Autism is a neurological brain disorder that is recognizable by a combination of behaviors. Most children are initially identified by delayed speech development. Many children with autism will have a period of normal development until 18 to 30 months, then exhibit delays or regression in language, play, or social interaction. Mounting evidence points to a genetic cause, though there may also be environmental triggers involved for those children with a genetic predisposition for autism. Since all children are able to communicate best with those whom they love, many parents and grandparents are understandably shocked to hear this diagnosis. Others who may have pleaded with doctors and specialists to do more than reassure them of the unusual development of their child are actually relieved to have their fears and concerns validated by a diagnosis. As important as it is to understand what autism IS, it is also important to know what autism is NOT.
• Autism is not a mental illness
• Autism is not the result of poor parenting
• Children with autism are not unruly or spoiled kids who just have a behavior problem
• The vast majority of persons with autism are not savants, like the character portrayed by Dustin Hoffman in the movie Rain Man
• Children with autism are not without feelings and emotions.
• No known psychological factors in the development of the child have been shown to cause autism.
After a diagnosis of autism, most families experience a period of grieving to mourn the loss of the "normal" child they have enjoyed. Once a family is able to accept the diagnosis and proceed with treatment, they will find that there is a very wide variety of information and resources available to help children with autism. The amount of information a family with a new diagnosis must begin to process in order to find their way into the right mix of therapies and interventions for their child can be quite overwhelming. A successful program for a young child with autism will likely be multi-faceted and may include some mix of speech and occupational therapy, applied behavior analysis, and educational interventions. Since there is such a wide range of abilities and needs within the spectrum of autism, there is an equally wide range of appropriate interventions available. Families should educate themselves and align themselves with a medical professional experienced in advocating for children with autism. Just as importantly, families should seek out the support and guidance offered by advocacy organizations such as the Autism Society of Middle Tennessee, and others listed on this Junior League Family Resource Center website. It is very likely that there are support groups available in your own community. Avail yourself of these. No one understands the joys and challenges of raising a child with autism better than another parent. Above all, love your child!! Your child with autism is still the same wonderful and unique person that he was before the diagnosis of autism came along. Learn to enjoy and appreciate the things that make him happy.
While autism is a lifetime condition, with special training, supervision, and support, many adults with autism live and work in the community. Emphasis in education needs to be on helping the child learn ways to communicate and on structuring the environment so that it is consistent with the child's learning style. Speech/language therapy, sensory integration/occupational therapy, and behavior management are important components in an early intervention program. A generation ago, 90% of people with autism in our communities were eventually placed in institutions. Today, even people with autism who exhibit the most severe learning or behavior problems may succeed with instruction and support in normal community settings.
By:
Robin Pearson, M.D., mother to John, age 4 with autism
John Shouse, father to Evan, age 7 with autism
What is Autism?
Autism is a developmental disorder that is present from birth. It occurs in as many as one in five hundred children and is about 3 times more common in boys than girls. There are no medical tests for autism; the diagnosis is based on the presence of a pattern of behavioral symptoms. Children with autism demonstrate difficulty in the areas of social interactions, language and communication skills and behavioral flexibility. Autism is a spectrum disorder, which means that there can be differences in the way it is expressed from child to child, in terms of clinical features as well as severity of symptoms. The specific cause of autism is not yet known, though there is consensus that its origin is neurobiological, rather than emotional. Early identification and intervention for autism have come to be recognized as key components for optimizing outcomes for these children.
By Wendy Stone, Ph.D.
Division of Child Development
Vanderbilt University
Robin Pearson, MD
Community Pediatrician
Goodlettsville, Tennessee
John Shouse
Family Representative
Nashville, Tennessee
Wendy Stone, PhD
Center for Child Development and Research
Vanderbilt University Medical Center
What's New
July 2008: The Vanderbilt Autism Clinic has an Autism Info Line: 615-322-7565
Related Vanderbilt Links
TRIAD: The Treatment and Research Institute for Autism Spectrum Disorders
The Treatment and Research Institute for Autism Spectrum Disorders is dedicated to improving assessment and treatment services for children with autism spectrum disorders and their families while advancing knowledge and training.
TRIAD Social Skills Summer Camp The TRIAD Social Skills Summer Camp is an intensive social skills program for children and adolescents with autism spectrum disorders who are between the ages of 6 and 21 and who have language and reading skills.
Dates: June 11-29, 2007
For more information, call the Vanderbilt Kennedy Center Camp and Art Coordinator at (615) 322-8147 follow the link to their website.
1001 Great Ideas for Teaching and Raising Children with Autism Spectrum Disorders By Ellen Notbohm, Veronica Zysk Arlington, TX: Future Horizons, 2004. Library of Congress Number: RJ506.A9N67 2004; C:2 Category: Specific Chronic Health Condition
1001 Great Ideas is just that, a treasure trove of wonderful ideas and activities! This hope-filled book not only connects the reader to the world of Autism Spectrum Disorders but also provides a multitude of practical solutions to the broad range of challenges that parents and professional face each and every day.
ABA Program Companion, The By J. Tyler Fovel New York, NY: DRL Books, Inc., 2002. Library of Congress Number: LC4717.F68 2002 Category: Specific Chronic Health Condition
The ABA Program Companion is written to help the reader integrate important theory and concepts from Applied Behavior Analysis (ABA) into powerful, practical, and comprehensive educational programming, from assessment through program methodology and evaluation.
Asperger Syndrome & Your Child: A Parent's Guide By Michael D. Powers, Psy.D., Janet Poland New York, NY: HarperCollins, 2002. Pages: 302 Library of Congress Number: RJ506.A9P69 2002 Category: Specific Chronic Health Condition
Powers, a nationally recognized expert on AS, has compiled a comprehensive guide for parents, family members and friends of people with Asperger's Syndrome. The book includes case studies and quotes from children with AS.
An easy-to-read account offering advice on early signs of the disorder, diagnosis, and developing social skills in children.
Asperger Syndrome - What Teachers Need to Know By Matt Winter Philadelphia, PA: Jessica Kingsley, 2003. Library of Congress Number: RC553.A88 W56 2003 Category: Specific Chronic Health Condition
This publication is the ideal starting point for teachers wishing to learn about Asperger Syndrome and how best to work with, help and get the most from a child with AS. The author, a teacher himself, also imparts tips and practical ideas that he has found successful in a school environment.
Asperger Syndrome and Adolescence Practical Solutions for School Success By Brenda Myles, Diane Adreon Shawnee Mission, Kansas: Autism Asperger Publishing Co., 2001. Pages: 227 Library of Congress Number: RC553.A88M94 2001; C:2 Category: Educational and Community Issues
In this book the authors have presented an excellent overview of the challenges that many learners with AS face as they enter their teens. Most important, they offer an array of practical, proved interventions to help address these challenges.
Asperger Syndrome and Difficult Moments By Brenda Smith Myles, Jack Southwick Shawnee Mission, KS: Autism, Asperger Publishing Co., 1999. Library of Congress Number: RC553.A88M973 2005; C:2 Category: Specific Chronic Health Condition
This publication should help anyone living or working with an individual on the spectrum who engages in challenging behavior. It is concise, thoughtful, well-researched and practical.
Asperger Syndrome and Young Children By Theresa Bolick Glouster, MA: Fair Winds Press, 2004. Pages: 235 Library of Congress Number: RJ506.A9B645 2004 Category: Specific Chronic Health Condition
This book is designed for parents and caregivers of children aged three to seven years old with Asperger syndrome. Subjects such as helping a child out the front door without tears, and how to support play dates, friendships and manners are topics covered in this book.
Asperger Syndrome, the Universe and Everything By Ken P. Kerr, Gill Rowley London and Philadelphia: Jessica Kingsley Publishers, 2001. Library of Congress Number: RC553.A88 H35 2001 Category: Specific Chronic Health Condition
Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.
Asperger Syndrome: A Practical Guide for Teachers By Val Cumine, Julia Leach, Gill Stevenson London, IK: David Fulton Publishers, 1998. Library of Congress Number: LC4719.G7 C85 1998 Category: Educational and Community Issues Sub-Category: Educational and Community Issues
This book provides teachers with examples of the characteristics of Asperger's Syndrome, diagnosis, updated theories on education and socialization, and practical applications of the new research. The book includes several useful appendices and charts to help teachers reach children with Asperger's syndrome more effectively.
AUTISM By Heather Miller *Miller-Kuhaneck Bethesda, MD: he American Occupational Therapy Association, 2004. Library of Congress Number: RJ506.A9 A888 2004 Category: Specific Chronic Health Condition
This second edition is a comprehensive resource with updated information on basic research related to several levels of understanding of the complexities of autism. Of special note are several revised and updated chapters providing a timely update and is a necessary volume for any occupational therapist working with children with autism.
Autism & ADHD Diet, The By Barrie Silberberg Naperville, IL: SOURCEBOOKS, INC., 2009. Library of Congress Number: RJ506.A9S545 2009 Category: Nutrition/Weight Management
This publication is a complete guide to the Gluten-Free, Casein-Free Diet which according to the author showed extraordinary results in helping children eliminate many traits associated with autism spectrum disorders, ADHD, celiac disease, and other conditions.
Autism and Asperger Syndrome By Uta Frith New York, NY: Cambridge University Press, 1991. Library of Congress Number: RC553.A88 A83 1991 Category: Specific Chronic Health Condition
The book gives the reader a detailed look into Asperger syndrome from the translation of Asperger's paper to the syndrome in adults. A chapter looks at autism and Asperger syndrome noting the similarities and the differences between the two. The editor has brought together a variety of fascinating phemenological and narrative accounts, of the syndrome and its varied presentations, accounts which are by no means entirely negative, for they show how much adaption and learning and personal development is possible if there is a sensitive understanding of the precise problems involved. This book would be a good textbook for someone wanting to take a deeper look into Asperger syndrome.
Autism Sourcebook, The By Karen Siff Exkorn New York, New York: Harper Collins/Regan, 2005. Library of Congress Number: RJ506.A9E97 2005 Category: Specific Chronic Health Condition
An excellent book. Loaded with practical information, it answers the many, many questions that parents may have.
Comprehensive, balanced, and comassionate - a tremendous resource for parents of children with autism.
Autism Spectrum Disorders By Chantal Sicile-Kira New York, NY: Books Beyond Words, 2004. Library of Congress Number: RC553.A88S566 2004 Category: Specific Chronic Health Condition
A clearly written, well-organized, carefully documented compilation of important information and useful advice. It will provide invaluable help and guidance to parents and professionals alike, especially those who are new to the world of autism. This book is not merely highly recommended-it is indispensable.
Autism Spectrum Disorders from A to Z By Barbara T. Doyle, Emily Doyle Iland Arlington, TX: Future Horizons, 2004. Library of Congress Number: RC553.A88D69 2004 Category: Specific Chronic Health Condition
Well-organized, comprehensive and very pertinent to families of children with autism and the professionals who work with them.
Autistic Children By Lorna Wing New York, NY: Brunner/Mazel, 1985. Category: Specific Chronic Health Condition
Building Bridges Through Sensory Integration By Ellen Yack, Paula Aquilla, Shirley Sutton Las Vegas, NV: Sensory Resources, 1998. Library of Congress Number: QP454.Y33 2002, Copy 2 Category: Specific Chronic Health Condition
This is an excellent resource book that clearly explains sensory systems and sensory integration and how to identify problems in this area for individuals with autism. There are checklists to help identify concerns, and the book is full of practical suggestions for activities for specific difficulties, strategies for challenging behaviours, and adaptations in a variety of settings.
