

Students who are visual learners such as children with Autism or Asperger's, will benefit from this picture book that will help them learn appropriate social skills such as conversation, play, emotion management and empathy.

3-8 years
Taking Autism to School
By Adreanna Edwards, Tom Dineen
Plainview, NY: JayJo Books, LLC, 2001.
Library of Congress Number: RJ506.A9 E38 2001
Category: Specific Chronic Health Condition  

This simple basic book can help to explain autism to the friends, classmates, siblings and teachers of a child with autism. Bright illustratoins, easy to read text are complemented by quizzes for children and tips for teachers.

3-8 years
Tobin Learns to Make Friends
By Diane Murrell
Arlington, TX: Future Horizons, Inc., 2001.
Library of Congress Number: RJ506.A9 M87 2001
Category: Coping  

This metaphorical story of how Tobin the Train learns to make friends can be used to teach children early social skills and interaction with other children. It is also particularly useful for teaching children with Asperger’s Syndrome or High-Functioning Autism.

3-9 years
Way to A, The
By Hunter Manasco
Shawnee Mission, KS: Autism Asperger Publishing Co., 2006.
Library of Congress Number: RJ506.A9M36 2006
Category: Specific Chronic Health Condition  

This publication is a wonderfully easy to use program for empowering students to make better choices. It is the kind of resource parents and professionals will find themselves going to again and again.

4-0 years
Making Sense of Art
By Sandra R. Davalos
Shawnee Mission, KS: Autism Asperger Publishing Co., 1999.
Library of Congress Number: LC3970.D38 1999
Category: Coping  

Art activities and experiences offer an important way for children to gain a sense of control and mastery of their environment and to grow in self-expression, self-awareness and self-esteem. This book focuses on helping children with autism and Asperger's create art. This book is organized by grouping the activities under each of the five senses, and has helpful tips related to children on the spectrum.


4-8 years
Asperger's Huh?: A Child's Perspective
By Rosina, G. Schnurr
Ontario, Canada: Anisor Publicshing, 1998.
Library of Congress Number: RJ506.A9 S34 1998
Category: Specific Chronic Health Condition  

Sensitive and understanding, this book looks at the life and experiences of a young boy living with Asperger’s Syndrome. The first-person view provides information and insight into common thoughts and motivations of children with Asperger’s.

4-8 years
Ian's Walk: A Story about Autism
By Laurie Lears, Karen Ritz
Morton Grove, IL: Albert Whitman & Company, 1998.
Library of Congress Number: RJ506.A9 L43 1998; C:2
Category: Coping  

This book is described as an excellent way for parents and teachers to explain an autistic child to others in a compassionate and informative story. While the book is geared towards young children it is good for all ages. The story is told from the perspective of the older sister and conveys the many emotions sibling of an autistic child might face.

4-10 years
Everybody is Different: A Book for Young People Who Have Brothers or Sisters with Autism
By Fiona Bleach
London,UK: National Autistic Society, 2001.
Library of Congress Number: RJ506.A9 B54 2001
Category: Coping  

This detailed, but simple book is an excellent resource for children who have a sibling with autism. The book describes autism, and explains how brothers and sisters with autism may behave, and how the child can love and help their sibling with autism.

4-10 years
My Brother, Matthew
By Mary Thompson
Bethesda, MD: Woodbine House, 1993.
Library of Congress Number: HV888.T56 1992 ; C:2
Category: Coping  

Through the experiences of a young boy whose younger brother is born with disabilities, the author examines ways to relate to disabled family members and teaches families, especially children, how to relate and build relationships with disabled family members. This book also explores the feelings and thought processes a sibling might go through while discovering that their brother or sister has disabilities.

4-10 years
Special People, Special Ways
By Arlene Maguire
Arlington, TX: Future Horizons, Inc., 2000.
Library of Congress Number: HV1568.M34 1999
Category: Specific Chronic Health Condition  

This fun, easy-to-read book explains the importance of accepting peers with disabilities as they are and helps children with and without disabilities to find an recognize their many similarities instead of separating because of differences in order to help them learn to build relationships.

