Parent Perspective As a parent of a young adult with Down syndrome, I know how important it is to be able to find the information you need right away. I am glad you visited this website and I know you will find information helpful. When we were first told that our new baby had Down syndrome, we were shocked. No, this is not what we had planned for our life at all. Our dreams had included the captain of the football team, famous actor, and scientist, maybe even president. We loved our new baby but we grieved for the perfect baby we felt was to be for us. We continue to dream. We have taught him to dream for himself. The dreams are a little different but they are still dreams. He has worked with the football team, he has been in several videos, loves hands on science project in his class at school, and wants to run for class president. He loves singing and playing the guitar. He loves pretty girls. He is a loving brother and the most organized human being I’ve ever known. WOW! He has accomplished so very much! He is PERFECT!! Our son has brought us a whole new understanding of patience, kindness, love, compassion, and gentleness. I would not have experienced any of these emotions to the depth that I do today if I had not had my son with Down syndrome. He has changed our lives for the better. I feel honored to have been trusted with such a wonderful gift. Sheila J. Moore

Angel Unaware By Dale Evans Old Tappan, NJ: Spire Books, 1963. Pages: 64 Library of Congress Number: BR1715.R6R6 1963 Category: Coping   This is the touching story of Dale Evans and Roy Rogers' experience as told through the eyes of their little baby girl, Robin Elizabeth who was born with Down syndrome. Although she was with them only a short time, she impacted their life and taught them many valuable lessons.

Another Season: A Coach's Story of Raising An Exceptional Son By Gene Stallings, Sally Cook New York, NY: Broadway Books, 1997. Pages: 213 Library of Congress Number: RC571.S73S73 1997; C:3 Category: Coping   Renowned Alabama football coach Gene Stallings recounts his life story, his trials and triumphs on the field and raising a son with Down syndrome. Initially, he and his wife were told that Johnny would not live to see his first birthday, but they all proved that prediction to be wrong and this is his inspiring story.

Bethy and The Mouse By Donald C. Bakely Newton, KS: Faith and Life Press, 1985. Library of Congress Number: HV894.B35 1985 Category: Coping   The story of a family coping with raising their children with Down Syndrome is told primarily through poetry. This is an inspirational book intended to support parents through the troubles and joys of raising a child with Down Syndrome.

Choosing Naia By Mitchell Zuckoff Boston, MA: Beacon Press, 2002. Pages: 281 Library of Congress Number: RG629.D68Z83 2002 C:2 Category: Coping   This is one family's detailed account of their journey through the labyrinth of genetic counseling, medical technology and advocacy for those born with Down syndrome. Courageous and with a postive outcome, it chronicles the family's spiritual and emotional growth as they embrace their goal to help their child grow and thrive.

Classroom Language Skills For Children with Down Syndrome: A Guide for Parents and Teachers By Libby Kumin Bethesda, MD: Woodbine House, 2001. Library of Congress Number: LC4616.K86 K86 2001 Category: Specific Chronic Health Condition   This book is a comprehensive and practical guide to assist both the parent and professional in teaching communication, language and classroom skills to the child with Down Syndrome from kindergarten to middle school. This book includes methods of communication for children who has little to no speech. It supports the child's assimilation in the classroom and gives ideas on adapting schoolwork and improving student-teacher communication.

Communication Skills in Children with Down Syndrome: A Guide for Parents By Libby Kumin Rockville, MD: Woodbine House, 1994. Pages: 241 Library of Congress Number: RJ506.D68 K86 1994; C:2 Category: Specific Chronic Health Condition   This book guides parents in helping to develop language communication skills in their children with Down Syndrome. Contains practical advice and suggestions on how to help childen learn to communicate at home. Readers will find basic information on topics in communication development and additional resources for each topic.

Como Favorecer Las Habilidades Communicativas De Los Ninos Con Sindrome De Down Barcelona, Spain: Paidos, 1997. Pages: 213 Library of Congress Number: RJ506.D68K8; C:3 Category: Specific Chronic Health Condition   -Que cabe esperar de la evolucionde sus facultades communicatives desde la infancia hasta la adolescencia temprana. -Como afecta el sindrome de Down a esas aptitudes. -Que pueden hacer los padres para maximizar el potencial de sus hijos en esta etapa crucial del desarrollo. This book guides parents in helping to develop language communication skills in their children with Down Syndrome. Contains practical advice and suggestions on how to help children learn to communicate at home. Readers will find basic information on topics in communication development and additional resources for each topic.

Count Us In: Growing Up With Down Syndrome By Jason Kingsley, Mitchell Levitz New York, NY: Harcourt Brace, 1994. Pages: 182 Library of Congress Number: RC571. K58 1994 Category: Coping   This is the story of two families who were determined to raise their two sons with Down Syndrome to learn and experience life to their fullest abilities. The book is written in dialogue format in the words of Jason and Mitchell who discuss family, growing up, the loss of family members, becoming independent, marriage and world politics.