Children With Autism: A Parents' Guide By Michael D. Powers Bethesda, MD: Woodbine House, 2000. Pages: 426 Library of Congress Number: RJ506.A9C45 2000 C:3 Category: Specific Chronic Health Condition
This is a new edition of the classic resource for parents of autistic children. Whether dealing with a new diagnosis or as a guide for the experienced parent this book supports parents in their efforts to provide the brightest possible life for their child. The book is written by leading researchers, clinicians, educators, advocates and attorneys and parents and deals with the medical, social and family impact of autism.
Diagnosis Autism By Lawrence P. Kaplan Draper, UT: Etham Press, 2005. Library of Congress Number: RJ506.A9K35 2005 Category: Specific Chronic Health Condition
This publication is extremely helpful, concise and very practical not only for parents of children with autism, but for all health care practitioners, educators, and the treatment intervention team. The 10-step process can be applied to many disorders.
Early Start for Young Children with Autism/PDD By Kathleen McConnell, Gail Ryser Austin, TX: Pro-Ed, 2006. Library of Congress Number: LC4717.M327 2006 Category: Specific Chronic Health Condition
This book was written to provide teachers, parents, interventionists, therapists, and caregivers with intervention strategies for children aged 2 through 5 with autism or another pervasive development disorder. Intervention programs should begin as soon as the child is suspected of having an autism spectrum disorder. This publication recommends and lists services as necessary for successful intervention.
Freaks, Geeks & Asperger Syndrome By Luke Jackson London, NJ: Jessica Kingsley Publishers, 1988. Library of Congress Number: RJ506.A9J326 2002 Category: Specific Chronic Health Condition
This is a book for adolescents with Asperger Syndrome, written by a thirteen year-old who has a diagnosis of Asperger Syndrome. This book will enhance our understanding, change attitudes and replace break despair with insight and laughter.
Golden Bridge - A Guide to Assistance Dogs, The By Patty Dobbs Gross West Lafayette, Indiana: Purdue University Press, 2006. Library of Congress Number: HV1780.G76 2006 Category: Specific Chronic Health Condition
This is a heartening, practical, and sensitive guide to what an assistance dog can and can't do for the child with autism or other special needs.
Healing the New Childhood Epidemics By Kenneth Bock, Cameron Stauth New York: Random House Publishing, 2007. Library of Congress Number: RJ506.A9B63 2008 Category: Specific Chronic Health Condition
Parents who have children diagnosed with autism, ADHD, allergies or asthma and who wish to help their child with the best nutritional and environmental information available will find this book a valuable resource.
Los Trastornos Del Espectro De Autismo De la A a la Z By Barbara T. Doyle, Emily Doyle Hand Saugus, CA: Distribuido por Emily Hand, Inc., 2005. Library of Congress Number: RJ506.A9D69 2005 Category: Educational and Community Issues
An informative book on autism with the stamp of approval of the Society of Autism. This book is in Spanish. There is also an English book of the same title available in the FRC library.
Making a Difference: Behavioral Intervention for Autism By Catherine Maurice, Gina Green Austin, TX: Pro-ed, 2001. Pages: 221 Library of Congress Number: RJ506.A9M35 2001 Category: Specific Chronic Health Condition
This book has chapters by several different authors whose guiding principal is that the suggestions for treatments and suggestions offered must be backed by credible research and data. While highly technical, this book also offers down-to-earth anecdotes and dialogue that help illustrate the the professional verbage.
Making Sense of Art By Sandra R. Davalos Shawnee Mission, KS: Autism Asperger Publishing Co., 1999. Library of Congress Number: LC3970.D38 1999 Category: Coping
Art activities and experiences offer an important way for children to gain a sense of control and mastery of their environment and to grow in self-expression, self-awareness and self-esteem. This book focuses on helping children with autism and Asperger's create art. This book is organized by grouping the activities under each of the five senses, and has helpful tips related to children on the spectrum.
Making Sense of Sensory Integration By Bob Wiz, Aubrey Lande, Lois Hickman Boulder, CO: Belle Curve Records, Inc., 1998. Length: 75 minutes Library of Congress Number: RJ53.O25 K66 Category: Specific Chronic Health Condition
This a booklet with a companion audio cassette that addresses the concerns parents might have regarding their child with sensory integration disfunction.
The booklet has many helpful checklists and charts to help parents keep track of the nuances of their child's condition. The checklists would also be of interest for discussion with the family's healthcare professionals. Includes a glossary, list of organizations, and references.
Meaningful Exchanges for People with Autism By Joanne Cafiero `Bethesda, MD: Woodbine House, 2005. Library of Congress Number: RC553.A88C34 2005 Category: Specific Chronic Health Condition
The author provides a practical guide to understanding and using Augmentative & Alternative Communication systems for people with ASDS for both parents and professionals. The book gives easy-to-use suggestions and examples to set up opportunities for people with ASDS to learn, share, and participate in school, family, and community life.
Nobody Nowhere: The Extraordinary Autobiography of an Autistic By Donna Williams New York, NY: Avon Books, 1992. Library of Congress Number: RC533.A88 W55 1992; C:2 Category: Specific Chronic Health Condition
This book is an autobiographical account of a lady living with autism. Written in a journal style, which begins and ends in an abrupt fashion. The book gives the reader a moment inside the mind and life of a person who relates differently to the outside world. The author shares the mental turmoil that she faced due to her disease and the situations she found herself in.
OASIS Guide to Asperger Syndrome: Advice, Support, Insight and Inspiration, The By Patricia Romanowski Bashe, Barbara L. Kirby New York, NY: Crown, 2001. Pages: 468 Library of Congress Number: RC553.A88.B37 5 2001 Category: Specific Chronic Health Condition
In the forward by Tony Attwood, Ph.D., he says, "If you have a child with Asperger Syndrome, this book is for you." Romanowski Bashe and Kirby, both parents of Asperger children, describe the joys and frustrations of raising children with AS.
This practical and sympathetic book explains what AS is, how parents can work through accepting the diagnosis, treatments for AS, and transitioning into adulthood.
Out-of-Sync Child Has Fun, The By Carol Stock Kranowitz New York, NY: Penguin Group, 2003. Category: Specific Chronic Health Condition
This is a revised edition of this publication. It includes new activities, along with updated information on which activities are most appropriate for children with coexisting conditions including Asperger's, autism, and more
Overcoming Autism By Lynn K. Koegel New York, NY: Penguin Books, 2004. Library of Congress Number: RJ506.A9K636 2004 Sub-Category: Specific Chronic Health Condition
This is a truly remarkable book, representing the inspired collaboration of a parent and a researcher and shows what can be accomplished through early intervention. It provides helpful, practical interventions, and its organization around symptoms will be particularly helpful for parents.
Parent Survival Manual: A Guide to Crisis Resolution in Autism and Related Developmental Disorders By Eric Schopler New York, NY: Plenum Press, 1995. Pages: 223 Library of Congress Number: RJ506.A9S394 1995 Category: Specific Chronic Health Condition
This book starts with the chapter "Convergence of Parent and Professional Perspectives" which gives many anecdotal solutions parents have implemented to cope with behavioral issues along with a professional viewpoint explaining why the solution was successful. This format is continued throughout the book and creates a very practical resource to help parents find solutions to behavioral problems. Repetitive behavior, communicative, aggression, toileting and hygiene, eating and sleeping and behavior management are all discussed.
Parenting Your Asperger Child By Alan Sohn, Cathy Grayson New York, NY: Penguin Books, 2005. Library of Congress Number: RJ506.A9S645 2005
This book offers practical solutions that enable parents to prepare their children for a fulfilling life of social interaction and success outside the confines of Asperger's syndrome.
Pervasive Developmental Disorders - Diagnosis, Options and Answers By Mitzi Waltz Arlington, TX: Future Horizons, 1999. Library of Congress Number: RJ506.D47W34 1999eb Category: Specific Chronic Health Condition
Complete, easy-to-follow guide to all disabilities on the Autism Spectrum. The author's in-depth discussion will help parents and professionals develop a clear understanding of the issues.
Playing, Laughing and Learning with Children on the Autism Spectrum By Julia Moor London, UK: Jessica Kingsley Publishers, 2002. Library of Congress Number: RJ506.A9M66 2002 Category: Specific Chronic Health Condition
The book is well organized, simply written, and it avoids jargon and technical terminology. It is full of wonderful and practical ideas such as "structuring your day by creating a visual diary" or "picture prompts for playing with toys."
Preparing for Life By Jed Baker Arlington, TX: Future Horizons, Inc., 2005. Library of Congress Number: LC4717.5.B35 2005 Category: Specific Chronic Health Condition
This easy-to-follow resource provides a complete toolbox of social skills and the means to attain them so that students with Autism or Asperger's may approach their futures with excitement rather than anxiety. The author tackles a wide variety of issues faced by individuals across the spectrum, such as perspective-taking, nonverbal communication skills, conversational skills and stress management.
Reaching Out, Joining In: Teaching Social Skills to Young Children with Autism By Mary Jane Weiss, Ph.D., BCBA, Sandra Harris, Ph.D Bethesda, MD: Woodbine House, Inc, 2001. Library of Congress Number: RJ506.A9 G53 2001 Category: Educational and Community Issues
The authors of Reaching Out, Joining in combine sensitivity and pragmatism in this guide to helping children with autism develop social skills. Matter-of-fact and easy to read, this book provides lists of activities and programs to help children develop communication, play, and sequence skills necessary for school.
Reaching the Child with Autism through Art By Toni Flowers Arlington, TX: Future Horizons, 1992. Library of Congress Number: LC4717.F56 1992 Category: Coping
This book offers practical, fun activities to improve tactile/kinesthetic awareness, fine motor skills and concent development. It is as much about sensory development as it is about art. The exercises are easy to follow for teacher and student.
Realizing the College Dream with Autism or Asperger Syndrome By Ann Palmer Philadelphia, PA: Jessica Kingsley Publishers, 2006. Library of Congress Number: RC553.A88.P356 2006 Category: Specific Chronic Health Condition
There's plenty of practical information for parents of a child with atism or Asperger syndrome with college aims.
The author relates her story of helping her high-functioning autistic son through college. She thoroughly addresses questions of self-awareness, disclosure forms. Eric's capacities for self-help, orientation, time management and exploiting resources. This is a story that rings with love and support, and a drive to help Eric achieve his potential through meaningful, appropriate challenges.
Recipes for the Specific Carbohydrate Diet By Raman Prasad Beverly, MA: Quayside Publishing Press, 2008. Library of Congress Number: RC862.I53 P73 2008; C:2 Category: Nutrition/Weight Management
Recipes that are grain-free, lactose-free, and sugar-free. Nutritional help for IBD, celiac disease, autism, cystic fibrosis and other diets.
Right Address...Wrong Planet: Children with Asperger Syndrome Becoming Adults By Gena P. Barnhill Shawnee Mission, KS: Autism Asperger Publishing Company, 2002. Pages: 226 Library of Congress Number: RC553.A88B37 2002 Category: Specific Chronic Health Condition
In this publication, the author takes us along as her family negotiates the fine line between support vs. independence during her son's coming of age. It is a frank, at times moving account of one family's experience, and the reader will learn from their struggles and successes. This book is a long-awaited roadmap for parents of adolescents with Asperger Syndrome and the professionals who work with them.
S.O.S. Social Skills in Our Schools By Michelle A. Dunn Shawnee Mission, Kansas: Autism Asperger Publishing Co., 2006. Library of Congress Number: LC4019.D86 2006 Category: Specific Chronic Health Condition
This publication offers an easy-to-use, practical program for teaching social skills in children ith autism. It is a wonderful resource for parents and professionals.