5-up
When My Worries Get Too Big!
By Kari Dunn Buron
Shawnee Mission, KS: Autism Asperber Publishing Co., 2006.
Library of Congress Number: RJ506.A58B87 2006
Category: Specific Chronic Health Condition  

This child-friendy book teaches relaxation to children with autism spectrum disorders. Engaging and easy to read, the book is personalized as the child develops his or her own self-calming strategies.

5-6 years
I Love My Brother! A Preschooler's View of Living with a Brother Who Has Autism
By Connor Sullivan
Statham, NH: Phat Art Four, 2001.
Library of Congress Number: RJ506.A9 S85 2001
Category: Coping  

This book offers an insightful and informative first person view of the experience of life with an autistic sibling in a format that is easy to present to young children.

5-8 years
Russell is Extra Special
By Charles A. Amenta III
New York, NY: Magination Press, 1992.
Library of Congress Number: RJ506.A9 A63 1992; C:2
Category: Specific Chronic Health Condition  

Russell, who has autism, is the oldest of 3 brothers that live at home with their mother and father. The book's author is Russell's father Charles A. Amenta III, he is a medical doctor. Doctor Amenta hopes anybody that reads this book, "Will become educators or researchers studying autism." The book provides a real glimpse into the life of a child with autism, the photographs are not staged and the text is a first hand account of Russell's life.

5-10 years
Sometimes My Brother
By Angie Healy
Arlington, TX: Future Horizons, 2005.
Library of Congress Number: RJ506.A9H43 2005
Category: Specific Chronic Health Condition  

Three-year-old Foster explains his perspective of his older brother, Gavin, who has autism. This adorable picture book shows readers the challenges the boys face and the obstacles they overcome.

5-10 years
Trevor Trevor
By Diane Twatchtman-Cullen, Diedre Sasson
Higganum, CT: Starfish Speciality Press, LLC, 1998.
Library of Congress Number: RJ506.A9 T87 1998
Category: Coping  

Particularly helpful for explaining autism and Asperger’s Syndrome to classes and young children, this book tells the metaphorical story of Trevor, a boy with special needs, as he experiences school and learns to make friends. It teaches children to accept one another’s differences. The book also comes with two paperdolls to use to act out the events in Trevor’s life.

5-12 years
Autism and Me
By Ousie Shapiro
Morton Grove, IL: Albert Whitman & Co., 2009.
Library of Congress Number: RJ506.A9S523 2009
Category: Specific Chronic Health Condition  

The essays contained in this publication are written by siblings of children with autism. This inspiring book shows how children, and all of us, can grow in wisdom, acceptance and love in these circumstances.

6-0 years
All About My Brother
By Sarah Peralta
Shawnee Mission, KS: APC, 2002.
Library of Congress Number: RJ506.A9P47 2002
Category: Specific Chronic Health Condition  

This book comes from the heart of a little girl who has been involved in helping her younger brother with autism to learn. The book is a testament to the parental support that has fostered a strong positive relationship between Sarah and her brother. Even at a very young age, Sarah has become a strong advocate for her brother and for other children with autism.

6-up
BaJ and the Word Launcher
By Pamela Victor
London, NJ: Jessica Kingsley Publishers, 2006.
Library of Congress Number: RJ506.A9V53 2006
Category: Specific Chronic Health Condition  

This entertaining adventure story captures the imagination while exploring the challenges of communication. It can be read by children-independently or with a parent or helper - and it can also be used to teach essential skills to children in storytelling or social skills training groups.

6-up
Exploring Feelings
By Dr. Tony Attwood
Arlington, TX: Future Horizons, 2004.
Library of Congress Number: RJ506.A58A78 2004
Category: Specific Chronic Health Condition  
Sub-Category: Specific Chronic Health Condition  

This program was designed as a treatment for an anxiety disorder or anger management problems in children with Asperger's syndrome but the program can be equally to children with High Functioning Autism and Pervasive Developmental Disorder.

6-up
Autism Acceptance book, The
By Ellen Sabin
China: Watering Can Press, 2006.
Library of Congress Number: RJ506.A9S22 2006
Category: Faith Support/Community  

The quality of life for children with autism can be enhanced when the people in their lives better understand them. This book will help friends and family gain insights into what it is like to be autistic.