Differences in Common: Straight Talk on Mental Retardation, Down Syndrome, and Life By Marilyn Trainer Bethesda, MD: Woodbine House, 1991. Library of Congress Number: RJ506.D68 T73 1991 Category: Specific Chronic Health Condition   In fifty essays that span more than 20 years, Marilyn Trainer describes raising her son who has Down Syndrome. She discusses issues that range from public attitude to education and independence.

Down Syndrome Nutrition Handbook-A Guide to Promoting Healthy Lifestyles, The By Joan E. Guthrie Medlen Bethesda,: Woodbine House, 2002. Library of Congress Number: RC571.M43 2002 Category: Nutrition/Weight Management   This book is a unique, comprehensive personal library addition for any parent or professional caring for a person with Down Syndrome.

Down Syndrome: Birth to Adulthood, Giving families an EDGE By John Rynders, Margaret Horrobin Denver, CO: Love Publishing, 1996. Library of Congress Number: RC571.R96 1996 Category: Coping   Filled with practical examples, this book is a guide for both families and professionals who are cocerned with the mental nad emotional development of families with a chile with down syndrome. Chapters include promoting health, family adaptation, and adjustment, the school years, independent living and maintaining health into adulthood.

Down Syndrome: Living and Learning in the Community By Lynn Nadel, Donna Rosenthal New York, NY: Wiley-Liss, 1994. Library of Congress Number: RC571.D684 1994 Category: Specific Chronic Health Condition   This book provides an overview of medical advances, information on programs and services available, and gives information to parents and health care professionals to help assist people with Down syndrome to live and work in the community. Young adults with Down syndrome comment on their accomplishments, feelings and offer advice.

Down Syndrome: Moving Through Life By Yvonne Burns, Pat Gunn New York, NY: Chapman & Hall, 1993. Library of Congress Number: RC571.D686 1993 Category: Specific Chronic Health Condition   This book gives practical exercises on movement and motor skill development in children with Down Syndrome. It looks at the whole life cycle and focuses on building movement skills that will help integrate a person into the workplace and social settings. This book is suitable for professionals working in the field of developmental disabilities.

Down Syndrome: The Facts By Mark Selikowitz New York, NY: Oxford University Press, 1997. Library of Congress Number: RJ506.D68 S45 1997 Category: Specific Chronic Health Condition   Beginning with the chapter “The First Days are the Hardest,” this book covers “Your Child’s Development,” “Your Child’s Behavior,” school decisions, adolescence and adulthood, controversial treatments and future pregnancies. This book discusses these topics in a straight-forward manner.

Down Syndrome: Visions for the 21st Century By William I. Cohen, Lynn Nadel, Myra E. Madnick Indianapolis, IN: Wiley, 2002. Library of Congress Number: RC571.D694 2002 Category: Specific Chronic Health Condition   This book give a comprehensive overview of th most current clinical, educational, developmental, psychosocial, and transitional issues relevant to indivduals with Down Syndrome and their families. It disusses alternative and nontraditional theapies as well as the most recent health care guidelines for individuals with Down Syndrome.

Early Communication Skills for Children with Down Syndrome By Libby Kumin, Ph.D., Bethesda, MD: Woodbine House, 1994. Library of Congress Number: RJ506.D68K86 2003 Category: Specific Chronic Health Condition   An excellent comprehensive guide for parents and educators in developing communication skills for their children with Down syndrome. The author is a renowned expert in this field and makes difficult skills such as articulation speech intelligibility and transitional communication completely understandable.

Expecting Adam: A True Story of Birth, Re-birth, and Everyday Magic By Martha N. Beck New York, NY: Times Books, 1999. Library of Congress Number: RG629.D68.B43 1999 Category: Coping   When Martha and her husband found out they were going to have their second child they were on the fast track in their respective careers. Upon finding out their child had Down Syndrome they were given the advice that all of their careful planning would go out the window. This is their story as they reassess their values and goals and find their way through pregnancy and a rebuild a new life with their son, Adam.

Fine Motor Skills for Children with Down Syndrome By Maryanne Bruni Bethesda, MD: Woodbine House, 2006. Library of Congress Number: RJ506.D68B78 2006 Category: Specific Chronic Health Condition   This new, expanded edition explains the best practices and procedures for helping children master the finger and hand skills needed for home and school activities. This book continues to be an excellent resource for both parents and therapists.