Siblings of Children with Autism By Sandra L. Harris Bethesda, MD: Woodbine House, 1994. Library of Congress Number: RJ506.A9 H27 1994 Category: Coping
Personal stories begin each chapter of this book placing the reader in the environment and behaviors that will be discussed. Siblings understanding why their brother or sister with autism behaves the way he or she does is explained. One chapter deals with teaching the children not to be afraid of sharing their feelings and then as a family working through their feelings. Another chapter teaches parents how to get their children to play together.
Social Skills Solutions - A Hands-on Manual New York, NY: DRL Books, Inc., 2002. Library of Congress Number: RJ506.A9M35 2002 Category: Coping Sub-Category: Coping
Social skills are the rules and expectations that allow us to connect and be who we are and share who we are. That is why it is so important that we teach these skills to children with autism.
Sometimes I Drive My mom Crazy, But I know She's Crazy About Me By Lawrence Shapiro King of Prussia, PA: The Center for Applied Psychology, Inc., 1993. Library of Congress Number: RJ506.H9S53 1993 Category: Specific Chronic Health Condition
Working together, kids, parents, teachers and other health care professionals can all can find solutions for kids with ADHD. Most importantly, this book should help children see that they are not " weird" or "bad", and that by learning to cope with their difficulties, they can enjoy success.
Son Rise The Miracle Continues By Barry Neil Kaufman Tiburon, California: H. J. Kramer, 1994. Library of Congress Number: RJ506.A9K383 1944 Category: Specific Chronic Health Condition
A three part book that follows Raun's development from a lifeless, non-communicative child on the autism spectrum into an active, loving, verbal little boy. Part Two tells of Raun's development after age four. Part Three delivers a moving account of five other families who became extraordinary when they are guided by the Kaufmans' Son-Rise Program to reach their own "unreachable" children.
Special Diets for Special Kids Two By Lisa Lewis Arlington, TX: Future Horizons, 2001. Library of Congress Number: RJ506.A9L482 2001 Category: Nutrition/Weight Management
New! More great tasting recipes & tips for implementing special diets to aid in the treatment of Autism and Related Developmental Disorders.
Super Skills By Judith Coucouvanis Shawnee Mission, KS: Autism Asperger Publishing Co., 2005. Library of Congress Number: RJ506.A9C68 2005 Category: Coping
Based on a thorough and comprehensive understanding of the unique characteristics of individuals with ASD, the author presents 30 lesson grouped under four types of skills necessary for social success: fundamental skills, social initiation skills, getting along with others, and social response skills.
Teaching Activities for Autistic Children By Eric Schopler Austin, TX: pro-ed, 1979. Category: Educational and Community Issues
Tailoring teaching activities for children with autism at home, in schools, and community environments can be a challenge for parents and caregivers. This book incorporates 296 sample activities that illustrate teaching activities in 10 function areas at various levels of preadolescent development.
Toilet Training for Individuals with Autism or other Developmental Issues By Maria Wheeler, M.Ed. Arlington, TX: Future Horizons, 2007. Pages: 122 Library of Congress Number: RC553.A88 W42 2007; C:2 Category: Coping
This is the second edition of this useful book that has helped many parents of children with autism face the challenge of toilet training. The author provides a detailed list of factors that can create problems, forms of habit training, and ways of overcoming many standard complications. The book includes case studies from other parents who have toilet trained their children with autism.
Understanding Applied Behavior Analysis By Albert J. Kearney London, UK: Jessica Kingsley, 2008. Library of Congress Number: BF637.B4K44 2008 Category: Specific Chronic Health Condition
This introductory guide to Applied Behavior Analysis (ABA) demystifies the basic terminology, and explains the underlying principles and commonly used procedures and programs to help those on the autism spectrum. Clear and reader-friendly, this book is an essential quick reference to ABA and its applications.
Unwritten Rules of Social Relationship Arlington, TX: Future Horizons, 2005. Library of Congress Number: HM686.G73 2005 Category: Specific Chronic Health Condition
The authors use their colorful life stories to explain unwritten rules and patterns of social relationships as seen throught the eyes of people with autism. They create guidelines for living and working with others and illustrate their infinite applications, in even the most complex situations.
Verbal Behavior Approach, The By Mary Lynch Barbera London, UK: Jessica Kingsley, 2007. Library of Congress Number: RJ506.A9 B27 2007 Category: Specific Chronic Health Condition
The Verbal Behavior approach is motivation driven, creating the desire to learn. This step-by-step guide provides an abundance of information about how to help children with autism develop better language and speaking skills.
Way to A, The By Hunter Manasco Shawnee Mission, KS: Autism Asperger Publishing Co., 2006. Library of Congress Number: RJ506.A9M36 2006 Category: Specific Chronic Health Condition
This publication is a wonderfully easy to use program for empowering students to make better choices. It is the kind of resource parents and professionals will find themselves going to again and again.
What did you say? What do you mean? By Jane Welton London, NJ: Jessica Kingsley, 2004. Library of Congress Number: RJ506.A9 W443 2004 Category: Specific Chronic Health Condition
Welcome to the world of metaphor... Any parent or teacher working with Asperger's or autism will find that this book helps to open the doors of imagination for the child in ways that they might not have thought possible. A fun and practical book, which children and grownups can enjoy - and giggle over - together.
Videos
Alphabet: Video Learning Program for Visual Learners, The By Jeffrey Sprecher Muskego, WI: The Special Kids Company, Inc., 1994. Length: 40 minutes Library of Congress Number: LC4704.73.A27 1999 Category: Educational and Community Issues
This video will help teach the alphabet and words to children ages 2-10 with autism, Down syndrome, cerebral palsy, dyslexia, apraxia, and other learning challenges, through a simple, slow and repetitive presentation.
Asperger's Syndrome and High Functioning Autism: Same or Different? By Fred R. Volkmar Vanderbilt University: The John F. Kennedy Center Productions, 1996. Length: 50 Minutes Category: Specific Chronic Health Condition
Dr. Volkmar, a Yale psychiatry professor and one of the nation's leading autism researchers, talks about the differences and similarities between Asperger's syndrome and high-functioning autism. He offers no final answers as to whether or not they are truly the same or different diagnoses, but he does give a history of the diagnoses, description and clinical features of each. He describes the research up to the mid 1990s on both, and he tells about the Social Learning Disability Project, a research project he began at Yale.
Autism and the New Law By Grace M. Hanlon Fair Haven, NJ: Edvantage, 2001. Length: 30 minutes Library of Congress Number: RJ506.A9 A88 Category: Specific Chronic Health Condition
Anthony Edwards of the television show "ER," hosts this program which explains autism, pervasive developmental disorder (PDD) and asperger's syndrome. The effects of legislation (The Advancement of Pediatric Autism Research Act of 2000)are also discussed.
Day By Day: Raising The Child With Autism/PDD By Joan F. Goodman, Susan Hoban New York, NY: Guilford Publications Inc., 1992. Length: 51 minutes Library of Congress Number: RJ506.A9 D3 1992; C:2 Category: Specific Chronic Health Condition
This video features two families- one affected by autism and the other affected by PDD. For each family, the disability and its symptoms, strategies for coping and strategies for accepting the situation are discussed.
Don't Give Up By Jan Nowina-Zarzycki Boston, MA: Fanlight Productions, 1999. Library of Congress Number: RJ506.A9D66 1999 Category: Specific Chronic Health Condition
This video focuses on a year in the life of Adrian, a four-year old who has Autism, and his experiences in a special therapy program. This film is realistic about the financial and emotional costs experienced by his parents and siblings; yet, by the end, Adrian has made a great deal of progress.
OT For Children with Autism, Special Needs & Typical By Britt Collins TRP Yoga, 2007.
This DVD introduces parents to Occupational Therapy and what it can do for a child who has difficulties with organization of behavior and/or Sensory Dysfunction. Parents and caregivers are guide through this program in both clinical and easy to fellow terms.
Say It! Teaching Children with Autism to Talk By Sally Bligh Shawnee Mission, KS: Autism Asperger Publishing Company, 2003. Length: 45 minutes Library of Congress Number: RJ506.A9S29 2003 Category: Specific Chronic Health Condition
This program takes the speech-language pathologist through the process of teaching children first words, to using phrases and sentences and on to being able to converse. Bligh clearly explains the strategies involved in teaching children with autism to talk, as well as demonstrating how to incorporate parents and caregivers in sessions. Along with actual footage of therapy sessions, the video includes segments in which parents explain how Bligh's techniques have been successful in teaching their children to talk.
Scientific American with Alan Alda: Autism Chedd-Angier, 2001. Length: 13 minutes Library of Congress Number: RJ506.A9A86 Category: Specific Chronic Health Condition
This video features children who have been diagnosed as autistic early in childhood. These children are shown in comparison with normal children to demonstrate the differences between teh two.
Understanding Brothers and Sisters on the Autism Spectrum Coultervideo.com Length: 1 hour 30 mins. Library of Congress Number: RJ506.A9U53 2007 Category: Specific Chronic Health Condition
This DVD has four programs for siblings of children on the autism spectrum, geared for different ages. The program for the youngest children features puppets--there's something for all ages, inlcuding parents.
Websites
Autism Research Institute, San Diego http://www.autismresearchinstitute.com Author: The Autism Research Institute (ARI), a nonprofit organization established in 1967
This site has information about causes, diagnosis, and treatment of autism.
This site has been maintained since 1995 by a parent of a child with autism. Included is advice for parents who are told their child has autism, Autism FAQ, book reviews , and research links. In the "Links" Section, the book & publications listings for autism may be of special interest.
Downloadable information packages cover diagnosis, treatment options, education, state-by-state resources. The ASA newsletter, the Advocate is also available.
This site includes fact sheets and information on vaccines and on autism spectrum disorders.
Center for the Study of Autism, Portland Oregon http://www.autism.org Author: The Center for the Study of Autism
Information about autism for parents and professional and information on research related to therapeutic interventions is offered in this site. In addition there is information about autism available in languages other than english. Information on sibling issues, and information on related disorders.
National Institute of Child Health and Human Development http://www.nichd.nih.gov/autism Author: National Institute of Child Health and Human Development
The autism section has a variety of publications available to download including several in Spanish. There are links to news releases, research and related conference information.
This website offers information and resources on mental illnesses and provides news and event updates, information on clinical trials, and funding opportunities. The site contains publications, educational materials, fact sheets, and statistics on mental health issues from autism and depression to social phobias, including a section on child and adolescent mental health. The material is available in English and Spanish.
Community Services
Autism Society of America, Inc. 7910 Woodmont Ave Suite 300 Bethesda, MD 20814-3067 Phone: 301.657.0881 Toll-Free: 800.328.8476 Fax: 301.657.0869 Website: http://www.autism-society.org/
Services of the Autism Society of America include the following:
1) The Autism Society of America offers information and referrals for parents, relatives, teachers, and medical professionals. They respond to over 6,000 requests annually for information about education, research, laws, and programs related to autism.
2) Approximately 200 chapters of the society operate nationwide through volunteer efforts of parents. Services of individual chapters include providing information, referral, and support to families; sharing mutual problems; and working together to advocate for improved services. Many chapters also publish a newsletter and host conferences.
3) The Autism Society of America publishes a national newsletter, Advocate, six times each year. The Advocate reports the latest developments in research and laws, prints interviews with medical and legislative leaders, reviews books, and provides an information exchange. Subscription to the Advocate is available through membership only.