6-8 years
Captain Tommy
By Abby W. Messner
Stratham, NH: Potential Unlimited Publishing, 1996.
Library of Congress Number: RJ506.A9.C36 1996; C:2
Category: Coping  

During Tommy's first day of camp he meets Kevin, a boy with autism. Tommy at first tries to befriend Kevin, but Kevin ignores him, or so Tommy thinks. The camp leader asks Tommy to play with Kevin and gives him a few ideas about how to communicate with him. By the end of the day, Kevin and Tommy become friends.

6-11 years
When My Autism Gets Too Big
Shawnee Mission, KS: Autism Asperger Publishing Co., 2003.
Library of Congress Number: RC553.A88B87 2003
Category: Coping  

This book is written to help children, parents, and teachers understand about the anxiety experienced by children with autism spectrum disorder and offers some suggestions about how the child might recognize 'anxiety' (autism too big) and what he or she might do.

7-13 years
Autism Through A Sister's Eyes
By Eve B. Band
Arlington, TX: Future Horizons, 2001.
Library of Congress Number: RJ506.A9 B36 2001 C:2
Category: Coping  

When young people have questions about a brother or sister with autism of Asperger's Syndrome clear answers can be hard to find. "Why does Daniel do that?" is the question ten-year old Emily recalled asking her parents as a young child when she first sought to understand her older brother and his differences. The author, a clinical psychologist, answers her questions about autism. Emily's story is as uplifting as it is filled with valuable information for parents and siblings, or any individual whose life is touched by a person with high-functioning autism or Asperger's Syndrome.

7-15 years
Can I tell you about Asperger Syndrome?
By Jude Welton
Philadelphia, PA: Jessica Kingsley, 2004.
Library of Congress Number: RJ506.A9W44 2004
Category: Specific Chronic Health Condition  

This is a brief book written to explain Asperger Syndrome, both to classmates and individuals on the spectrum... It is sufficiently brief for a young audience but also gives good specific examples.


8-up
Andy and His Yellow Frisbee
By Mary Thompson
Bethesda, MD: Woodbine House, 1996.
Library of Congress Number: RJ506.A9T56 1996
Category: Coping  

A gentle story that should appeal to young readers who are new in school or struggling with friendships, as well as those who are interested in autism.

8-12 years
Different Like Me - My book of autism heroes
By Jennifer Elder
Philadelphia PA: Jessica Kingsley Publishers, 2006.
Library of Congress Number: RC553.A88E43 2005
Category: Coping  

Quinn finds it difficult to fit in. His doctor has told him that he is autistic, which means he is a bit different from most other children. But there are many famous people who were a little different, just like him. They also had trouble fitting in, but made great steps forward in science, art, math, literature, philosophy and comedy.

This book will help inspire kids who are different and shows them that they too can succeed.


8-12 years
Looking After Louis
By Lesley Ely
Morton Grove, IL: Albert Whitman and Co, 2004.
Pages: 24
Library of Congress Number: RJ506.A9E49 2004
Category: Coping  

Louis has autism and doesn't seem to know that anyone else in the classroom exists. That is, until one day his classmates figure out a way to include him in their soccer game. Looking After Louis is a book about tolerance and respect for individual differences.

8-12 years
Oh Brother! Growing Up with a Special Needs Sibling
By Natalie Hale
Washington, DC: Magination Press, 2004.
Pages: 46
Library of Congress Number: HQ773.6.H25 2004
Category: Coping  

Being the sibling of a special needs child has it's own challenges. In Oh Brother! Becca tells how she learns to cope with her brother Jonathan's special needs and at the same time make sure that her own needs are also being met.

8-13 years
My Friend with Autism
By Beverly Bishop
Arlington, TX: Future Horizons, 2002.
Library of Congress Number: RJ506.A9B57 2002
Category: Coping  

This book is a wonderful, positive way to provide young children and their parents with information about their friends who have an autism spectrum disorder. My Friend with Autism celebrates the perspective and unique abilities of children with autism and offers classmates concrete ways to develop connections and friendships.