Fine Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals By Maryanne Bruni Bethesda, MD: Woodbine House, 2006. Pages: 190 Library of Congress Number: RJ506.D68 B78 1998 C:2; 2006 C:1 Category: Specific Chronic Health Condition   This guide assists parents and professionals to help children with Down Syndrome improve their fine motor functioning. Instructional steps to enable children to perform a variety of diverse activities such as eating with a fork to working with a computer are covered.

Gifts By Kathryn Lynard *Soper Bethesda, MD: Woodbine House, 2007. Category: Specific Chronic Health Condition   "Gifts" is honest and life affirming, a chorus of mothers proclaiming what every obstetrician and gynecologist should know-that life is a gift and an extra chromosome is not the end of the world.

Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals By Patricia C. Winders Bethesda, MD: Woodbine House, 1997. Library of Congress Number: RJ506.D68 W56 1997; C:2 Category: Specific Chronic Health Condition   Instructional book which includes exercises and pictures on helping a child with Down syndrome to sit, stand, crawl, walk, kick a ball, walk up & down stairs, run, jump and ride a tricycle.

I Can, Can You? By Marjorie W. Pitzer Bethesda, MD: Woodbine House, 2004. Library of Congress Number: RM237.86K67 2006 Category: Specific Chronic Health Condition   Come along with these babies and toddlers with Down Syndrome, as they discover their world and enjoy new experiences. They say. "I can swim. I can play patty-cake. I can share." Bet you can too!

Life As We Know It By Michael Berube New York, NY: Pantheon Books, 1996. Library of Congress Number: HQ759.913.B47 1996 Category: Coping   The true story of a family raising a son with Down Syndrome. Michael Berube recounts the first four years of his son’s life and in the process touches upon the broader social issues affecting the lives of families raising handicapped children such as justice and perceptions.

Medical and Surgical Care for Children with Down Syndrome: A Guide for Parents By D. C. Van Dyke, Philip Mattheis, Susan Eberly, Janet Williams Bethesda, MD: Woodbine House, 1995. Library of Congress Number: RJ506.D68 M43 1995 Category: Specific Chronic Health Condition   This book provides parents with a wide variety of medical information relating to the health of their child with Down Syndrome. Topics include basic health-related issues, nutrition, dental concerns and sexuality as well as information on more specific concerns, such as heart disorders, orthopedics and neurology.

Prevention and Treatment Considerations for the Dental Patient with Special Needs By Steven Perlman, Clive Friedman, David Tesini Skillman, NJ: Johnson & Johnson, 1991. Pages: 85 Library of Congress Number: RC815.P47 1991 Category: Specific Chronic Health Condition   This book offers a comprehensive overview of dental care and concerns for children with special needs: drooling, bruixism, orthodontic therapy, trauma, fractured incisors, over-retained teeth, mineralization of plaque, and over 20 other major topics. Special consideration is given to patients with down syndrome, cerebral palsy, and developmental disabilities. A glossary of terms is included in the back of the book.

Schooling Children with Down Syndrome By Christopher Kliewer New York, NY: Teachers College Press, 1998. Pages: 140 Library of Congress Number: LC4631.K55 1998 Category: Educational and Community Issues   Sub-Category: Professional resources   This is a stirring view of a vision that is inclusive of students and citizens who have down syndrome. The author gives numerous examples of how students have overcome the difficulties and challenges that the educational system presents and give insight into how teachers can create a more inclusive environment.

Special Kind of Hero, A By Charles Burke, Beth McDaniel New York, NY: Dell, 1993. Library of Congress Number: PN2287.B79 A3 1993 Category: Coping   The story of Charles Burke, who likes to refer to his condition as “Up Syndrome”. His dream of being and actor came true as he starred in the television series “Life Goes On”. He now spends his time dedicated to helping others with Down Syndrome and he shares his story of growing up, his hopes, challenges and dreams.

Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality By Terri Couwenhoven Bethesda, MD: Woodbine, 2007. Library of Congress Number: RJ506.D68C68 2007 Category: Educational and Community Issues   This publication is an easy-to-read book written in a disarming style and gives parents the background and confidence to speak comfortably with their children about these sometimes difficult subjects. Each chapter--from Learning about the Body to Friendship and Dating--highlights key points, activities, and parent statements. The author prompts parents to consider their personal and family values on a particular topic before teaching begins.

Teaching Math to People with Down Syndrome and Other Hands-On Learners By DeAnna Horstmeier Bethesda, MD: Woodbine House, 2004. Pages: 392 Library of Congress Number: QA11.2.H67 2004; c:2 Category: Educational and Community Issues   This guide to teaching individuals with Down syndrome focuses on teaching basic yet essential math concepts such as addition and subtraction, as well as the related concepts of time, money, counting, and measuring. Using hands-on activities and games that appeal to the visual learner, the book emphasizes functional skills that can be applied to everyday living situations and in turn helps the student to become more independent. No special background on the part of teacher or student is necessary to succeed with this program, making it applicable to anyone with an interest in teaching math to someone with Down's Syndrome or other visual learning style.