4) The Society has two mail order bookstores, in Michigan and North Carolina, that offer about 100 titles on almost all known aspects of autism.
5) Through the press and public relations the Society relates new developments about autism. They also use National Autism Week (second week in January) to educate the public about the specialized needs of persons with autism.
6) The Society hosts an annual conference early in July for experts and parents to meet and learn more about autism syndrome. The four-day conference includes over 65 workshops and presentations. An average of 1,000 people attend the conference. Day care is provided.
7) The Society has a Government Affairs Committee that works with volunteers to educate lawmakers concerning the needs of those with autism syndrome.
The PAC (Parents of Austic Children) Network meets the 3rd Wednesday of every month from 10:00 A.M. to 12:00 noon at the Autism Society of Middle Tennessee offices, 955 Woodland Street, Nashville, TN 37206. Autism support groups also exist in Clarksville, Lincoln County, Mt. Pulaski, Putnam County, Summer County, and Winchester, TN, as well as in Ft. Campbell, KY. Contact the Society by phone or look on their website.
Sensory Integration Dysfuction Support Group Nashville, TN Phone: 615.662.0587
This support group for parents meets quarterly at the Susan Gray School on Peabody Campus of Vanderbilt University in Nashville, 7-8:30 pm. Please call Susan Johns for details. Free childcare may be available if you call 615-322-8200 for reservations at least one week in advance.
Unlocking Autism 9463 Florida Blvd., Suite D Walker, LA 70785 Phone: 225.665.7270 Fax: 225.665.7547 Website: http://www.unlockingautism.org
Unlocking Autism is a program that provides assistance to people with autism, outside the surrounding area, that need medical care. The organization has partnered with several airlines to offer parents of children with autism help in getting their children to medical appointments in other states. More information and an application are available on the website.
Support Groups
Mothers & Fathers of Autism Spectrum Kids (M.A.S.K) Humphreys County Contact Tennessee Phone: 931-582-6147 E-mail: gts6147@bellsouth.net
This is support group of parents supporting parents who have children with Autism Spectrum.
The Autism Education Center (AEC) is a therapy center for children with Autism. It provides programming that is based on the principles of applied behavior analysis (ABA) utilizing B.F. Skinner's research in verbal behavior.
Regional Services
Autism Society of America, Middle Tennessee Chapter 955 Woodland Street Nashville, TN 37206 Phone: 615.385.2077 Fax: 615.383.1176 E-mail: asmt@tnautism.org Website: http://autismmidtenn.org/
The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum and their families, to be fully included, participating members of their communities through advocacy, public awareness, education, and research related to autism. The Autism Information and Resource Center was created by the Autism Society of Middle Tennessee in 1997 to improve access to autism information and community resources, parent- professional collaboration, and social support for families of persons with autism. Parents, family members, educators, physicians, psychologists, thereapists, and all other interested community members are encouraged to use the Center. Services include: autism orientation (held bi-monthly on the third Thursday of the month; autism education workshops; support groups; newsletter; and community library.
Tennessee Voices for Children 1315 8th Avenue South Nashville, TN 37203 Phone: 615.269.7751 Toll-Free: 800.670.9882 Fax: 615.269.8914 E-mail: TVC@tnvoices.org Website: http://www.tnvoices.org
Tennessee Voices for Children is a statewide organization committed to improving and expanding services related to the emotional and behavioral well-being of children. Families, professionals, and business and government leaders participate in the organization. Tennessee Voices for Children offers parents and caregivers support, education, and information through family support groups, quarterly newsletter, telephone network, statewide conferences on issues dealing with the emotional and behavioral well-being of children for the education and public awareness of families, professionals, and the public. In addition, TVC provides training and technical assistance opportunities, and case-by-case advocacy. The organization has support groups statewide. If interested in participating, contact the office at 615.269.7751 or 1.800.670.9882 for information and referral.
In Nashville, the support groups are held every 2nd Thursday of the month 7:00-8:30 at the Belmont United Methodist Church on Acklen and 21st Ave. In Franklin the support groups are held every 2nd Thursday of the month 6:30-8:00 at Franklin High School at 810 Hillsboro Road.
Activities for Developing Pre-Skill Concepts in Children with Autism By Toni Flowers Austin, TX: Pro-Ed, 1987. Library of Congress Number: LC4717.5.F5 1987 Category: Coping
This is a teacher's handbook for working with children with autism. Step-by-step instructions for each and every activity are provided, along with worksheet activities for the teacher to copy, for their student's use. The book is divided into sections based upon the topic they are trying to teach the child with autism, (e.g. "Auditory development", "concept development", "social development", "speech and language development", and "visual-motor integration").
Activity Schedules for Children with Autism: Teaching Independent Behavior By Lynn E. McClanahan, Patricia J. Krantz Bethesda, MD: Woodbine House, 1999. Library of Congress Number: RJ506.A9M 426 1999 Category: Educational and Community Issues
This book should be wonderful for both parents and teachers of a child with autism; allowing them to help a child keep focused on what he or she is doing. The first chapter takes a person through the thoughts behind the use of an activity schedule, leading to the second chapter, which helps the reader decided if their child is ready to use one. This book has many pictures, examples, and personal stories. In an easy to read writing style this book should be useful to anyone who has a child with autism.
Adolescents on the Autism Spectrum New York, NY: Penguin Group, 2006. Library of Congress Number: RC553.A88S566 2006 Category: Specific Chronic Health Condition
This practical guide offers parents strategies for helping their children, whatever their ability level, through the physical and emotional changes of the teenage years and preparing them for adulthood. This book is highly recommended.
Asperger Syndrome and Difficult Moments By Brenda Smith Myles, Jack Southwick Shawnee Mission, KS: Autism, Asperger Publishing Co., 1999. Library of Congress Number: RC553.A88M973 2005; C:2 Category: Specific Chronic Health Condition
This publication should help anyone living or working with an individual on the spectrum who engages in challenging behavior. It is concise, thoughtful, well-researched and practical.
Asperger Syndrome, the Universe and Everything By Ken P. Kerr, Gill Rowley London and Philadelphia: Jessica Kingsley Publishers, 2001. Library of Congress Number: RC553.A88 H35 2001 Category: Specific Chronic Health Condition
Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.
AUTISM By Heather Miller *Miller-Kuhaneck Bethesda, MD: he American Occupational Therapy Association, 2004. Library of Congress Number: RJ506.A9 A888 2004 Category: Specific Chronic Health Condition
This second edition is a comprehensive resource with updated information on basic research related to several levels of understanding of the complexities of autism. Of special note are several revised and updated chapters providing a timely update and is a necessary volume for any occupational therapist working with children with autism.
Autism Spectrum Disorders from A to Z By Barbara T. Doyle, Emily Doyle Iland Arlington, TX: Future Horizons, 2004. Library of Congress Number: RC553.A88D69 2004 Category: Specific Chronic Health Condition
Well-organized, comprehensive and very pertinent to families of children with autism and the professionals who work with them.
Autism Through The Lifespan: The Eden Model By David L. Holmes Bethesda, MD: Woodbine House, 1998. Library of Congress Number: RC533.A88 H64 1997 Category: Specific Chronic Health Condition
This book gives the reader insight into the Eden program, which has both a school and residence for persons with autism. The results of what the program has found to be successful is compiled in this book, for example Eden's, "zero reject" policy for everybody is shared. In easy to read format with visual diagrams, the outlines of programs, and shared personal stories, this book should be of service to anyone looking for a program to follow.
Autism Treatment Guide By Elizabeth K. Gerlach Eugene, OR: Four Leaf Press, 1996. Library of Congress Number: RJ506.A9 G484 1996 Category: Specific Chronic Health Condition
A mother who has a child with autism wanted to list all of the possible treatments for a child with autism in one book. Each chapter has both a resource guide and suggested reading at the end. The book is arranged according to topics such as dietary interventions, vitamin therapy, anti yeast therapy sensory intergration therapy and the Doman / Decato method, making it easy for parents to look up a topic that they have an interest in.
Behavioral Intervention for Young Children With Autism By Catherine Maurice Austin, TX: PRO-ED, 1996. Library of Congress Number: RJ506.A9 B3427 1996 Category: Specific Chronic Health Condition
Different types of treatment methods and claims are explored at the beginning of this book. Then giving the reader questions to use to evaluate the treatments the authors hope that they will find the one that will be the most beneficial to the child's behaviors. There are chapters related to teaching such as "What to teach", "how to teach" and "who should teach." This book has forms that will assist the teacher when working with a child's behavior. This book will help anyone who wants to begin the ABA (Applied Behavior Analysis) model with a child who has autism.
Does My Child Have Autism? By Wendy L. Stone, Ph.D., Theresa DiGeronimo, M.Ed. San Francisco, CA: Jossey-Bass, 2006. Library of Congress Number: RJ 506.A9.S767 2006 Category: Specific Chronic Health Condition
This early detection and intervention book by one of the foremost experts, and clinicians in the field, provides a guide for parents about what to look for at home at 24 months or even earlier, what to do, and how to get the right kind of help.
Quirky Kids: Understanding and Helping Your Child Who Doesn't Fit In By Perri Klass, MD, Eileen Costello, MD New York, NY: Balletine Press, 2003. Pages: 361 Library of Congress Number: HQ773.K554 2003 Category: Specific Chronic Health Condition
Parents and pediatricians can both benefit from this clearly written, practical no-nonsense book about kids that don't fit the norm. The author shares insights on how to help your child feel secure and grow to their full potential.
Reaching Out, Joining In: Teaching Social Skills to Young Children with Autism By Mary Jane Weiss, Ph.D., BCBA, Sandra Harris, Ph.D Bethesda, MD: Woodbine House, Inc, 2001. Library of Congress Number: RJ506.A9 G53 2001 Category: Educational and Community Issues
The authors of Reaching Out, Joining in combine sensitivity and pragmatism in this guide to helping children with autism develop social skills. Matter-of-fact and easy to read, this book provides lists of activities and programs to help children develop communication, play, and sequence skills necessary for school.
Right from the Start: Behavioral Intervention for Young Children with Autism: A Guide for Parents and Professionals By Sandra L. Harris, Mary Jane Weiss Bethesda, MD: Woodbine House, 1998. Library of Congress Number: RJ506.A9 H269 1998; C:2 Category: Specific Chronic Health Condition
The book has an easy to read style and is given a personal touch by the introduction of a family whose experiences are shared at the beginning of each chapter. This book discusses early behavioral intervention when working with a child who has autism. Educational systems are discussed through several chapters from how to identify a quality program and curriculums for autistic children, to implementing a home based program.
S.O.S. Social Skills in Our Schools By Michelle A. Dunn Shawnee Mission, Kansas: Autism Asperger Publishing Co., 2006. Library of Congress Number: LC4019.D86 2006 Category: Specific Chronic Health Condition
This publication offers an easy-to-use, practical program for teaching social skills in children ith autism. It is a wonderful resource for parents and professionals.
Son Rise The Miracle Continues By Barry Neil Kaufman Tiburon, California: H. J. Kramer, 1994. Library of Congress Number: RJ506.A9K383 1944 Category: Specific Chronic Health Condition
A three part book that follows Raun's development from a lifeless, non-communicative child on the autism spectrum into an active, loving, verbal little boy. Part Two tells of Raun's development after age four. Part Three delivers a moving account of five other families who became extraordinary when they are guided by the Kaufmans' Son-Rise Program to reach their own "unreachable" children.