8-14 years
Asperger Syndrome, the Universe and Everything
By Ken P. Kerr, Gill Rowley
London and Philadelphia: Jessica Kingsley Publishers, 2001.
Library of Congress Number: RC553.A88 H35 2001
Category: Specific Chronic Health Condition  

Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.

9-12 years
Joey and Sam
By Ilene Katz, Edward Rita
Northbridge, CA: Real Life Storybook, 1993.
Library of Congress Number: RJ506.A9 K38 1993
Category: Coping  

A poem from Illana Katz entitiled, "Mother to Her Autistic Child," begins this book. Joey is the older brother of Sam who has autism. Joey expresses his frustrations and thoughts out loud and to himself about having a brother that is different than everybody else. Sam's differences are explained in the book and Joey learns to love his brother just the way he is.

9-12 years
This is Asperger Syndrome
By Elisa Gagnon, Brenda Smith Myles
Shawnee Mission, KS: Austim Asperger's Publishing Company, 1999.
Library of Congress Number: RC553.A88 G24 1999
Category: Specific Chronic Health Condition  

Informative and helpful, this book helps families and classmates understand Asperger’s Syndrome and some of the general thoughts and actions of children with Asperger’s through realistic examples and explanations.

10-up
Sometimes I Drive My mom Crazy, But I know She's Crazy About Me
By Lawrence Shapiro
King of Prussia, PA: The Center for Applied Psychology, Inc., 1993.
Library of Congress Number: RJ506.H9S53 1993
Category: Specific Chronic Health Condition  

Working together, kids, parents, teachers and other health care professionals can all can find solutions for kids with ADHD. Most importantly, this book should help children see that they are not " weird" or "bad", and that by learning to cope with their difficulties, they can enjoy success.

10-up
What did you say? What do you mean?
By Jane Welton
London, NJ: Jessica Kingsley, 2004.
Library of Congress Number: RJ506.A9 W443 2004
Category: Specific Chronic Health Condition  

Welcome to the world of metaphor... Any parent or teacher working with Asperger's or autism will find that this book helps to open the doors of imagination for the child in ways that they might not have thought possible. A fun and practical book, which children and grownups can enjoy - and giggle over - together.

10-up
What is Asperger syndrome, and how will it affect me?
By Martine Ives
London, England: The National Autistic Society, 1999.
Library of Congress Number: RC553.A88I94 2001
Category: Specific Chronic Health Condition  

Asperger syndrome is quite a tricky thing to explain. Basically, people with Asperger syndrome have problems in three main areas. These areas can be divided up into - social communication, social understanding and imagination. This guidebook answers any and all questions that will help people with Asperger's live their lives with as much independence as possible.

10-18 years
Developing Talents
By Temple Grandin, Kate Duffy
Shawnee Mission, KS: Autism Asperger Publishing Co., 2004.
Library of Congress Number: HV3005.G73 2004
Category: Specific Chronic Health Condition  

This book is written with a conversational directness to aid the young person with Autism and Asperger's develop their life goals and skills. The author's illustrations from her own youthful exeriences are convincing and will inspire hoope and impart practical guidance.

12-18 years
Freaks, Geeks & Asperger Syndrome
By Luke Jackson
London, NJ: Jessica Kingsley Publishers, 1988.
Library of Congress Number: RJ506.A9J326 2002
Category: Specific Chronic Health Condition  

This is a book for adolescents with Asperger Syndrome, written by a thirteen year-old who has a diagnosis of Asperger Syndrome. This book will enhance our understanding, change attitudes and replace break despair with insight and laughter.

Teens
Autism-Asperger's and Sexuality
By Jerry Newport, Mary Newport
Arlington, TX: Future Horizons, Inc., 2002.
Pages: 200
Library of Congress Number: RJ506.A9 N49 2002
Category: Specific Chronic Health Condition  

This book discusses topics that every teenager wants and needs to know about, from the authors who are a married couple who have gone through the same issues of relationships, sexuality and social situnations. Both authors have Asperger's and are share their experiences along with tips and practical guidance.