Teaching Reading to Children with Down Syndrome: A Guide for Parents and Teachers By Patricia Logan Oelwein Bethesda, MD: Woodbine House, 1995. Library of Congress Number: LC4620.036 1995; C:2 Category: Educational and Community Issues   This book has comprehensive information on teaching, beginning with a chapter with background information, getting started, teaching sight words, the alphabet, phonics, spelling and writing. This extensive book has worksheets that can be used with the written lessons.

Teaching the Infant With Down Syndrome: A Guide for Parents and Professionals By Marci J. Hanson Austin, TX: Pro-ed, 1986. Pages: 268 Library of Congress Number: RJ506.D68 H358 1987; C:2 Category: Educational and Community Issues   This is a guide for parents and professionals and gives practical exercises for teaching the infant with Down Syndrome cognitive skills, gross and fine motor skills with step-by-step written instructions along with pictures. There is also section for teaching communication techniques and eating safely.

Gifts of love National Down Syndrome Society Length: 25 minutes Category: Specific Chronic Health Condition   This video features four families with children who have Down Syndrome. The parents share initial reactions to the diagnosis. They also explain how their lives returned to normal as time passed. This video shows that the parent's involvement in support groups plays and instrumental role in helping them to deal with frustrations and anxiety issues.

Just A Chance By Debra Matthews Calgary, Alberta, Canada: Great Shakes Production, 1997. Length: 20 minutes Library of Congress Number: RJ506.D68 M38 1997 Category: Specific Chronic Health Condition   This video is suggested for a family with a new baby that has Down Syndrome. This video is a general overview of Down Syndrome and the statistics and characteristics associated with it. The video is very current and provides valuable insights and information for friends and family of individuals with down syndrome. A variety of issues are addressed from infancy through childhood to adult life.

Kids with Down Syndrome By Will Schermerhorn Blueberry Shoes Production, 2008. Category: Specific Chronic Health Condition   This video brings together parents and professionals from the United States, England, Ireland, Scotland, Singapore, Australia and New Zealand to give an up-to-date and comprehensive guide to the health and social challenges in the years from walking to adolescence.

Opportunities to Grow By National Down Syndrome Society National Down Syndrome Society, 1997. Library of Congress Number: RJ506.D68 O67 1992 Category: Parenting/Child and Adolescent Development   This video explains that the success of a child with Down Syndrome depends on the parents and shows how computers and different applied technologies can enhance education and build self-esteem. It also references several nonprofit organizations that build skills for developing independence in young adults who have Down Syndrome.

Promising Future Together: A Guide for New Parents of Children with Down Syndrome, A By National Down Syndrome Society New York, NY: National Down Syndrome Society, 1998. Library of Congress Number: RJ506.D68 P76 C:2 Category: Specific Chronic Health Condition   This video was created by the National Down Syndrome Society for new parents of children with Down Syndrome. It briefly covers what Down Syndrome is and how to care for your child. The video does not give any in-depth info, but does motivate parents with exceptional testimonials.

Raymond's Portrait By Donald Young (producer/director) San Francisco, CA: National Asian American Telecommuinications Association, 1997. Library of Congress Number: RJ508.D68 R73 1997 Category: Coping   This video shows the life of an artist with Down Syndrome and includes interviews with family, teachers, and the artist. There is a commentary from Raymond's art teacher who expresses how the artist's personality and determination is conveyed through his art. The video also portrays how the artist adjusted to high school with Down Syndrome, and how he was integrated into the classroom.

Your Baby Has Down Syndrome By Down Syndrome Center of Pittsburgh Pittsburgh, PA: Down Syndrome of Pittsburgh Library of Congress Number: RJ506.D68 D69; C:4 Category: Specific Chronic Health Condition   This video helps parents and caregivers cope with their children being born with Down Syndrome, informs what Down Syndrome is and what it is not, and educates parents that it is not their fault and who is at high risk of having children with Down Syndrome. The video also discusses how to seek emotional support and quality medical care for the child, the development of children with Down Syndrome, and prenatal problems with Down Syndrome babies.

Down Syndrome the First 18 Months By Will Schermerhorn Blueberry Shoes Productions, 2003. Length: 108 minutes Library of Congress Number: RT506.D68S34 2003; C:2 Category: Specific Chronic Health Condition   This DVD is especially made for new parents of a baby with Down syndrome. The author's son, Mason, has Down syndrome and it was his journey to gather information from all possible sources that inspired him to pass it along to aid new parents and to give them hope for a bright future with their baby. This extensive DVD has sections on parents' stories, heatlth concerns, therapies, sibling interaction, nutrition, and working with health care professionals.