Special Diets for Special Kids: Understanding and Implementing Special Diets to Aid in the Treatment of Autism and Related Developmenatal Disorders By Lisa Lewis Arlington, TX: Future Horizons Inc., 1998. Library of Congress Number: RJ53.D53 L48 1998 Category: Nutrition/Weight Management
This book begins with an introduction to autism and the author's personal experience of living with her son who developed autism around age two. Several special diets are mentioned but the book focuses on a gluten/casein free diet aimed at helping autistic children. There are over 150 recipes listed with detailed instruction. There is also a chapter of Q/A and a listing of web sites that are related to the topics discussed.
Teaching Children with Autism: Strategies for Initiating Positive Interactive and Improving Learning Opportunities By Robert L. Koegel, Lynn K. Koegel Baltimore, MD: P. H. Book, 1995. Library of Congress Number: LC4717.5.T42 1995 Category: Educational and Community Issues
This book is for the professionals who will be teaching children by using behavior interventions for children with autism. With each chapter written by a professional, engaged in autism research, the book is a valuable resource for encouraging social and language communications in children with autism. Topics such as school placement, child friendship developing child autonomy and support for families create a wide breadth of helpful information.
Teaching Children with Autism: Strategies to Enhance Communication and Socialization By Kathleen Ann Quill New York, NY: Delmar Publishers, 1995. Library of Congress Number: LC4718.T43 1995 Category: Educational and Community Issues
An easy to read writing style coupled with a summary section in each chapter and appendix which makes this book perfect for the parents of a newly diagnosed child with autism. The overall book is divided into three sections beginning with "Perspectives on Autism," "Communication Enhancement and "Promoting Socialization."
Teaching Spontaneous Communication to Autistic and Developmentally Handicapped Children By Linda R. Watson, Catherine Lord, Bruce Schaffer, Eric Schopler Austin, TX: Pro-ed, 1991. Library of Congress Number: LC4717.T43 1991 Category: Educational and Community Issues
Written for the teachers of autistic children and for parents who want to increase their child's verbal communication; this book will be a useful aid. Beginning with an overview of the model that is used to teach children with autism or some other similar disorder the book then describes the issues related to their conditions. The authors give assessment tools to use with children who might have autism. Then the book helps the teacher/parent identify goals and educates them on strategies to accomplish the goals that were chosen. The book has a series of specific goals that teachers and parents may want to work on also providing pointers for achieving them.
Treasure Chest of Behavioral Strategies for Individuals with Autism, A By Beth Fouse, Maria Wheeler Arlington, TX: Future Horizons, 1997. Library of Congress Number: RC553.A88 F68 1997 Category: Specific Chronic Health Condition
This book is easy to read. The chapters have separate topics allowing the reader to go to their desired subject matter. The book gives four different icons to notice when reading the book, which notes (e.g. single important concepts, major concepts with lists, cautions to look out for, and case examples). This is a wonderful resource teaching parents the fundamentals on raising their child with autism.
Understanding and Teaching Children with Autism By Rita Jordan, Stuart Powell New York, NY: John Wiley, 1995. Library of Congress Number: RJ506.A9 J67 1995 Category: Educational and Community Issues
This book will be a useful tool for educators and those working with a child who has autism. Focusing the mental and social development of the child the authors give great detail for anyone wishing to learn how to effectively teach their special needs students. The behavioral issues that a child with autism present, are addressed in several chapters.
Verbal Behavior Approach, The By Mary Lynch Barbera London, UK: Jessica Kingsley, 2007. Library of Congress Number: RJ506.A9 B27 2007 Category: Specific Chronic Health Condition
The Verbal Behavior approach is motivation driven, creating the desire to learn. This step-by-step guide provides an abundance of information about how to help children with autism develop better language and speaking skills.
World of the Autistic Child: Understanding and Treating Autistic Spectrum Disorders, The By Bryna Siegel New York, NY: Oxford University Press, 1996. Pages: 351 Library of Congress Number: RJ506.A9 S53 1996; C:2 Category: Specific Chronic Health Condition
The book is divided into two sections beginning with "What it means to have autism" and "Treatment resources". The first section defines autism, relates the development of social and language skills in a typical child with autism, and looks at how the family copes with the diagnosis. The second section shows the reader how to find resources and shares the importance of early intervention. There are multiple chapters related to the education of a child with autism from choosing the right classroom to suggested teaching methods for the child.
You're Going to Love This Kid By Paula Kluth Baltimore, MD: Paul H. Brookes Publishing, 2003. Pages: 263 Library of Congress Number: LC4718.K58 2003 Category: Educational and Community Issues
This book is a meaningful and dynamic must read for anyone blessed to know a learner with autism. It brings to life a learner-centered, multi-dimensional, perspective for effectively educating kids with autism, their peers and their teams. The key factors of motivation, flexibility, patience and the manner in which behavior and learning are conceptualized are just as important and neccesary for parents as they are for teachers.
Videos
Don't Give Up By Jan Nowina-Zarzycki Boston, MA: Fanlight Productions, 1999. Library of Congress Number: RJ506.A9D66 1999 Category: Specific Chronic Health Condition
This video focuses on a year in the life of Adrian, a four-year old who has Autism, and his experiences in a special therapy program. This film is realistic about the financial and emotional costs experienced by his parents and siblings; yet, by the end, Adrian has made a great deal of progress.
Say It! Teaching Children with Autism to Talk By Sally Bligh Shawnee Mission, KS: Autism Asperger Publishing Company, 2003. Length: 45 minutes Library of Congress Number: RJ506.A9S29 2003 Category: Specific Chronic Health Condition
This program takes the speech-language pathologist through the process of teaching children first words, to using phrases and sentences and on to being able to converse. Bligh clearly explains the strategies involved in teaching children with autism to talk, as well as demonstrating how to incorporate parents and caregivers in sessions. Along with actual footage of therapy sessions, the video includes segments in which parents explain how Bligh's techniques have been successful in teaching their children to talk.
School Inclusion of a High Functioning Students with Autism By Indiana Resource Center for Autism Bloomington, IN: Indiana University, 1993. Library of Congress Number: LC4718.5.I6 S36 1993 Category: Educational and Community Issues
This video discusses a case study of a child with autism and their progression from 4 years of age through the 6th grade. The video defines what it is like to live with autism and the reactions of everyone when the child integrates into their social environments. Difficulties encountered in making friends and handling social situations appropriately are shared in the video along with the advancements the child makes from 1st grade through 6th grade, including the adaptations made to the school environment to help the autistic child. A teacher expresses how she integrates the autistic child in the class both socially and academically. A principle discusses how the child is integrated in the school environment and in after school tutoring.
Websites
American Academy of Pediatrics Home Page http://www.aap.org Author: American Academy of Pediatrics
This Website provides information on all areas of pediatrics, including medical news updates. The site can be searched for specific topics and provides a number of articles on vaccines and vaccination safety.
Autism Research Institute, San Diego http://www.autismresearchinstitute.com Author: The Autism Research Institute (ARI), a nonprofit organization established in 1967
This site has information about causes, diagnosis, and treatment of autism.
Downloadable information packages cover diagnosis, treatment options, education, state-by-state resources. The ASA newsletter, the Advocate is also available.
Center for the Study of Autism, Portland Oregon http://www.autism.org Author: The Center for the Study of Autism
Information about autism for parents and professional and information on research related to therapeutic interventions is offered in this site. In addition there is information about autism available in languages other than english. Information on sibling issues, and information on related disorders.
National Network for Immunization Information http://www.immunizationinfo.org Author: National Network for Immunization Information
Extensive information and srticles related to autism and immunization can be found on this site.
T.E.A.C.H.H. Treatment and Education of Autistic and related Communication handicapped Children http://www.teacch.com/ Author: University of North Carolina
This site offers information on autism, communication approaches, educational approaches, a demonstration pre-school model and downloadable publications. There is also a section on research and training opportunities.
Vaccine Education Center at The Children's Hospital of Philadelphia http://www.vaccine.chop.edu Author: The Children's Hospital of Philadelphia
The Vaccine Education Center has many dowloadable articles regarding autism and vaccines.
Community Services
Autism Society of America, Inc. 7910 Woodmont Ave Suite 300 Bethesda, MD 20814-3067 Phone: 301.657.0881 Toll-Free: 800.328.8476 Fax: 301.657.0869 Website: http://www.autism-society.org/
Services of the Autism Society of America include the following:
1) The Autism Society of America offers information and referrals for parents, relatives, teachers, and medical professionals. They respond to over 6,000 requests annually for information about education, research, laws, and programs related to autism.
2) Approximately 200 chapters of the society operate nationwide through volunteer efforts of parents. Services of individual chapters include providing information, referral, and support to families; sharing mutual problems; and working together to advocate for improved services. Many chapters also publish a newsletter and host conferences.
3) The Autism Society of America publishes a national newsletter, Advocate, six times each year. The Advocate reports the latest developments in research and laws, prints interviews with medical and legislative leaders, reviews books, and provides an information exchange. Subscription to the Advocate is available through membership only.
4) The Society has two mail order bookstores, in Michigan and North Carolina, that offer about 100 titles on almost all known aspects of autism.
5) Through the press and public relations the Society relates new developments about autism. They also use National Autism Week (second week in January) to educate the public about the specialized needs of persons with autism.
6) The Society hosts an annual conference early in July for experts and parents to meet and learn more about autism syndrome. The four-day conference includes over 65 workshops and presentations. An average of 1,000 people attend the conference. Day care is provided.
7) The Society has a Government Affairs Committee that works with volunteers to educate lawmakers concerning the needs of those with autism syndrome.
High Hopes is a therapeutic pre-school and resource center for families who have young children with special needs. The agency offers:
1) Infant stimulation that consists of individual therapeutic sessions focusing on teaching parents and other care givers to encourage the baby's growth in all areas of development. High Hopes works with family members by providing the support and information they need to adjust to the special needs of their baby.
2) Pre-school classes that focus on learning through play and discovery.
3) Therapeutic services to children including
*Occupational Therapy
*Physical Therapy
*Speech and Language Pathology
*therapeutic listening
*feeding therapies
4) Extended care services open to the community
5)Offers a strength training gym where adolescents with special needs have access to weight training equipment
Outlook Nashville provides early intervention services for children up to the age of three with disabilities. Services include:
1) Home-based, center-based, and day care support.
2) Full-day preschool services. It also includes early intervention, childcare, Parent support for infants, assessment, and case management.
3) Family programs and speakers
4) Consultant therapy services.
Through three major clinics, the Bill Wilkerson Center provides diagnostic and therapeutic services to persons of all ages who have speech, language, hearing, or neurological disorders such as stuttering, apraxia, autism or sensory integration dysfunction. The Wilkerson Center offers the only communication based intervention program for preschoolers in the Middle Tennessee area. The program works in collaboration with children, families, their primary doctors, and the local school systems. Therapists conduct evaluations, provide speech therapy and help children gain communication and behavioral skills.
Resources for: Perspectives of the Family and Autobiographical Material
All About My Brother By Sarah Peralta Shawnee Mission, KS: APC, 2002. Library of Congress Number: RJ506.A9P47 2002 Category: Specific Chronic Health Condition
This book comes from the heart of a little girl who has been involved in helping her younger brother with autism to learn. The book is a testament to the parental support that has fostered a strong positive relationship between Sarah and her brother. Even at a very young age, Sarah has become a strong advocate for her brother and for other children with autism.
Asperger Syndrome, the Universe and Everything By Ken P. Kerr, Gill Rowley London and Philadelphia: Jessica Kingsley Publishers, 2001. Library of Congress Number: RC553.A88 H35 2001 Category: Specific Chronic Health Condition
Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.