Teens
Taking Care of Myself
By Mary Wrobel
Arlington, TX: Future Horizons, Inc., 2003.
Pages: 246
Library of Congress Number: WM203.5W957t 2003
Category: Appearance and Personal Grooming  

This book is written for adults teaching adolescents with autism about hygiene and puberty as well as information to live safe, healthy lives as independently as they are mentally and physically capable of. The introduction of each chapter is in smaller print and more detailed instructions for those presenting the course. There are checklists and simplified instructions in large print for adolescents and teens which can be copied and distributed as handouts. This important information is presented in a straightforward and conversational manner and gives specific checklists and guidelines to follow for good hygiene and safety.

Teens
Your Life is Not a Label
By Jerry Newport, Ron Bass
Arlington, TX: Future Horizons, Inc., 2001.
Library of Congress Number: RJ506.A9 N49
Category: Coping  

This insightful and inspiring book offers teens and adults with Asperger’s Syndrome common tips and recommendations for leading normal and happy lives in spite of difficulties associated with living with Asperger’s or High-Functioning Autism. The humorous and encouraging outlook makes the book an enjoyable read, and the poignant understanding and advice makes it an immensely useful tool for life.

Adults
Asperger Syndrome and Difficult Moments
By Brenda Smith Myles, Jack Southwick
Shawnee Mission, KS: Autism, Asperger Publishing Co., 1999.
Library of Congress Number: RC553.A88M973 2005; C:2
Category: Specific Chronic Health Condition  

This publication should help anyone living or working with an individual on the spectrum who engages in challenging behavior. It is concise, thoughtful, well-researched and practical.


Videos

4-up
Spectrum Connections
New York, NY: Brandissima
Library of Congress Number: RJ506.A9S64 2005
Category: Specific Chronic Health Condition  

Connecting Body Movement for Children on the Spectrum.The class is led by music therapist Elizabeth Balzano

4-up
Spectrum Connections Connecting Emotions
By Elizabeth Balzano
Brandissimo , Inc, 2005.
Library of Congress Number: RJ506.A9S64 2005
Category: Specific Chronic Health Condition  

Created by the mother of an autistic child, "Connecting to Emotions through Music" is the first volume in a series of high quality entertainment DVDs that stimulate and engage children on the spectrum of autism and related disorders.

6-up
Autism Movement Therapy
Los Angeles, CA: Chris Sanborn, 2007.
Library of Congress Number: RC489.M66A98 2007
Category: Specific Chronic Health Condition  

Autism Movement Therapy conbines structured movement with music connectin the left & right hemispheres of the brain for a whole brain cognitive re-mapping approach

Adults
Autism Being Friends
By Indiana Resource Center for Autism
Bloomington, IN: Indiana University, 1991.
Length: 8minutes
Library of Congress Number: RJ506.A9 A87x 1991
Category: Specific Chronic Health Condition  

This video shows the viewer how children with autism are in some ways similar and others different from the children around them. Suggestions are made to help children with autism, make friends with others around them.


Websites

All Ages
Information about Autism for Kids/Teens
http://www.kidshealth.org/kid/health_problems/brain/autism.html
Author: Nemours Children's Hospital, Wilmington, DE

In a child-friendly format, this site covers what autism is, what doctors do to care for children with autism, what it is like to liv e with autism, and what teems with autism are like.

All Ages
Siblings of Autism and Related Disorders
http://www.siblingsofautism.com
Author: Ashley is the sister of an autistic older brother.

This site provides a place where siblings of children with autism can post stories about their brother, or sister, find a pen pal, join a chat , or get book suggestions.


Community Services

Camps

All Ages
Camp Discovery
2440 Vale Lane
Nashville, TN 37214
Phone: 931-268-0239 camp
Fax: F: 931-268-6737
E-mail: director@jayceecamp.org
Website: http://www.jayceecamp.org

A one-week overnight camp for children and adults with mental and physical disabilities. Accessible campground is located in Flynn's Lick Creek area of Cordell Hull Lake, in Jackson County, TN (Gainesboro).