Disability Solutions Website http://www.disabilitysolutions.org Author: Enoch-Gelbard Foundation Disabilty Solutions is a newsletter published 6 times per year by a private foundation available online. It is a resource for familes and others interested in Down Syndrome and related disabilities. Topics covered nclude sexuality education, communication strategies, sibling issues and inclusion. Ideas, comments and suggestions for future issues are welcomed.

Down Syndrome Association of Middle Tennessee http://www.dsamt.org Author: Down Syndrome Association of Middle Tennessee This website offers information on the organization and a calendar listing of all local events of interest to families and friends of persons with Down Syndrome. In addition, there is a resource list, Upsy-Daisy, a bi-monthly newsletter (available online), and links to other sites.

Down Syndrome Health Information http://www.ds-health.com Author: Len Leshin, MD, FAAP A pediatrician who is the parent of a child with Down Syndrome maintains this site. Included are articles on various medical conditions often associated with Down Syndrome authored by Dr. Leshin (sleep apnea, celiac disease, seizures and reflux). In addition, there are articles by guest authors on issues related to the cure of children with Down Syndrome (physical and occupational therapy, speech, toilet training and sexuality).

Down Syndrome WWW Page http://www.nas.com/downsyn Author: Members of the Down Syndrome Listserv This website offers information about parent matching and support, events and conferences of interest to families of children with Down Syndrome, the 1996 Health Care guidelines for Individuals with Down Syndrome and a toy catalogue listing for children with special needs. In addition there is a link to the Down Syndrome Quarterly an interdisciplinary journal that covers medical, behavioral and social science research as well as the latest healthcare guidelines for children with Down Syndrome.

National Down Syndrome Congress http://www.ndscenter.org Author: The National Down Syndrome Congress, National Advocacy Organization The National Down Syndrome Congress aims to provide leadership in all areas of concern related to persons with Down Syndrome as well as support and empowerment to persons with the disease and their families. Resources available on the website include a new parent package, an extensive list of books and articles on Down Syndrome, and Healthwatch section on medical conditions associated with Down Syndrome.

National Down Syndrome Society http://www.ndss.org Author: The National Down Syndrome Congress is a nonprofit organization established in 1979. It is the largest non-governmental supporter of Down Syndrome research in the US. This website contains information on research and advocay. There is comprehensive information on health, development, education and life planning. A resource section includes information on support groups, articles, books, and vidoes on Down Syndrome. The organization also has extensive information on Down Syndrome in Spanish.

Welcoming Babies with Down Syndrome http://www.nas.com/downsyn/welcome.html Author: Down Syndrome listserv members This website is of particular interest to families of newborns diagnosed with Down Syndrome. There is good information on what Down Syndrome is, types of Down Syndrome, care of Children with Down Syndrome, and what to expect in the future. In addition there is an extensive resource list.

ARC of Tennessee 151 Athens way suite 100 Nashville, TN 37228 Phone: 615-248-5878 Fax: 615.327.0827 The ARC of Tennessee is committed to helping all people with mental retardation by securing the opportunity to choose and realize their goals of where and how they live, learn, work, and play. The ARC: 1) Helps those with mental retardation help themselves by working with the legislature, the governor, state agencies and committees to enhance existing services for people with disabilities and to initiate new policies and procedures as necessary. Through the ARC of Tennessee's legislative initiative, personal rights and civil rights of people with mental retardation are being monitored and assured. 2) Educates the public on ways to prevent mental retardation. 3) Acts as a public information and referral source for the state on topics related to mental retardation and related issues such as education, laws, living arrangements, supported employment and future planning. 4) Strive to inform and educate people about mental retardation through public workshops, printed materials, speakers groups and public awareness. 5) Provides information and training to parents through Project STEP. In addition to offering a variety of workshops, Project STEP provides telephone and individual assistance to parents that have specific questions and concerns relating to their child's disability or special education needs.

Down Syndrome Association of Memphis and the Mid South, The P.O. Box 382771 Germantown, TN 38283 Phone: 901.541.5155 This association provides several services including: current literature on Down Syndrome to new parents and their familie, information on local organizations, a newsletter, monthly meetings, and access to parent volunteers who will assist with IEP (individual education plan)

Down Syndrome Association of Middle Tennessee 111 North Wilson Blvd. Nashville, TN 37205 Phone: 615.386.9002 Fax: 615.386.9754 Website: http://www.dsamt.org The mission of the Down Syndrome Association of Middle Tennessee is to enhance the quality of life for all individuals with Down Syndrome by providing support and assistance to families, professionals, and the community. The organization provides: 1) Monthly support meetings. 2) Quarterly meetings with speakers covering topics of interest to families. 3) Assistance in finding resources for families. 4) Newsletter with articles of interest on a national level as well as local events and causes. The organization also: 1) mails packets to new families. 2) organizes social events and support for parents.