Autism & ADHD Diet, The By Barrie Silberberg Naperville, IL: SOURCEBOOKS, INC., 2009. Library of Congress Number: RJ506.A9S545 2009 Category: Nutrition/Weight Management
This publication is a complete guide to the Gluten-Free, Casein-Free Diet which according to the author showed extraordinary results in helping children eliminate many traits associated with autism spectrum disorders, ADHD, celiac disease, and other conditions.
Autism and the God Connection By William Stillman Naperville, Illinois: Sourcebooks, Inc., 2006. Library of Congress Number: RJ506.A9S75 2006 Category: Specific Chronic Health Condition
A fascinating and timely exploration of the special sensitivities and spiritual connections of people with autism.
Autism Life Skills By Chantal Sicile-Kira New York, NY: Penguin Group, 2008. Library of Congress Number: RJ506.A9S536 2008 Category: Specific Chronic Health Condition
The author explains important life skills topics in a clear and concise manner. The book provides insight into many of the challenges faced by teenagers and adults on the autism spectrum.
Autism Sourcebook, The By Karen Siff Exkorn New York, New York: Harper Collins/Regan, 2005. Library of Congress Number: RJ506.A9E97 2005 Category: Specific Chronic Health Condition
An excellent book. Loaded with practical information, it answers the many, many questions that parents may have.
Comprehensive, balanced, and comassionate - a tremendous resource for parents of children with autism.
Autism Spectrum Disorders from A to Z By Barbara T. Doyle, Emily Doyle Iland Arlington, TX: Future Horizons, 2004. Library of Congress Number: RC553.A88D69 2004 Category: Specific Chronic Health Condition
Well-organized, comprehensive and very pertinent to families of children with autism and the professionals who work with them.
Boy Who Loved Windows: Opening the Heart and Mind of a Child Threatened with Autism, The By Patricia Stacey Cambridge, MA: Da Capo Press, 2003. Pages: 299 Library of Congress Number: RJ506.A9S72 2003 Category: Coping
This is an autobiographical account of one family's five year journey to find treatment for their autistic son, Walker. Told at six months that Walker may never walk or talk, the author and her husband are unwilling to accept this grim prognosis and instead seek out different opinions and treatment options. This book documents one families journey to provide their autistic son with an emotionally full life, and the obstacles and challenges they encounter along the way.
Dancing in the Rain: Stories of Exceptional Progress by Parents of Children with Special Needs By Annabel Stehli Westport, CT: Georgianna Organization, Inc, 1995. Pages: 293 Library of Congress Number: RJ507.D48D36 1995 Category: Coping
Dancing in the Rain is a collection of stories written by the parents of children with various learning disabilities, developmental delays, and autism. Each parent shares their child's story and the strategies they used to cope with their child's individual disability.
Developing Talents By Temple Grandin, Kate Duffy Shawnee Mission, KS: Autism Asperger Publishing Co., 2004. Library of Congress Number: HV3005.G73 2004 Category: Specific Chronic Health Condition
This book is written with a conversational directness to aid the young person with Autism and Asperger's develop their life goals and skills. The author's illustrations from her own youthful exeriences are convincing and will inspire hoope and impart practical guidance.
El sindrome de Asperger By Tony Attwood London, England: Jessica Kingsley, 1998. Category: Specific Chronic Health Condition
a sensibilidad, los conocimientos y el sentido comun de Tony Attwood a la hora de describir a los individuos que sufren el sindrome de Asperger constituyen la base de este magnifico libro. Attwood habla con absoluta claridad de los problemas que tienen los ninos, sus familias, sus profesores y todos los profesionales relacionados con ellos.
Let Me Hear Your Voice By Catherine Maurice Fawcett Book/Random House, 1993. Library of Congress Number: RJ506.A9M39 1994 Category: Coping
Let Me Hear Your Voice: A Family's Triumph Over Autism is a book that can help inspire other families to effectively cope and maximize the potential of their autistic child within their family, school and community.
Living with Autism: The Parents' Stories By Kathleen M. Dillon Boone, NC: Parkway Publishers, 1995. Library of Congress Number: RJ506.A9 D55 1995 Category: Specific Chronic Health Condition
The first chapter gives an overall look at autism centering on how it affects the parents and the family. The next 6 chapters are each a story told from the parents' perspective about their child who has autism. The stories give the reader a glimpse into what having a child with autism is like, sharing the laughter and pain. At the end of the book a questionnaire is provided for the parents regarding their child. There are also 10 suggestions for the parents from the author.
Making Peace With Autism By Susan Senator Boston, MA: Trumpeter Books, 2005. Library of Congress Number: RJ506.A9S457 2005 Category: Coping
This is one family's story of their journey, struggles, and unexpected joys and strengths garnered in helping their autistic child maximize his potential.
News from the Border By Jane Taylor McDonnell New York, NY: Ticknor & Fields, 1993. Library of Congress Number: RJ506.A9M43 1993 Category: Specific Chronic Health Condition
This author has made a valuable addition to the growing literature about (and by) high-functioning people with autism. She offers an intimate portrait of autism that is refreshingly honest and surprisingly hopeful. "People with autism can learn to - cope - and their families can learn to accept."
Playing, Laughing and Learning with Children on the Autism Spectrum By Julia Moor London, UK: Jessica Kingsley Publishers, 2002. Library of Congress Number: RJ506.A9M66 2002 Category: Specific Chronic Health Condition
The book is well organized, simply written, and it avoids jargon and technical terminology. It is full of wonderful and practical ideas such as "structuring your day by creating a visual diary" or "picture prompts for playing with toys."
Somebody Somewhere By Donna Williams New York, NY: Times Books, 1994. Library of Congress Number: RC553.A88W555 1994 Category: Specific Chronic Health Condition
This is the story of learning to build a somewhere out of a nowhere and a somebody out of a nobody. It is an astonishing effort by a person with autism to document what life is like from the inside looking out and the transition from a severely withdrawn child to college educated writer.
Son Rise The Miracle Continues By Barry Neil Kaufman Tiburon, California: H. J. Kramer, 1994. Library of Congress Number: RJ506.A9K383 1944 Category: Specific Chronic Health Condition
A three part book that follows Raun's development from a lifeless, non-communicative child on the autism spectrum into an active, loving, verbal little boy. Part Two tells of Raun's development after age four. Part Three delivers a moving account of five other families who became extraordinary when they are guided by the Kaufmans' Son-Rise Program to reach their own "unreachable" children.
Ten Things Every Child With Autism Wishes You Knew By Ellen Notbohm Arlington, TX: Future Horizons, 2005. Library of Congress Number: RC553.A88N68 2005 Category: Specific Chronic Health Condition
The recommendation here is that every parent, teacher, social worker, therapist, and physician should have this succint and informative book in their back pocket. This book is written with both humor and compassion by a mother who has had personal experiences raising an autistic child.
There's a Boy in Here By Judy Barron, Sean Barron New York, NY: Simon & Schuster, 1992. Library of Congress Number: RC553.A88.B37 1992 Category: Coping
Mother and son share the story of living with and eventually recovering from autism. Sean who was diagnosed early in life with autism shares what he was feeling and how he looked at the world. His mother Judy gives an open account of a situation and then Sean will give his account of what he was thinking during the same experience. Sean and his family moved from Ohio to California and this move allowed Sean an opportunity to attend a new school, which ultimately aided his emergence from autism.
Thinking in Pictures: And Other Reports from My Life with Autism By Temple Grandin New York, NY: Doubleday, 1995. Library of Congress Number: RC553.A88.G74 1995; C:2 Category: Coping
Temple Grandin is an assistant professor of animal sciences at Colorado State University, and the designer of livestock handling facilities in both the United States and abroad. This is an autobiographic account of her life growing up with autism for more than 50 years. Ms. Grandin shares what her life was like as a teen and what prompted the development of the "squeeze machine". Sharing the steps she takes to appear as normal as possible, she allows the reader to look into her mind and see the pictures in her head.
Toilet Training for Individuals with Autism or other Developmental Issues By Maria Wheeler, M.Ed. Arlington, TX: Future Horizons, 2007. Pages: 122 Library of Congress Number: RC553.A88 W42 2007; C:2 Category: Coping
This is the second edition of this useful book that has helped many parents of children with autism face the challenge of toilet training. The author provides a detailed list of factors that can create problems, forms of habit training, and ways of overcoming many standard complications. The book includes case studies from other parents who have toilet trained their children with autism.
Verbal Behavior Approach, The By Mary Lynch Barbera London, UK: Jessica Kingsley, 2007. Library of Congress Number: RJ506.A9 B27 2007 Category: Specific Chronic Health Condition
The Verbal Behavior approach is motivation driven, creating the desire to learn. This step-by-step guide provides an abundance of information about how to help children with autism develop better language and speaking skills.
Your Life is Not a Label By Jerry Newport, Ron Bass Arlington, TX: Future Horizons, Inc., 2001. Library of Congress Number: RJ506.A9 N49 Category: Coping
This insightful and inspiring book offers teens and adults with Asperger’s Syndrome common tips and recommendations for leading normal and happy lives in spite of difficulties associated with living with Asperger’s or High-Functioning Autism. The humorous and encouraging outlook makes the book an enjoyable read, and the poignant understanding and advice makes it an immensely useful tool for life.
Videos
Don't Give Up By Jan Nowina-Zarzycki Boston, MA: Fanlight Productions, 1999. Library of Congress Number: RJ506.A9D66 1999 Category: Specific Chronic Health Condition
This video focuses on a year in the life of Adrian, a four-year old who has Autism, and his experiences in a special therapy program. This film is realistic about the financial and emotional costs experienced by his parents and siblings; yet, by the end, Adrian has made a great deal of progress.
Thinking in Pictures and Other Reports from a life in Autism By Temple Grandin Vanderbilt University: The John F. Kennedy Center Productions, 1996.
Temple Grandin, A high functioning adult with autism, gives a talk about her autism and her experiences growing up with it. She emphasizes the importance of family support and interacting with others to help promote development. She uses a series of slides to show how children with autism process sound and sight differently.
All cats have asperger syndrome By Kathy Hoopmann London,, UK: Jessica Kingsley, 2006. Library of Congress Number: RJ506.A9H65 2006 Category: Specific Chronic Health Condition
Through the harmony of words and photos, Hoopman's clever sense of humour opens up the world of Asperger to reveal the potential and the individuality that is so often misunderstood.
0-0 years
Asperger Syndrome - What Teachers Need to Know By Matt Winter Philadelphia, PA: Jessica Kingsley, 2003. Library of Congress Number: RC553.A88 W56 2003 Category: Specific Chronic Health Condition
This publication is the ideal starting point for teachers wishing to learn about Asperger Syndrome and how best to work with, help and get the most from a child with AS. The author, a teacher himself, also imparts tips and practical ideas that he has found successful in a school environment.
0-0 years
Meaningful Exchanges for People with Autism By Joanne Cafiero `Bethesda, MD: Woodbine House, 2005. Library of Congress Number: RC553.A88C34 2005 Category: Specific Chronic Health Condition
The author provides a practical guide to understanding and using Augmentative & Alternative Communication systems for people with ASDS for both parents and professionals. The book gives easy-to-use suggestions and examples to set up opportunities for people with ASDS to learn, share, and participate in school, family, and community life.
0-0 years
Preparing for Life By Jed Baker Arlington, TX: Future Horizons, Inc., 2005. Library of Congress Number: LC4717.5.B35 2005 Category: Specific Chronic Health Condition
This easy-to-follow resource provides a complete toolbox of social skills and the means to attain them so that students with Autism or Asperger's may approach their futures with excitement rather than anxiety. The author tackles a wide variety of issues faced by individuals across the spectrum, such as perspective-taking, nonverbal communication skills, conversational skills and stress management.