2010 Dates:
Week 1: May 30-June 4
Week 2: June 6-11
Week 3: June 20-25
Week 4:** June 27-July 2*
Week 5: July 4-9
Week 6: July 11-16
Week 7: July 27-Aug. 1

** 18 yr. old and younger week
* June 27-July 2: Stay Over Weekend

The camp sessions will be on a 'First Come, First Served Basis.' All Camp Fees should be paid in full 30 days prior to arrival date. Camping fees for cancellations made less than fifteen days prior to the arrival date will not be refunded.




5-21 years
Empower Me Day Camp
2215 Callis Rd
Lebanon, TN 37090
Phone: 615.453.0005
Fax: 615.444.7988
E-mail: EmpowerMeDayCamp@aol.com
Website: http://www.ncpad.org/programs/index.php?id=7468&country=&state=Tennessee&city=Lebanon, www.EmpowerMeDayCamp.com


6-up
Easter Seals Camp
2001 Woodmont Blvd.
Nashville,, TN 37215
Phone: 615-292-6640 ext. 134
Toll-Free: 800-264-0078 (toll-free
TTD: 615-385-3485
Fax: 615-292-7206
E-mail: camp@eastersealtn.com
Website: http://www.eastersealstn.com

2009 Summer Schedule

May 24-29 Traumatic Brain Injury Camp Hickorywood Cedars of Lebanon St. Park at Lebanon, TN

May 31- June 5 Adults with Autism (ages 18 and up) Deer Run Retreat at Thompson Station, TN

June 14-19 Kids Week Camp Discovery at Gainesboro, TN
(developmentally delayed kids and kids with physical disabilities)

July 12-17 Kids with Autism Camp Boxwell at Lebanon, TN

July 26-31 Adults with Physical Disabilities Camp Discovery at Gainesboro, TN

August 2-7 Adults with Developmental Delays Camp Discovery at Gainesboro, TN

August 9-14 Traumatic Brain Injury Camp Discovery at Gainesboro, TN




6-21 years
Keystone Pocono Camp
RR 1, Box 1515
Gouldsboro, PA 18424
Phone: 570.842.4521
E-mail: glance@keycommresp.com, campkey4U@aol.com

Keystone Camp will be operating its specialized 9-week camp, from June to August, focusing especially on campers with Prader-Willi Syndrome. This session offers an excellent opportunity for campers with PWS to form friendships and participate in fun-filled, excitiing adventures. In addition, Keystone Camp offers the traditional camp experience to individuals with developmental disabilities such as mental retardation, cerebral palsy, epilepsy, autism and neurological impairments. Campers have the option of overnight stay at the camp or to participate in the day camp.

The camp is located on 70 acres in the Pocono Mountains of Pennsylvania.


7-21 years
TRIAD Social Skills Summer Camp
University School of Nashville
Nashville, TN
Phone: (615) 321-8761
Toll-Free: (615) 327-9029
E-mail: gretchen.herbert@vanderbilt.edu
Website: http://kc.vanderbilt.edu/site/services/disabilityservices/campsandactivities.aspx

TRIAD is dedicated to providing a fun, structured camp environment in which all children can learn and have successful interactions with their peers. Children with typical development who are between the ages of 7 and 13 are invited to participate in camp. These special peers serve as models for appropriate social and communication behaviors and as interactive partners for the campers with autism while also participating in fun camp activities..


Resources for: Spanish - Adults
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Books

Desarrollo y deficit
By Vicky Lewis
Barcelona, Spain: PAIDOS, 1987.
Library of Congress Number: RJ506.D68L49 1991
Category: Educational and Community Issues  
Sub-Category: Specific Chronic Health Condition  

Ceguera, sordera, deficit motor, sindrome de Down, autismo.

Ninos Autistas: Guia Para Padres, Terapeutas y Educadores
By Michael D. Powers
Col. Pedro Maria Anaya, C.P. Mexico: Editorial Trillas, 2001.
Library of Congress Number: RJ506. A9 P6 2001
Category: Specific Chronic Health Condition  

This is the translated version of "Children with Autism: A Parents' Guide" by the same author. This book educates parents of newly diagnosed children with autism and introduces them to the development of a child with autism, giving them practical information to adjust to the new diagnosis. There are also chapters on legal rights and medical problems, and the end of the book provides an appendix, glossary, reading list, and a resource guide.



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