Down Syndrome Awareness Group, The P.O. Box 53575 Knoxville, TN 37950-3575 Phone: 865.905.2968 This active group has members in and provides services for 17 counties in East Tennessee. The group's board meets four times a year to plan activities and business, but the group itself meets frequently and hosts a variety of events. The 1st Friday of each month is Coffee And Crayons for parents and children of all ages. The group also participates in the Buddy Walk to raise money, zoo days for the community and conferences with visiting speakers regarding Down Syndrome.

Down Syndrome of Bowling Green po box 1611 Bowling Green, Ke 42101 This relatively new support group is in the process of joining with Down Syndrome groups in Lousiville and Paducah to form Down Syndrome of Kentucky. The group can be contacted via the Down Syndrome of Louisville.

Down Syndrome of Louisville Down Syndrome of Louisville, 1939 Goldsmith Lane #208 Louisville, KY 40218 Phone: 502.458.6392 E-mail: dianam@downsyndromeoflouisville.org Website: http://www.downsyndromeoflouisville.org This active group provides a variety of services, activities and information to parents and families of children with Down Syndrome. Services include a new parent welcome group, Mom's Time Out groups, family and teen group activities, advocacy, early intervention, a newsletter, and serving as a source of new information.

National Down Syndrome Congress 7000 Peachtree-Dunwoody Road, NE, Lake Ridge 400 Office Park Building 5, Atlanta, GA 30328 Phone: 770.604.9500 Toll-Free: 800.232.6372 E-mail: ndsccenter@aol.com Website: http://www.ndsccenter.org This organization provides a range of resources to meet family needs and educate professionals and the community in all aspects relating to Down syndrome. A national conference is held each year.

National Down Syndrome Society 666 Broadway New York, NY 10012-2317 Phone: 212.460.9330 Toll-Free: 800.221.4602 E-mail: jschell@ndss.org Website: http://www.ndss.org This organization focuses on public awareness and research related to Down syndrome. It has local affiliates and provides assistance to those wanting to start local support groups. The organization publishes a free quarterly newsletter and a magazine for teens and young adults. It provides information for physicians and researchers with an interest in Down syndrome and hosts a national conference.

Tennessee Council on Developmental Disabilities Andrew Jackson Bldg, Suite 1310, 500 Deadrick St. Nashville, TN 37243 Phone: 615.532.6615 Fax: 615.532.6964 Website: http://www/tennessee.gov/cdd/ This program promotes employment, inclusion, education, reform, and service opportunities for individuals with developmental disabilities. It works to meet the needs of individuals with disabilities and those affected by disabilities, including FAS/FAE. It also offers information and referral services.

Tennessee Department of Human Services: Division of Rehabilitation Services 400 Deaderick Street, 11th floor, Suite 1100 Nashville, TN 37248 Phone: 615.313.4891 The Division of Rehabilitation Services assists high school students who have disabilities gain employment. Students are provided with services such as vocational assessment, counseling, adjustment services, and assistance with job placement.

Tennessee Infant Parent Services (TIPS) 115 Stewarts Ferry Pike Nashville, TN 37214 Phone: 615.741.5002 Fax: 615.741.5051 Website: http://www.wtsd.tn.org/tipshome.htm This government-funded agency provides resources, education and support to families of children with developmental needs, including adopted children, children with FAS/FAE, and children with congenital developmental delays. The agency helps families address such needs as child care, respite care and financial concerns.

United Parents and Professional for Downs Chatanooga, TN E-mail: Info@upsfordowns.com Website: http://www.upsfordowns.com/index.html This Parental support group is based in Chattanooga, TN and provides many resources for local communities. The website contains information, articles and links and the group offers activities to help people in the community meet others, share stories and offer support.

Ups and Downs Padukah, KY Phone: 270.443.8704 E-mail: clark91@peoplepc.com Lisa Clark is the acting president of this Padukah, KY support group. She can be contacted above for information about meeting locations. Informational meetings about Down Syndrome are the first Monday of the month 6:30 pm - 8:00 pm and the group has social events on the 3rd Sunday of the month from 2pm to 4pm.

Vanderbilt Children's Hospital Down Syndrome Clinic Vanderbilt Children's Hosp. Outpatient, 5th Floor Suite B, Medical Center East Nashville, TN 37232 Phone: 615.343.3696 Toll-Free: 866.900.3696 The Down Syndrome Clinic serves to provide a broad, multi-specialty care for patients with Down Syndrome. After referral from a primary care physician, different specialists, educators, and families join to form a customized plan for each patient. The Child Development Center and John F. Kennedy Center at Vanderbilt University are collaborating with Children's Hospital Outpatient Center in the development of this program. The Down Syndrome Clinic will meet on selected Friday afternoons in the Children's Hospital Outpatient Center.