0-0 years
Realizing the College Dream with Autism or Asperger Syndrome By Ann Palmer Philadelphia, PA: Jessica Kingsley Publishers, 2006. Library of Congress Number: RC553.A88.P356 2006 Category: Specific Chronic Health Condition
There's plenty of practical information for parents of a child with atism or Asperger syndrome with college aims.
The author relates her story of helping her high-functioning autistic son through college. She thoroughly addresses questions of self-awareness, disclosure forms. Eric's capacities for self-help, orientation, time management and exploiting resources. This is a story that rings with love and support, and a drive to help Eric achieve his potential through meaningful, appropriate challenges.
0-0 years
ABA Program Companion, The By J. Tyler Fovel New York, NY: DRL Books, Inc., 2002. Library of Congress Number: LC4717.F68 2002 Category: Specific Chronic Health Condition
The ABA Program Companion is written to help the reader integrate important theory and concepts from Applied Behavior Analysis (ABA) into powerful, practical, and comprehensive educational programming, from assessment through program methodology and evaluation.
0-0 years
Social Skills Picture Book, The By Jed Baker Arlington, TX: Future Horizons, 2001. Library of Congress Number: LC4717.5.B34 2001 Category: Specific Chronic Health Condition
Students who are visual learners such as children with Autism or Asperger's, will benefit from this picture book that will help them learn appropriate social skills such as conversation, play, emotion management and empathy.
3-8 years
Taking Autism to School By Adreanna Edwards, Tom Dineen Plainview, NY: JayJo Books, LLC, 2001. Library of Congress Number: RJ506.A9 E38 2001 Category: Specific Chronic Health Condition
This simple basic book can help to explain autism to the friends, classmates, siblings and teachers of a child with autism. Bright illustratoins, easy to read text are complemented by quizzes for children and tips for teachers.
3-8 years
Tobin Learns to Make Friends By Diane Murrell Arlington, TX: Future Horizons, Inc., 2001. Library of Congress Number: RJ506.A9 M87 2001 Category: Coping
This metaphorical story of how Tobin the Train learns to make friends can be used to teach children early social skills and interaction with other children. It is also particularly useful for teaching children with Asperger’s Syndrome or High-Functioning Autism.
3-9 years
Way to A, The By Hunter Manasco Shawnee Mission, KS: Autism Asperger Publishing Co., 2006. Library of Congress Number: RJ506.A9M36 2006 Category: Specific Chronic Health Condition
This publication is a wonderfully easy to use program for empowering students to make better choices. It is the kind of resource parents and professionals will find themselves going to again and again.
4-0 years
Making Sense of Art By Sandra R. Davalos Shawnee Mission, KS: Autism Asperger Publishing Co., 1999. Library of Congress Number: LC3970.D38 1999 Category: Coping
Art activities and experiences offer an important way for children to gain a sense of control and mastery of their environment and to grow in self-expression, self-awareness and self-esteem. This book focuses on helping children with autism and Asperger's create art. This book is organized by grouping the activities under each of the five senses, and has helpful tips related to children on the spectrum.
4-8 years
Asperger's Huh?: A Child's Perspective By Rosina, G. Schnurr Ontario, Canada: Anisor Publicshing, 1998. Library of Congress Number: RJ506.A9 S34 1998 Category: Specific Chronic Health Condition
Sensitive and understanding, this book looks at the life and experiences of a young boy living with Asperger’s Syndrome. The first-person view provides information and insight into common thoughts and motivations of children with Asperger’s.
4-8 years
Ian's Walk: A Story about Autism By Laurie Lears, Karen Ritz Morton Grove, IL: Albert Whitman & Company, 1998. Library of Congress Number: RJ506.A9 L43 1998; C:2 Category: Coping
This book is described as an excellent way for parents and teachers to explain an autistic child to others in a compassionate and informative story. While the book is geared towards young children it is good for all ages. The story is told from the perspective of the older sister and conveys the many emotions sibling of an autistic child might face.
4-10 years
Everybody is Different: A Book for Young People Who Have Brothers or Sisters with Autism By Fiona Bleach London,UK: National Autistic Society, 2001. Library of Congress Number: RJ506.A9 B54 2001 Category: Coping
This detailed, but simple book is an excellent resource for children who have a sibling with autism. The book describes autism, and explains how brothers and sisters with autism may behave, and how the child can love and help their sibling with autism.
4-10 years
My Brother, Matthew By Mary Thompson Bethesda, MD: Woodbine House, 1993. Library of Congress Number: HV888.T56 1992 ; C:2 Category: Coping
Through the experiences of a young boy whose younger brother is born with disabilities, the author examines ways to relate to disabled family members and teaches families, especially children, how to relate and build relationships with disabled family members. This book also explores the feelings and thought processes a sibling might go through while discovering that their brother or sister has disabilities.
4-10 years
Special People, Special Ways By Arlene Maguire Arlington, TX: Future Horizons, Inc., 2000. Library of Congress Number: HV1568.M34 1999 Category: Specific Chronic Health Condition
This fun, easy-to-read book explains the importance of accepting peers with disabilities as they are and helps children with and without disabilities to find an recognize their many similarities instead of separating because of differences in order to help them learn to build relationships.
5-up
When My Worries Get Too Big! By Kari Dunn Buron Shawnee Mission, KS: Autism Asperber Publishing Co., 2006. Library of Congress Number: RJ506.A58B87 2006 Category: Specific Chronic Health Condition
This child-friendy book teaches relaxation to children with autism spectrum disorders. Engaging and easy to read, the book is personalized as the child develops his or her own self-calming strategies.
5-6 years
I Love My Brother! A Preschooler's View of Living with a Brother Who Has Autism By Connor Sullivan Statham, NH: Phat Art Four, 2001. Library of Congress Number: RJ506.A9 S85 2001 Category: Coping
This book offers an insightful and informative first person view of the experience of life with an autistic sibling in a format that is easy to present to young children.
5-8 years
Russell is Extra Special By Charles A. Amenta III New York, NY: Magination Press, 1992. Library of Congress Number: RJ506.A9 A63 1992; C:2 Category: Specific Chronic Health Condition
Russell, who has autism, is the oldest of 3 brothers that live at home with their mother and father. The book's author is Russell's father Charles A. Amenta III, he is a medical doctor. Doctor Amenta hopes anybody that reads this book, "Will become educators or researchers studying autism." The book provides a real glimpse into the life of a child with autism, the photographs are not staged and the text is a first hand account of Russell's life.
5-10 years
Sometimes My Brother By Angie Healy Arlington, TX: Future Horizons, 2005. Library of Congress Number: RJ506.A9H43 2005 Category: Specific Chronic Health Condition
Three-year-old Foster explains his perspective of his older brother, Gavin, who has autism. This adorable picture book shows readers the challenges the boys face and the obstacles they overcome.
5-10 years
Trevor Trevor By Diane Twatchtman-Cullen, Diedre Sasson Higganum, CT: Starfish Speciality Press, LLC, 1998. Library of Congress Number: RJ506.A9 T87 1998 Category: Coping
Particularly helpful for explaining autism and Asperger’s Syndrome to classes and young children, this book tells the metaphorical story of Trevor, a boy with special needs, as he experiences school and learns to make friends. It teaches children to accept one another’s differences. The book also comes with two paperdolls to use to act out the events in Trevor’s life.
5-12 years
Autism and Me By Ousie Shapiro Morton Grove, IL: Albert Whitman & Co., 2009. Library of Congress Number: RJ506.A9S523 2009 Category: Specific Chronic Health Condition
The essays contained in this publication are written by siblings of children with autism. This inspiring book shows how children, and all of us, can grow in wisdom, acceptance and love in these circumstances.
6-0 years
All About My Brother By Sarah Peralta Shawnee Mission, KS: APC, 2002. Library of Congress Number: RJ506.A9P47 2002 Category: Specific Chronic Health Condition
This book comes from the heart of a little girl who has been involved in helping her younger brother with autism to learn. The book is a testament to the parental support that has fostered a strong positive relationship between Sarah and her brother. Even at a very young age, Sarah has become a strong advocate for her brother and for other children with autism.
6-up
BaJ and the Word Launcher By Pamela Victor London, NJ: Jessica Kingsley Publishers, 2006. Library of Congress Number: RJ506.A9V53 2006 Category: Specific Chronic Health Condition
This entertaining adventure story captures the imagination while exploring the challenges of communication. It can be read by children-independently or with a parent or helper - and it can also be used to teach essential skills to children in storytelling or social skills training groups.
6-up
Exploring Feelings By Dr. Tony Attwood Arlington, TX: Future Horizons, 2004. Library of Congress Number: RJ506.A58A78 2004 Category: Specific Chronic Health Condition Sub-Category: Specific Chronic Health Condition
This program was designed as a treatment for an anxiety disorder or anger management problems in children with Asperger's syndrome but the program can be equally to children with High Functioning Autism and Pervasive Developmental Disorder.
6-up
Autism Acceptance book, The By Ellen Sabin China: Watering Can Press, 2006. Library of Congress Number: RJ506.A9S22 2006 Category: Faith Support/Community
The quality of life for children with autism can be enhanced when the people in their lives better understand them. This book will help friends and family gain insights into what it is like to be autistic.
6-8 years
Captain Tommy By Abby W. Messner Stratham, NH: Potential Unlimited Publishing, 1996. Library of Congress Number: RJ506.A9.C36 1996; C:2 Category: Coping
During Tommy's first day of camp he meets Kevin, a boy with autism. Tommy at first tries to befriend Kevin, but Kevin ignores him, or so Tommy thinks. The camp leader asks Tommy to play with Kevin and gives him a few ideas about how to communicate with him. By the end of the day, Kevin and Tommy become friends.
6-11 years
When My Autism Gets Too Big Shawnee Mission, KS: Autism Asperger Publishing Co., 2003. Library of Congress Number: RC553.A88B87 2003 Category: Coping
This book is written to help children, parents, and teachers understand about the anxiety experienced by children with autism spectrum disorder and offers some suggestions about how the child might recognize 'anxiety' (autism too big) and what he or she might do.
7-13 years
Autism Through A Sister's Eyes By Eve B. Band Arlington, TX: Future Horizons, 2001. Library of Congress Number: RJ506.A9 B36 2001 C:2 Category: Coping
When young people have questions about a brother or sister with autism of Asperger's Syndrome clear answers can be hard to find. "Why does Daniel do that?" is the question ten-year old Emily recalled asking her parents as a young child when she first sought to understand her older brother and his differences. The author, a clinical psychologist, answers her questions about autism. Emily's story is as uplifting as it is filled with valuable information for parents and siblings, or any individual whose life is touched by a person with high-functioning autism or Asperger's Syndrome.
7-15 years
Can I tell you about Asperger Syndrome? By Jude Welton Philadelphia, PA: Jessica Kingsley, 2004. Library of Congress Number: RJ506.A9W44 2004 Category: Specific Chronic Health Condition
This is a brief book written to explain Asperger Syndrome, both to classmates and individuals on the spectrum... It is sufficiently brief for a young audience but also gives good specific examples.
8-up
Andy and His Yellow Frisbee By Mary Thompson Bethesda, MD: Woodbine House, 1996. Library of Congress Number: RJ506.A9T56 1996 Category: Coping
A gentle story that should appeal to young readers who are new in school or struggling with friendships, as well as those who are interested in autism.