West Tennessee Special Technology Access Resource Center 60 Lynoak Cove Jackson, TN 38305 Phone: 901.668.3888 Toll-Free: 800.464.5619 E-mail: infostar@starcenter.tn.org Website: http://www.starcenter.tn.org The STAR center has a variety of specialized programs including Vision Services, augmentative Communication Evaluation and Training, Environmental Control Evaluation, Music Therapy, as well as employment-related services for individuals with disabilities who are seeking employment. Additional information on each program may be accessed on their website.

3-7 years

Veronica's First Year By Jean Sasso Rheingrover Morton Grove, IL: Albert Whitman & Company, 1996. Pages: 21 Library of Congress Number: RJ506.D68R54 1996 Category: Specific Chronic Health Condition   Nathan tells the story of all the preparations and excitement getting ready for his baby sister. But, when Veronica is born, mom and dad seem a little sad. When he asks about it, they explain that Veronica is a special baby, a baby with Down syndrome. Nathan helps with the baby and even helps create the scrapbook of Veronica's first year.

4-up	Our Brother Has Down's Syndrome By Shelley Cairo Buffalo, NY: Firefly Books, 1985. Library of Congress Number: RJ506.D68C34 1985 Category: Coping   This book is an introduction for children/siblings in understanding and accepting a brother or sister with this condition.

4-6 years

Hi, I'm Ben! By Julie A. Bouwkamp Rochester Hills, MI: Band of Angels, 1995. Library of Congress Number: RJ506.D68B68 1995 Category: Coping   This publication is dedicated to creating greater understanding of the full and rich lives of people with differences by helping parents, educators, medical professionals and others recognize the true potential people with Down syndrome and other disabilities.

4-6 years

Our Brother Has Down's Syndrome: An Introduction for Children By Shelley Cairo, Jasmine Cairo, Tara Cairo Toronto, Canada: Annick Press, 1985. Library of Congress Number: RJ506.D68 C34 1985 Category: Specific Chronic Health Condition   Two sisters talk about their baby brother, Jai, who has Down Syndrome, and what their life is like with him. With large type, lots of pictures this is an introduction for children who may not have encountered a child or sibling with Down Syndrome.

4-6 years

WHERE'S CHIMPY? By Berniece Rabe Morton Grove, IL: Albert Whitman & Company, 1988. Library of Congress Number: PZ7.R105Wg 1988 It's bedtime, but Misty can't go to sleep-her toy monkey is missing! Misty has Down syndrome, but that doesn't mean she acts differently from any other child. As she and Daddy retrace all the places she went during the day, they seem to be finding everything but Chimpy, until...

4-7 years

Charlsie's Chuckle By Clara W. Berkus Rockville, MD: Woodbine House, 1992. Library of Congress Number: RJ506.D68 B44 1992 Category: Coping   This book tells the story of a boy with Down syndrome and the power of his laugh to bring happiness to his town and family.

4-8 years

Best Worst Brother, The By Stephanie Stuve-Bodeen Woodbine House, 2005. Library of Congress Number: RJ506.D68S78 2005; C:3 Category: Coping   This is a book about Emma and her younger brother who has Down syndrome. Emma helped teach her brother sign language and in the process learned to understand the frustrations he was experiencing when he was unable to communicate.

4-8 years

We'll Paint the Octopus Red By Stephanie Stuve-Bodeen Bethesda, MD: Woodbine House, 1998. Library of Congress Number: RJ506.D68 S78; C:2 Category: Coping   This is the story of six year old Emma who is told by her parents she will soon be a big sister. Emma has her doubts but her father explains that there are many fun things she would be able to do with a little brother. After talking to her father about the list of things she can do with her new little brother she begins to look forward to his arrival. When the baby is born her father tells her he has Down Syndrome. She goes over the list of fun things she made and asks "does this mean that I can't do any of these things with him?" Her father realizes that with patience and slight modifications she will be able to do all the activities she had planned before, so Emma is happy about his arrival and her father seems happier too.

5-7 years

Let's Talk About Down Syndrome By Melanie A. Gordon New York, NY: Rosen Publishing Group, 1999. Library of Congress Number: RJ506.D68 G67 1999 Category: Specific Chronic Health Condition   This is a very basic book about Down Syndrome which explains where DS originates, how it affects development in children, and how children cope with this condition. Key words are introduced throughout the text with a glossary of terms in the back.

8-12 years

Oh Brother! Growing Up with a Special Needs Sibling By Natalie Hale Washington, DC: Magination Press, 2004. Pages: 46 Library of Congress Number: HQ773.6.H25 2004 Category: Coping   Being the sibling of a special needs child has it's own challenges. In Oh Brother! Becca tells how she learns to cope with her brother Jonathan's special needs and at the same time make sure that her own needs are also being met.

9-12 years

Everything You Need to Know About Down Syndrome By Mary Bowman-Kruhm, Ed. D. New York, NY: Rosen Publishing Group, Inc., 2000. Library of Congress Number: RJ506.D68 B68 2000 Category: Specific Chronic Health Condition   This book about Down Syndrome provides a complete look at the condition from basic genetics to growing up with DS. Each chapter begins with an anecdote to illustrate what the chapter will be discussing. The end of the book has a glossary of terms and suggestions for further reading as well.

9-12 years

Views From Our Shoes: Growing Up With a Brother or Sister With Special Needs By Donald Meyer Bethesda, MD: Woodbine House, 1997. Library of Congress Number: HV894.V54 1997; C:2 Category: Coping   This book contains 45 essays written by children who have special needs siblings. These are heartfelt personal stories from people age 5 to age 18, sharing how their siblings' disabilities have affected their lives and the lives of those around them. The book has a list of web-sites and a glossary for anyone unfamiliar with the conditions in the stories.

12-up

Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality By Terri Couwenhoven Bethesda, MD: Woodbine, 2007. Library of Congress Number: RJ506.D68C68 2007 Category: Educational and Community Issues   This publication is an easy-to-read book written in a disarming style and gives parents the background and confidence to speak comfortably with their children about these sometimes difficult subjects. Each chapter--from Learning about the Body to Friendship and Dating--highlights key points, activities, and parent statements. The author prompts parents to consider their personal and family values on a particular topic before teaching begins.

All Ages

Sibling Support Project http://www.thearc.org/siblingsupport Author: The ARC of the United States The ARC's Sibling project is a national program dedicated to the interests of brothers and sisters of people with special health and developmental needs. This site has information about Sibshops and peer support for school age brothers and sisters. There is a "resource" section with a list of recommended books for siblings, including a listserve for siblings of people with special needs. Back issues of the newsletter "Sib to Sib" are available.

6-up

Kidshealth - Down Syndrome http://www.kidshealth.org/kid/health_problems/birth_defect/down_syndrome.html Author: The Nemours Foundation's Center for Children's Health Media The kid's section of this website explains what Down Syndrome is, what causes it, and what life is like for kids with Down Syndrome.

13-up

Club NDSS http://www.clubndss.org This website offers an opportunity for people with Down Syndrome and other developmental disabilities to learn, play, and connect. The site includes sections on computers, school and free time, living healthfully, self advocacy, and independence. There is a section on tips for helpers.

Bebes con Sindrome de Down: Guia para padres, Segunda edicion By Karen Stray - Gundersen Bethesda, Maryland: Woodbine House, 1998. Pages: 347 Library of Congress Number: RJ506.D68 B3318 1998; C:2 Category: Specific Chronic Health Condition   This Spanish Edition book covers a wide variety of insights on babies with Down Syndrome. Topics include basic information on the condition, medical information, family information, early development and legal issues. Parent's statements can be found throughout the book, and references are provided for further reading.

Como Favorecer Las Habilidades Communicativas De Los Ninos Con Sindrome De Down Barcelona, Spain: Paidos, 1997. Pages: 213 Library of Congress Number: RJ506.D68K8; C:3 Category: Specific Chronic Health Condition   -Que cabe esperar de la evolucionde sus facultades communicatives desde la infancia hasta la adolescencia temprana. -Como afecta el sindrome de Down a esas aptitudes. -Que pueden hacer los padres para maximizar el potencial de sus hijos en esta etapa crucial del desarrollo. This book guides parents in helping to develop language communication skills in their children with Down Syndrome. Contains practical advice and suggestions on how to help children learn to communicate at home. Readers will find basic information on topics in communication development and additional resources for each topic.

Desarrollo y deficit By Vicky Lewis Barcelona, Spain: PAIDOS, 1987. Library of Congress Number: RJ506.D68L49 1991 Category: Educational and Community Issues   Sub-Category: Specific Chronic Health Condition   Ceguera, sordera, deficit motor, sindrome de Down, autismo.

Sociedad Nacional del Sindrome de Down 666 Broadway New York, NY 10012-2317 Phone: 212.460.9330 Toll-Free: 800.221.4602 E-mail: info@ndss.org Website: http://www.ndss.org This organization focuses on public awareness and research related to Down syndrome. It has local affiliates and provides assistance to those wanting to start local support groups. The organization publishes a free quarterly newsletter and a magazine for teens and young adults. It provides information for physicians and researchers interested in Down syndrome and hosts a national conference.

All information on this website is for educational purposes only. Specific medical advice, diagnoses, and treatments can only be given by your personal health care professionals