8-12 years
Different Like Me - My book of autism heroes By Jennifer Elder Philadelphia PA: Jessica Kingsley Publishers, 2006. Library of Congress Number: RC553.A88E43 2005 Category: Coping
Quinn finds it difficult to fit in. His doctor has told him that he is autistic, which means he is a bit different from most other children. But there are many famous people who were a little different, just like him. They also had trouble fitting in, but made great steps forward in science, art, math, literature, philosophy and comedy.
This book will help inspire kids who are different and shows them that they too can succeed.
8-12 years
Looking After Louis By Lesley Ely Morton Grove, IL: Albert Whitman and Co, 2004. Pages: 24 Library of Congress Number: RJ506.A9E49 2004 Category: Coping
Louis has autism and doesn't seem to know that anyone else in the classroom exists. That is, until one day his classmates figure out a way to include him in their soccer game. Looking After Louis is a book about tolerance and respect for individual differences.
8-12 years
Oh Brother! Growing Up with a Special Needs Sibling By Natalie Hale Washington, DC: Magination Press, 2004. Pages: 46 Library of Congress Number: HQ773.6.H25 2004 Category: Coping
Being the sibling of a special needs child has it's own challenges. In Oh Brother! Becca tells how she learns to cope with her brother Jonathan's special needs and at the same time make sure that her own needs are also being met.
8-13 years
My Friend with Autism By Beverly Bishop Arlington, TX: Future Horizons, 2002. Library of Congress Number: RJ506.A9B57 2002 Category: Coping
This book is a wonderful, positive way to provide young children and their parents with information about their friends who have an autism spectrum disorder. My Friend with Autism celebrates the perspective and unique abilities of children with autism and offers classmates concrete ways to develop connections and friendships.
8-14 years
Asperger Syndrome, the Universe and Everything By Ken P. Kerr, Gill Rowley London and Philadelphia: Jessica Kingsley Publishers, 2001. Library of Congress Number: RC553.A88 H35 2001 Category: Specific Chronic Health Condition
Kenneth Hall is a 10 year old boy who has Asperger syndrome. He is also exceptionally gifted and a member of Mensa. He lives in Northern Ireland, and some of his main interests are math, computers and books of adventure stories. He tells his story here to help people understand more about Asperger.
9-12 years
Joey and Sam By Ilene Katz, Edward Rita Northbridge, CA: Real Life Storybook, 1993. Library of Congress Number: RJ506.A9 K38 1993 Category: Coping
A poem from Illana Katz entitiled, "Mother to Her Autistic Child," begins this book. Joey is the older brother of Sam who has autism. Joey expresses his frustrations and thoughts out loud and to himself about having a brother that is different than everybody else. Sam's differences are explained in the book and Joey learns to love his brother just the way he is.
9-12 years
This is Asperger Syndrome By Elisa Gagnon, Brenda Smith Myles Shawnee Mission, KS: Austim Asperger's Publishing Company, 1999. Library of Congress Number: RC553.A88 G24 1999 Category: Specific Chronic Health Condition
Informative and helpful, this book helps families and classmates understand Asperger’s Syndrome and some of the general thoughts and actions of children with Asperger’s through realistic examples and explanations.
10-up
Sometimes I Drive My mom Crazy, But I know She's Crazy About Me By Lawrence Shapiro King of Prussia, PA: The Center for Applied Psychology, Inc., 1993. Library of Congress Number: RJ506.H9S53 1993 Category: Specific Chronic Health Condition
Working together, kids, parents, teachers and other health care professionals can all can find solutions for kids with ADHD. Most importantly, this book should help children see that they are not " weird" or "bad", and that by learning to cope with their difficulties, they can enjoy success.
10-up
What did you say? What do you mean? By Jane Welton London, NJ: Jessica Kingsley, 2004. Library of Congress Number: RJ506.A9 W443 2004 Category: Specific Chronic Health Condition
Welcome to the world of metaphor... Any parent or teacher working with Asperger's or autism will find that this book helps to open the doors of imagination for the child in ways that they might not have thought possible. A fun and practical book, which children and grownups can enjoy - and giggle over - together.
10-up
What is Asperger syndrome, and how will it affect me? By Martine Ives London, England: The National Autistic Society, 1999. Library of Congress Number: RC553.A88I94 2001 Category: Specific Chronic Health Condition
Asperger syndrome is quite a tricky thing to explain. Basically, people with Asperger syndrome have problems in three main areas. These areas can be divided up into - social communication, social understanding and imagination. This guidebook answers any and all questions that will help people with Asperger's live their lives with as much independence as possible.
10-18 years
Developing Talents By Temple Grandin, Kate Duffy Shawnee Mission, KS: Autism Asperger Publishing Co., 2004. Library of Congress Number: HV3005.G73 2004 Category: Specific Chronic Health Condition
This book is written with a conversational directness to aid the young person with Autism and Asperger's develop their life goals and skills. The author's illustrations from her own youthful exeriences are convincing and will inspire hoope and impart practical guidance.
12-18 years
Freaks, Geeks & Asperger Syndrome By Luke Jackson London, NJ: Jessica Kingsley Publishers, 1988. Library of Congress Number: RJ506.A9J326 2002 Category: Specific Chronic Health Condition
This is a book for adolescents with Asperger Syndrome, written by a thirteen year-old who has a diagnosis of Asperger Syndrome. This book will enhance our understanding, change attitudes and replace break despair with insight and laughter.
Teens
Autism-Asperger's and Sexuality By Jerry Newport, Mary Newport Arlington, TX: Future Horizons, Inc., 2002. Pages: 200 Library of Congress Number: RJ506.A9 N49 2002 Category: Specific Chronic Health Condition
This book discusses topics that every teenager wants and needs to know about, from the authors who are a married couple who have gone through the same issues of relationships, sexuality and social situnations. Both authors have Asperger's and are share their experiences along with tips and practical guidance.
Teens
Taking Care of Myself By Mary Wrobel Arlington, TX: Future Horizons, Inc., 2003. Pages: 246 Library of Congress Number: WM203.5W957t 2003 Category: Appearance and Personal Grooming
This book is written for adults teaching adolescents with autism about hygiene and puberty as well as information to live safe, healthy lives as independently as they are mentally and physically capable of. The introduction of each chapter is in smaller print and more detailed instructions for those presenting the course. There are checklists and simplified instructions in large print for adolescents and teens which can be copied and distributed as handouts. This important information is presented in a straightforward and conversational manner and gives specific checklists and guidelines to follow for good hygiene and safety.
Teens
Your Life is Not a Label By Jerry Newport, Ron Bass Arlington, TX: Future Horizons, Inc., 2001. Library of Congress Number: RJ506.A9 N49 Category: Coping
This insightful and inspiring book offers teens and adults with Asperger’s Syndrome common tips and recommendations for leading normal and happy lives in spite of difficulties associated with living with Asperger’s or High-Functioning Autism. The humorous and encouraging outlook makes the book an enjoyable read, and the poignant understanding and advice makes it an immensely useful tool for life.
Adults
Asperger Syndrome and Difficult Moments By Brenda Smith Myles, Jack Southwick Shawnee Mission, KS: Autism, Asperger Publishing Co., 1999. Library of Congress Number: RC553.A88M973 2005; C:2 Category: Specific Chronic Health Condition
This publication should help anyone living or working with an individual on the spectrum who engages in challenging behavior. It is concise, thoughtful, well-researched and practical.
Videos
4-up
Spectrum Connections New York, NY: Brandissima Library of Congress Number: RJ506.A9S64 2005 Category: Specific Chronic Health Condition
Connecting Body Movement for Children on the Spectrum.The class is led by music therapist Elizabeth Balzano
4-up
Spectrum Connections Connecting Emotions By Elizabeth Balzano Brandissimo , Inc, 2005. Library of Congress Number: RJ506.A9S64 2005 Category: Specific Chronic Health Condition
Created by the mother of an autistic child, "Connecting to Emotions through Music" is the first volume in a series of high quality entertainment DVDs that stimulate and engage children on the spectrum of autism and related disorders.
6-up
Autism Movement Therapy Los Angeles, CA: Chris Sanborn, 2007. Library of Congress Number: RC489.M66A98 2007 Category: Specific Chronic Health Condition
Autism Movement Therapy conbines structured movement with music connectin the left & right hemispheres of the brain for a whole brain cognitive re-mapping approach
Adults
Autism Being Friends By Indiana Resource Center for Autism Bloomington, IN: Indiana University, 1991. Length: 8minutes Library of Congress Number: RJ506.A9 A87x 1991 Category: Specific Chronic Health Condition
This video shows the viewer how children with autism are in some ways similar and others different from the children around them. Suggestions are made to help children with autism, make friends with others around them.
In a child-friendly format, this site covers what autism is, what doctors do to care for children with autism, what it is like to liv e with autism, and what teems with autism are like.
All Ages
Siblings of Autism and Related Disorders http://www.siblingsofautism.com Author: Ashley is the sister of an autistic older brother.
This site provides a place where siblings of children with autism can post stories about their brother, or sister, find a pen pal, join a chat , or get book suggestions.
A one-week overnight camp for children and adults with mental and physical disabilities. Accessible campground is located in Flynn's Lick Creek area of Cordell Hull Lake, in Jackson County, TN (Gainesboro).
2010 Dates:
Week 1: May 30-June 4
Week 2: June 6-11
Week 3: June 20-25
Week 4:** June 27-July 2*
Week 5: July 4-9
Week 6: July 11-16
Week 7: July 27-Aug. 1
** 18 yr. old and younger week
* June 27-July 2: Stay Over Weekend
The camp sessions will be on a 'First Come, First Served Basis.' All Camp Fees should be paid in full 30 days prior to arrival date. Camping fees for cancellations made less than fifteen days prior to the arrival date will not be refunded.
Keystone Camp will be operating its specialized 9-week camp, from June to August, focusing especially on campers with Prader-Willi Syndrome. This session offers an excellent opportunity for campers with PWS to form friendships and participate in fun-filled, excitiing adventures. In addition, Keystone Camp offers the traditional camp experience to individuals with developmental disabilities such as mental retardation, cerebral palsy, epilepsy, autism and neurological impairments. Campers have the option of overnight stay at the camp or to participate in the day camp.
The camp is located on 70 acres in the Pocono Mountains of Pennsylvania.
TRIAD is dedicated to providing a fun, structured camp environment in which all children can learn and have successful interactions with their peers. Children with typical development who are between the ages of 7 and 13 are invited to participate in camp. These special peers serve as models for appropriate social and communication behaviors and as interactive partners for the campers with autism while also participating in fun camp activities..
Desarrollo y deficit By Vicky Lewis Barcelona, Spain: PAIDOS, 1987. Library of Congress Number: RJ506.D68L49 1991 Category: Educational and Community Issues Sub-Category: Specific Chronic Health Condition
Ceguera, sordera, deficit motor, sindrome de Down, autismo.
Ninos Autistas: Guia Para Padres, Terapeutas y Educadores By Michael D. Powers Col. Pedro Maria Anaya, C.P. Mexico: Editorial Trillas, 2001. Library of Congress Number: RJ506. A9 P6 2001 Category: Specific Chronic Health Condition
This is the translated version of "Children with Autism: A Parents' Guide" by the same author. This book educates parents of newly diagnosed children with autism and introduces them to the development of a child with autism, giving them practical information to adjust to the new diagnosis. There are also chapters on legal rights and medical problems, and the end of the book provides an appendix, glossary, reading list, and a resource guide.
Please notify us if you have corrections to any information presented on this health topic.
All information on this website is for educational purposes only. Specific medical advice, diagnoses, and treatments can only be given by your personal health care professionals